Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What's The Gluten Summit?
0

16 posts in this topic

Saw something about this Gluten Summit, here's the link:

 

http://theglutensummit.com/registration/

 

There sure are some big names listed.  Anyone know about it?  Looks interesting.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm surprised at that line-up. Some real experts and some of the high profile quacks. Interesting.

0

Share this post


Link to post
Share on other sites

I counted  7 actual noted celiac specialists, authors and researchers.. I am stunned to see them there with these other "experts", but I guess they know what they are doing.

Maybe they are there to help create better understanding of celiac and the gluten spectrum.

I have a lot of respect for those doctors and Melinda Dennis.

 

I also see a bunch of people who think everyone has a gluten sensitivity ( and some who can diagnose you with it for lots of $$$$.!) --even though there is no such thing at this time as a "gluten sensitivity test"--according to celiac experts!

 

I see people with lots of letters after their names, but it does not make me believe they are celiac or gluten experts.I have read several of their books and was not impressed at all. 

This all IMHO, of course.

 

I even read a  press release where the people at GIG  are now touting Cyrex lab tests as "valid".

So, how can that be--when the celiac experts say they are not?

 

Save your bucks and go to the ICDS next year. 

 

http://www.icds2013.org/

 

Edited to say: I did not realize the summit was free. thanks, Karen for enlightening me.

Edited by IrishHeart
0

Share this post


Link to post
Share on other sites

I

Save your bucks and go to the ICDS next year.

http://www.icds2013.org/

Actually, the next ICDS is in 2 years in Prague and the one after that is in New Delhi. So save your money! The reps from Prague are doing a lot of planning! I noticed none of these self- proclaimed Internet experts presented at ICDS.
0

Share this post


Link to post
Share on other sites

Now that I read the advertising more carefully, it does say that it's the world's first summit like this so I guess it's new to all of us.  

 

I enrolled in it and so far it has cost nothing.  It say the event dates are Nov. 11 to 17, 2013 when several interviews will be on-line each day.  I have no experience with events like this, perhaps they'll be wanting to sell stuff by the end.

 

They say their goal is to "move the conversation about gluten-related disorders forward".  That seems reasonable enough.  It's not directed just at people with celiac disease I take it.  

0

Share this post


Link to post
Share on other sites




I signed up to. It is free. I know a lot of the speakers do have products and books to sell, some good and some bad.

I think we need to remember that, just because someone calls the self a doctor, they aren't necessarily an MD. Also, research done by a company and not presented to other research peers to review and critique, may not be valid. Also, watch for a lot of odd logic or taking you in circles to get to " proof" of a theory or test.

One of these presenters has been "proving" their point in a way that will make you dizzy - them - A does x in your body. Me- how is that even possible? Them - it's not really A you are reacting to. It is the gluten added to A that your body is reacting to. Me - then A isn't doing what you just said it was! it's the gluten instead! Them - no, because that test wasn't valid. It was in a test tube. therefore A does x in the body.

0

Share this post


Link to post
Share on other sites

Should be interesting to see if there are discussions with a mix of these folks or simply each participant presenting their take.

0

Share this post


Link to post
Share on other sites

This does look interesting. There are at least a few people listed that I would pay actual real money to hear speak, and if someone is (or starts sounding like) a kook I can just stop listening. No one is going to force any of us to listen to every one of these "experts" but some of them are the best of the best and we would all benefit from hearing what they have to say.

0

Share this post


Link to post
Share on other sites

I saw that Dr. Daniel Amen is one of the presenters.  I have met him personally.  He is a crusader of the S.P.E.C.T. imaging process of the Brain.  I was fortunate to be a client at his Newport Beach, CA clinic.  I HIGHLY recommend watching his presentation.

 

Colleen

0

Share this post


Link to post
Share on other sites

I saw that Dr. Daniel Amen is one of the presenters.  I have met him personally.  He is a crusader of the S.P.E.C.T. imaging process of the Brain.  I was fortunate to be a client at his Newport Beach, CA clinic.  I HIGHLY recommend watching his presentation.

 

Colleen

 

yes, he's one of the ones I hold with high regard. I read that he is

 

" the lead researcher on the world’s largest brain imaging and rehabilitation study on professional football players."

 

Marios Hadjivassiliou, MD

 

is one of the doctors who has linked gluten to neurological symptoms, particularly gluten ataxia.

It was by reading his PUB MED articles that I started to figure out what the heck was going on with me. 

0

Share this post


Link to post
Share on other sites

yes, he's one of the ones I hold with high regard. I read that he is

 

" the lead researcher on the world’s largest brain imaging and rehabilitation study on professional football players."

 

Marios Hadjivassiliou, MD

 

is one of the doctors who has linked gluten to neurological symptoms, particularly gluten ataxia.

It was by reading his PUB MED articles that I started to figure out what the heck was going on with me. 

Wow Irish, that is great.  I was at his clinic about 3 years ago.  They have extensive archived images of not only football players but every imaginable traumatic brain injury, mental health disorders, toxin effects, etc.  And yes, my brain scan is in there too :) 

 

He runs presentations on PBS regularly.  His wife Tana is also accomplished in the nutrition area and just released a book. 

 

Colleen

0

Share this post


Link to post
Share on other sites

ok... here is one of the presenters. I saw her in an infommercial today as I flipped through the channels.

 

Not sure what it has to do with celiac or medically necessary gluten free diet

 

http://thevirgindiet.com/

 

and out of curiosity, I looked up this guy Dave and found

 

The Financial Times described Dave as a “bio-hacker who takes self-quantification to the extreme of self-experimentation” after he upgraded his brain by 20 IQ points, lowered his biological age, and lost 100 lbs without using calorie-control or exercise.

 

 

 

HOLY SMOKES.

0

Share this post


Link to post
Share on other sites

and out of curiosity, I looked up this guy Dave and found

The Financial Times described Dave as a “bio-hacker who takes self-quantification to the extreme of self-experimentation” after he upgraded his brain by 20 IQ points, lowered his biological age, and lost 100 lbs without using calorie-control or exercise.

HOLY SMOKES.

Nice...we can get a scientific celiac update along with a map to the fountain of youth ;)

1

Share this post


Link to post
Share on other sites

Nice...we can get a scientific celiac update along with a map to the fountain of youth ;)

 

 

:lol: seriously, how do you "lower your biological age" exactly? 

0

Share this post


Link to post
Share on other sites

:lol: seriously, how do you "lower your biological age" exactly? 

 

 

I guess fake IDs can go both ways?

0

Share this post


Link to post
Share on other sites

and furthermore, I lost nearly 100 lbs. without "calorie counting or exercise". It's called malabsorption.

 

He calls it "self-quantification"?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,344
    • Total Posts
      920,486
  • Topics

  • Posts

    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
    • Had my scope today. Dr said my esophagus is damaged and stomach inflamed. Waiting on biopsy results. Taking protonic and flagyl and he said to go ahead and try cutting gluten out to see if that helps. Thanks for the feedback everyone! 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,414
    • Most Online
      1,763

    Newest Member
    Vic40
    Joined