Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

What's The Gluten Summit?

Rucko

By Rucko
in Related Issues & Disorders

Recommended Posts

Rucko Apprentice
Rucko
Posted

Saw something about this Gluten Summit, here's the link:

 

Open Original Shared Link

 

There sure are some big names listed.  Anyone know about it?  Looks interesting.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I'm surprised at that line-up. Some real experts and some of the high profile quacks. Interesting.

Link to comment
Share on other sites
IrishHeart Veteran
IrishHeart
Posted

I counted  7 actual noted celiac specialists, authors and researchers.. I am stunned to see them there with these other "experts", but I guess they know what they are doing.

Maybe they are there to help create better understanding of celiac and the gluten spectrum.

I have a lot of respect for those doctors and Melinda Dennis.

 

I also see a bunch of people who think everyone has a gluten sensitivity ( and some who can diagnose you with it for lots of $$$$.!) --even though there is no such thing at this time as a "gluten sensitivity test"--according to celiac experts!

 

I see people with lots of letters after their names, but it does not make me believe they are celiac or gluten experts.I have read several of their books and was not impressed at all. 

This all IMHO, of course.

 

I even read a  press release where the people at GIG  are now touting Cyrex lab tests as "valid".

So, how can that be--when the celiac experts say they are not?

 

Save your bucks and go to the ICDS next year. 

 

Open Original Shared Link

 

Edited to say: I did not realize the summit was free. thanks, Karen for enlightening me.

Link to comment
Share on other sites
kareng Grand Master
kareng
Posted

I

Save your bucks and go to the ICDS next year.

Open Original Shared Link

Actually, the next ICDS is in 2 years in Prague and the one after that is in New Delhi. So save your money! The reps from Prague are doing a lot of planning! I noticed none of these self- proclaimed Internet experts presented at ICDS.
Link to comment
Share on other sites
Rucko Apprentice
Rucko
  • Author
Posted

Now that I read the advertising more carefully, it does say that it's the world's first summit like this so I guess it's new to all of us.  

 

I enrolled in it and so far it has cost nothing.  It say the event dates are Nov. 11 to 17, 2013 when several interviews will be on-line each day.  I have no experience with events like this, perhaps they'll be wanting to sell stuff by the end.

 

They say their goal is to "move the conversation about gluten-related disorders forward".  That seems reasonable enough.  It's not directed just at people with celiac disease I take it.  

Link to comment
Share on other sites
kareng Grand Master
kareng
Posted

I signed up to. It is free. I know a lot of the speakers do have products and books to sell, some good and some bad.

I think we need to remember that, just because someone calls the self a doctor, they aren't necessarily an MD. Also, research done by a company and not presented to other research peers to review and critique, may not be valid. Also, watch for a lot of odd logic or taking you in circles to get to " proof" of a theory or test.

One of these presenters has been "proving" their point in a way that will make you dizzy - them - A does x in your body. Me- how is that even possible? Them - it's not really A you are reacting to. It is the gluten added to A that your body is reacting to. Me - then A isn't doing what you just said it was! it's the gluten instead! Them - no, because that test wasn't valid. It was in a test tube. therefore A does x in the body.

Link to comment
Share on other sites
GottaSki Mentor
GottaSki
Posted

Should be interesting to see if there are discussions with a mix of these folks or simply each participant presenting their take.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

This does look interesting. There are at least a few people listed that I would pay actual real money to hear speak, and if someone is (or starts sounding like) a kook I can just stop listening. No one is going to force any of us to listen to every one of these "experts" but some of them are the best of the best and we would all benefit from hearing what they have to say.

Link to comment
Share on other sites
GF Lover Rising Star
GF Lover
Posted

I saw that Dr. Daniel Amen is one of the presenters.  I have met him personally.  He is a crusader of the S.P.E.C.T. imaging process of the Brain.  I was fortunate to be a client at his Newport Beach, CA clinic.  I HIGHLY recommend watching his presentation.

 

Colleen

Link to comment
Share on other sites
IrishHeart Veteran
IrishHeart
Posted

I saw that Dr. Daniel Amen is one of the presenters.  I have met him personally.  He is a crusader of the S.P.E.C.T. imaging process of the Brain.  I was fortunate to be a client at his Newport Beach, CA clinic.  I HIGHLY recommend watching his presentation.

 

Colleen

 

yes, he's one of the ones I hold with high regard. I read that he is

 

" the lead researcher on the world’s largest brain imaging and rehabilitation study on professional football players."

 

Open Original Shared Link

 

is one of the doctors who has linked gluten to neurological symptoms, particularly gluten ataxia.

It was by reading his PUB MED articles that I started to figure out what the heck was going on with me. 

Link to comment
Share on other sites
GF Lover Rising Star
GF Lover
Posted

yes, he's one of the ones I hold with high regard. I read that he is

 

" the lead researcher on the world’s largest brain imaging and rehabilitation study on professional football players."

 

Open Original Shared Link

 

is one of the doctors who has linked gluten to neurological symptoms, particularly gluten ataxia.

It was by reading his PUB MED articles that I started to figure out what the heck was going on with me. 

Wow Irish, that is great.  I was at his clinic about 3 years ago.  They have extensive archived images of not only football players but every imaginable traumatic brain injury, mental health disorders, toxin effects, etc.  And yes, my brain scan is in there too :) 

 

He runs presentations on PBS regularly.  His wife Tana is also accomplished in the nutrition area and just released a book. 

 

Colleen

Link to comment
Share on other sites
IrishHeart Veteran
IrishHeart
Posted

ok... here is one of the presenters. I saw her in an infommercial today as I flipped through the channels.

 

Not sure what it has to do with celiac or medically necessary gluten free diet

 

hOpen Original Shared Link

 

and out of curiosity, I looked up this guy Dave and found

 

The Financial Times described Dave as a “bio-hacker who takes self-quantification to the extreme of self-experimentation” after he upgraded his brain by 20 IQ points, lowered his biological age, and lost 100 lbs without using calorie-control or exercise.

 

 

 

HOLY SMOKES.

Link to comment
Share on other sites
GottaSki Mentor
GottaSki
Posted

and out of curiosity, I looked up this guy Dave and found

The Financial Times described Dave as a “bio-hacker who takes self-quantification to the extreme of self-experimentation” after he upgraded his brain by 20 IQ points, lowered his biological age, and lost 100 lbs without using calorie-control or exercise.

HOLY SMOKES.

Nice...we can get a scientific celiac update along with a map to the fountain of youth ;)

Link to comment
Share on other sites
IrishHeart Veteran
IrishHeart
Posted

Nice...we can get a scientific celiac update along with a map to the fountain of youth ;)

 

 

:lol: seriously, how do you "lower your biological age" exactly? 

Link to comment
Share on other sites
kareng Grand Master
kareng
Posted

:lol: seriously, how do you "lower your biological age" exactly? 

 

 

I guess fake IDs can go both ways?

Link to comment
Share on other sites
IrishHeart Veteran
IrishHeart
Posted

and furthermore, I lost nearly 100 lbs. without "calorie counting or exercise". It's called malabsorption.

 

He calls it "self-quantification"?

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748
    Grammar B
    Newest Member
    Grammar B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Waiting for urgent referral.

      By trents · Posted

      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      50 YO Male Recently Diagnosed with Celiac Disease

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Waiting for urgent referral.

      By cristiana · Posted

      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      Celiac Dietician

      By Denise I · Posted

      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      14 year old with Celiac & EOE still suffering...

      By Posterboy · Posted

      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...