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What's The Gluten Summit?


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#1 Rucko

 
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Posted 12 October 2013 - 08:59 PM

Saw something about this Gluten Summit, here's the link:

 

http://theglutensumm...m/registration/

 

There sure are some big names listed.  Anyone know about it?  Looks interesting.


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#2 kareng

 
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Posted 12 October 2013 - 09:42 PM

I'm surprised at that line-up. Some real experts and some of the high profile quacks. Interesting.
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Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#3 IrishHeart

 
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Posted 13 October 2013 - 07:10 AM

I counted  7 actual noted celiac specialists, authors and researchers.. I am stunned to see them there with these other "experts", but I guess they know what they are doing.

Maybe they are there to help create better understanding of celiac and the gluten spectrum.

I have a lot of respect for those doctors and Melinda Dennis.

 

I also see a bunch of people who think everyone has a gluten sensitivity ( and some who can diagnose you with it for lots of $$$$.!) --even though there is no such thing at this time as a "gluten sensitivity test"--according to celiac experts!

 

I see people with lots of letters after their names, but it does not make me believe they are celiac or gluten experts.I have read several of their books and was not impressed at all. 

This all IMHO, of course.

 

I even read a  press release where the people at GIG  are now touting Cyrex lab tests as "valid".

So, how can that be--when the celiac experts say they are not?

 

Save your bucks and go to the ICDS next year. 

 

http://www.icds2013.org/

 

Edited to say: I did not realize the summit was free. thanks, Karen for enlightening me.


Edited by IrishHeart, 14 October 2013 - 05:53 AM.

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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#4 kareng

 
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Posted 13 October 2013 - 07:21 AM

I


Save your bucks and go to the ICDS next year.

http://www.icds2013.org/

Actually, the next ICDS is in 2 years in Prague and the one after that is in New Delhi. So save your money! The reps from Prague are doing a lot of planning! I noticed none of these self- proclaimed Internet experts presented at ICDS.
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#5 Rucko

 
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Posted 13 October 2013 - 09:02 AM

Now that I read the advertising more carefully, it does say that it's the world's first summit like this so I guess it's new to all of us.  

 

I enrolled in it and so far it has cost nothing.  It say the event dates are Nov. 11 to 17, 2013 when several interviews will be on-line each day.  I have no experience with events like this, perhaps they'll be wanting to sell stuff by the end.

 

They say their goal is to "move the conversation about gluten-related disorders forward".  That seems reasonable enough.  It's not directed just at people with celiac disease I take it.  


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#6 kareng

 
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Posted 13 October 2013 - 09:23 AM

I signed up to. It is free. I know a lot of the speakers do have products and books to sell, some good and some bad.

I think we need to remember that, just because someone calls the self a doctor, they aren't necessarily an MD. Also, research done by a company and not presented to other research peers to review and critique, may not be valid. Also, watch for a lot of odd logic or taking you in circles to get to " proof" of a theory or test.

One of these presenters has been "proving" their point in a way that will make you dizzy - them - A does x in your body. Me- how is that even possible? Them - it's not really A you are reacting to. It is the gluten added to A that your body is reacting to. Me - then A isn't doing what you just said it was! it's the gluten instead! Them - no, because that test wasn't valid. It was in a test tube. therefore A does x in the body.
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#7 GottaSki

 
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Posted 13 October 2013 - 04:30 PM

Should be interesting to see if there are discussions with a mix of these folks or simply each participant presenting their take.


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#8 Adalaide

 
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Posted 13 October 2013 - 05:57 PM

This does look interesting. There are at least a few people listed that I would pay actual real money to hear speak, and if someone is (or starts sounding like) a kook I can just stop listening. No one is going to force any of us to listen to every one of these "experts" but some of them are the best of the best and we would all benefit from hearing what they have to say.


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#9 GF Lover

 
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Posted 14 October 2013 - 01:34 AM

I saw that Dr. Daniel Amen is one of the presenters.  I have met him personally.  He is a crusader of the S.P.E.C.T. imaging process of the Brain.  I was fortunate to be a client at his Newport Beach, CA clinic.  I HIGHLY recommend watching his presentation.

 

Colleen


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HAVE A SUPER SHINY DAY

 

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"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

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#10 IrishHeart

 
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Posted 14 October 2013 - 05:49 AM

I saw that Dr. Daniel Amen is one of the presenters.  I have met him personally.  He is a crusader of the S.P.E.C.T. imaging process of the Brain.  I was fortunate to be a client at his Newport Beach, CA clinic.  I HIGHLY recommend watching his presentation.

 

Colleen

 

yes, he's one of the ones I hold with high regard. I read that he is

 

" the lead researcher on the world’s largest brain imaging and rehabilitation study on professional football players."

 

Marios Hadjivassiliou, MD

 

is one of the doctors who has linked gluten to neurological symptoms, particularly gluten ataxia.

It was by reading his PUB MED articles that I started to figure out what the heck was going on with me. 


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#11 GF Lover

 
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Posted 14 October 2013 - 12:36 PM

yes, he's one of the ones I hold with high regard. I read that he is

 

" the lead researcher on the world’s largest brain imaging and rehabilitation study on professional football players."

 

Marios Hadjivassiliou, MD

 

is one of the doctors who has linked gluten to neurological symptoms, particularly gluten ataxia.

It was by reading his PUB MED articles that I started to figure out what the heck was going on with me. 

Wow Irish, that is great.  I was at his clinic about 3 years ago.  They have extensive archived images of not only football players but every imaginable traumatic brain injury, mental health disorders, toxin effects, etc.  And yes, my brain scan is in there too :) 

 

He runs presentations on PBS regularly.  His wife Tana is also accomplished in the nutrition area and just released a book. 

 

Colleen


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HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

gingerbread-man-smiley-emoticon.gif


#12 IrishHeart

 
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Posted 19 October 2013 - 03:09 PM

ok... here is one of the presenters. I saw her in an infommercial today as I flipped through the channels.

 

Not sure what it has to do with celiac or medically necessary gluten free diet

 

http://thevirgindiet.com/

 

and out of curiosity, I looked up this guy Dave and found

 

The Financial Times described Dave as a “bio-hacker who takes self-quantification to the extreme of self-experimentation” after he upgraded his brain by 20 IQ points, lowered his biological age, and lost 100 lbs without using calorie-control or exercise.

 

 

 

HOLY SMOKES.


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 GottaSki

 
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Posted 19 October 2013 - 08:36 PM

and out of curiosity, I looked up this guy Dave and found

The Financial Times described Dave as a “bio-hacker who takes self-quantification to the extreme of self-experimentation” after he upgraded his brain by 20 IQ points, lowered his biological age, and lost 100 lbs without using calorie-control or exercise.

HOLY SMOKES.


Nice...we can get a scientific celiac update along with a map to the fountain of youth ;)
  • 1

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#14 IrishHeart

 
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Posted 20 October 2013 - 04:04 AM

Nice...we can get a scientific celiac update along with a map to the fountain of youth ;)

 

 

:lol: seriously, how do you "lower your biological age" exactly? 


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#15 kareng

 
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Posted 20 October 2013 - 05:18 AM

:lol: seriously, how do you "lower your biological age" exactly? 

 

 

I guess fake IDs can go both ways?


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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 





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