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Just Cant Help Myself....


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35 replies to this topic

#1 Janey

 
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Posted 15 October 2013 - 04:48 AM

Hello everyone, I am not celiac but I am gluten wheat intolerant. I know that my condition is nowhere near as serious as anyone on here with Celiac, but I am still struggling with the whole gluten free diet thing...... I know what to do and how to do it BUT its almost like I'm self harming because any opportunity I get, I'm shovelling in the gluten filled foods faster that I can stop myself then go on a huge downer because ive been so stupid and end up feeling ill and unable to work... If I do continue to do this to myself what could happen to me? I know its pretty life threatening, or it can be, for a celiac to eat gluten but it cant be that bad for me? Right???


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#2 NoGlutenCooties

 
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Posted 15 October 2013 - 05:11 AM

Janey -

 

I was recently diagnosed with gluten intolerance and did not have any obvious symptoms - but it does run in my family.  Eating gluten when you have gluten intolerance has been scientifically linked to diabetes, thyroid problems, severe skin problems, certain kinds of cancer, hair loss, osteoperosis, and a long list of other ailments.  So yes, it really can be THAT bad for you.  Consider yourself very lucky that you don't have serious symptoms yet.  But if you continue to eat gluten, you're highly likely to develop serious symptoms over time.  If you're getting cravings for carbs, you may not be getting enough carbs in your diet - which you can do without eating gluten.  If you do a Google search for "gluten free carbs" you can find a lot of good alternatives.  Carbs also get converted to sugar quickly in your body, so you may be going through sugar-withdrawal more than gluten-withdrawal.

 

Good luck.


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Age: 42

Positive Bloodtest: Oct 1, 2013

Gluten-free since: Oct 2, 2013

Celiac confirmed by Biopsy: Oct 29, 2013


#3 kareng

 
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Posted 15 October 2013 - 05:30 AM


Eating gluten when you have gluten intolerance has been scientifically linked to diabetes, thyroid problems, severe skin problems, certain kinds of cancer, hair loss, osteoperosis, and a long list of other ailments. So yes, it really can be THAT bad for you. Consider yourself very lucky that you don't have serious symptoms yet. But if you continue to eat gluten, you're highly likely to develop serious symptoms over time.

Actually....all those are for people with Celiac Disease. The OP says she doesn't have celiac Disease. There isn't a lot of research on non- celiac Gluten Sensitivity. But, because it doesn't cause villi damage, at least some of those probably aren't problems from NCGS.


http://www.curecelia...d-wheat-allergy

http://www.curecelia...ten-sensitivity
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#4 w8in4dave

 
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Posted 15 October 2013 - 05:36 AM

I was wondering that myself..... Because most of the symptoms mentioned "Most" I have but I am Celiac. So I was wondering about that. 


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#5 mommy2krj

 
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Posted 15 October 2013 - 06:52 AM

Hello everyone, I am not celiac but I am gluten wheat intolerant. I know that my condition is nowhere near as serious as anyone on here with Celiac, but I am still struggling with the whole gluten free diet thing...... I know what to do and how to do it BUT its almost like I'm self harming because any opportunity I get, I'm shovelling in the gluten filled foods faster that I can stop myself then go on a huge downer because ive been so stupid and end up feeling ill and unable to work... If I do continue to do this to myself what could happen to me? I know its pretty life threatening, or it can be, for a celiac to eat gluten but it cant be that bad for me? Right???

I guess you just have to ask yourself if it's worth it. Is it worth it to you to eat the stuff with gluten in it and then get sick and miss work? Is it worth it to eat it and then feel terrible about yourself because you know you ate something that makes you sick?

Believe me, I understand. My youngest child was diagnosed with Celiac. My oldest son tested negative but he is most definitely intolerant at the very least. I went gluten free to help my 6 year old not feel so alone with this diet (actually, we made the whole house gluten free) and discovered that I feel better not eating gluten. It is hard though. The sticker shock alone is enough to do me in sometimes. I'm trying very hard to feed a family of 5 gluten free with two very picky teenagers. My teenage son has been pretty open but my oldest, well, she simply no longer eats much at home....which isn't good either since her diet now consists of McD's or Taco Bell. :(

Every once in a while I will get something that isn't gluten free. I don't have stomach issues from gluten, for the most part. Mainly it's the brain fog, migraines and joint pain. But I am finding that the longer it is between eating things with gluten in them...the worse they taste. But it does definitely take will power at first. That's why we replaced as much as we could at first with the packaged gluten-free stuff. Just to help transition. Didn't eat bread for quite a while. Now the gluten-free bread actually tastes pretty good, though the texture still isn't quite the same. I'm baking more stuff at home and we've definitely increased our veggie intake.

Hugs to you. It is a dramatic change in your life. Those are always hard. It will get easier. You just have to decide you don't want to feel sick anymore.


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#6 notme!

 
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Posted 15 October 2013 - 07:46 AM

Hello everyone, I am not celiac but I am gluten wheat intolerant. I know that my condition is nowhere near as serious as anyone on here with Celiac, but I am still struggling with the whole gluten free diet thing...... I know what to do and how to do it BUT its almost like I'm self harming because any opportunity I get, I'm shovelling in the gluten filled foods faster that I can stop myself then go on a huge downer because ive been so stupid and end up feeling ill and unable to work... If I do continue to do this to myself what could happen to me? I know its pretty life threatening, or it can be, for a celiac to eat gluten but it cant be that bad for me? Right???

would it make a difference if you were celiac?  meaning, would you be better at being strictly gluten free if you knew it was doing *permanent* damage?   how long have you been eating gluten free and have you actually gotten all of the gluten out of your system and felt dramatically better?  if you keep glutening yourself, you won't know what the 'reward' <feeling good!  like a normal human) feels like.  did your doctor say it was intolerance or allergy and is it just wheat or all gluten?  (what were you tested for?) 


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

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#7 answerseeker

 
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Posted 15 October 2013 - 08:00 AM

Well you won't get damage to your intestines, therefore you won't suffer the nutritional deficiencies and all that goes with celiac. However, like Karen said little research has been done on non celiac gluten sensitivity and who knows if it creates any inflammation. Chronic inflammation in the body is not good and can have consequences.
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#8 NoGlutenCooties

 
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Posted 15 October 2013 - 10:11 AM

Actually....all those are for people with Celiac Disease. The OP says she doesn't have celiac Disease. There isn't a lot of research on non- celiac Gluten Sensitivity. But, because it doesn't cause villi damage, at least some of those probably aren't problems from NCGS.


http://www.curecelia...d-wheat-allergy

http://www.curecelia...ten-sensitivity

 

Good point KarenG - I look at gluten intolerance/sensitivity as the precursor to Celiac Disease.  Similar to hypoglycemia being the precursor for diabetes.  If you nip the precursor, you don't get the next stage of the disease.  So as a gluten interant person, if you avoid gluten then you avoid the disorder evolving into the next stage - which is Celiac Disease - so you avoid the various disorders that can come with it.


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Age: 42

Positive Bloodtest: Oct 1, 2013

Gluten-free since: Oct 2, 2013

Celiac confirmed by Biopsy: Oct 29, 2013


#9 GF Lover

 
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Posted 15 October 2013 - 10:31 AM

Good point KarenG - I look at gluten intolerance/sensitivity as the precursor to Celiac Disease.  Similar to hypoglycemia being the precursor for diabetes.  If you nip the precursor, you don't get the next stage of the disease.  So as a gluten interant person, if you avoid gluten then you avoid the disorder evolving into the next stage - which is Celiac Disease - so you avoid the various disorders that can come with it.

Just to clarify.  Being intolerant to a food does not mean it is a precursor to Celiac, nor does it mean it will evolve to Celiac Disease.  Celiac Disease is an Autoimmune Condition.  Gluten Intolerance is not.

 

Colleen


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#10 Janey

 
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Posted 15 October 2013 - 11:18 AM

Thank you everyone, for the kick up the backside that I needed..... notme! I have been tested several times for celiac by my DR. I was positive, then I wasn't, was, and then finally wasn't!!!  My DR was very blasé about the whole thing to be honest and has now given up with me and put it down to IBS I was never told to continue eating gluten throughout my tests and only learnt this from forums that I joined so the whole process (in my eyes) was pretty hit and miss. I was seen by a specialist before I saw my DR and he said I did not have celiac but I was gluten/wheat intolerant. This was 3 years ago and my symptoms are getting more obvious and with more severe symptoms. I'm an idiot I know..... 


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#11 notme!

 
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Posted 15 October 2013 - 11:34 AM

ugh - sorry to hear about the whole doctor thing, then.  i wish testing was easier/more definitive...  i am constantly worried that people are not ruling out other conditions which have similar symptoms.   i am also 3 years gluten-free and my quality of life has gone up tremendously!  so, it's worth it to be uber careful :)  have you read the newbie 101 thread - lots of good info/tricks, etc that make resisting temptation and keeping your food safe.  once you have eliminated gluten completely (NO CHEATSIES) you should be able to notice improvement.  think of feeling good as your 'carrot on a stick'  <also carrots are gluten free, so there's that lolz probably the stick, too  :D  good luck!


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#12 Janey

 
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Posted 16 October 2013 - 01:47 AM

No, I haven't notme! I will have a look now thanks :0)
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#13 NoGlutenCooties

 
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Posted 16 October 2013 - 05:58 AM

Just to clarify.  Being intolerant to a food does not mean it is a precursor to Celiac, nor does it mean it will evolve to Celiac Disease.  Celiac Disease is an Autoimmune Condition.  Gluten Intolerance is not.

 

Colleen

 

Actually... it depends on which doctors and which research you believe.  Some believe the two are linked - others are waiting for confirming additional research.  No, having gluten sensivity does not mean that you are guaranteed to get Celiac Disease.  And some people get Celiac Disease without having any symptoms of gluten sensitivity first.  But there is evidence that if you continue to eat gluten even though you have a gluten sensivity, it can lead to Celiac. 


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Age: 42

Positive Bloodtest: Oct 1, 2013

Gluten-free since: Oct 2, 2013

Celiac confirmed by Biopsy: Oct 29, 2013


#14 GF Lover

 
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Posted 16 October 2013 - 06:06 AM

It would be great if you would post a link to the "evidence" research.

 

Colleen


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HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

gingerbread-man-smiley-emoticon.gif


#15 notme!

 
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Posted 16 October 2013 - 09:02 AM

No, I haven't notme! I will have a look now thanks :0)

it's on the 'coping with' section - i would post a link but i'm on my husband's notebook and i keep messing it up (lolz - this thing is lucky it hasn't hit the wall yet hahaha)  definitely worth the read, and probably many things doctors can't tell you because they don't know  :rolleyes: mine just told me 'congratulations.  you have celiac.  eat a gluten-free diet and GOOD LUCK'  i said how do i do that.................  'just don't eat gluten'  DAH !  and the last time i went to my gp, he told me he refers his patients to 'that celiac website'  if they want to know anything about gluten-free diet  <_< 


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator





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