Hi StephanieL and Shadowicewolf,
So here's the history -- my daughter has had rashes and hives for a number of years. She also had stomach aches, never seemed like much because she didn't complain a lot. All got A LOT worse the past year, then we got the Celiac diagnosis in April.
When she first started getting the rashes and hives, we went to pediatrician, who sent us to allergist. This first allergist tested with skin test and found her to be possibly allergic to walnuts -- not a high level of response -- plus some environmentals. We didn't test for very many allergens.
Our current GI felt we should follow up on the nuts. When my daughter ate peanut butter -- this was before the celiac diagnosis -- she got hives. Funny coincidence (not!) she was eating the peanut butter on regular bread.
So far all the "experts" we've seen seem to dismiss dermatitis herpetiformus. Like my daughter, I've had skin issues a lot in my life (my rashes look different from hers). These people don't want to give a DH diagnosis or seem unable to do so. I don't understand that at all!
My daughter hasn't eaten any peanuts or walnuts in at least a year, I think maybe longer. Now that we're off gluten and trying to gain weight, it would be super great to be able to give her foods with ALL nuts (she current eats almonds, pecans, and cashews, and I only give her the ones that are not processed with peanuts).....
I feel that it's not necessary to do more allergy tests. I think the blood test should be enough. However, I'm not an expert on this. I searched the internet a little and found nothing helpful on this topic.
I also feel that my daughter has had A LOT of tests since April, and I'd prefer to not do more right now....she's waiting for the results, can hardly wait to eat some peanut butter and some "KIND" brand snack bars....and I'm not sure she'll understand the need for a skin prick test.
I mean, I don't understand the need for this additional test, so how can I even explain it to her! (And part of me says the "need" is because testing is what these doctors do well!)
One thought I have is to re-introduce the nuts slowly and see if there's a skin reaction. We're currently on a dairy-free course of action, started it a few days ago and will soon start re-introducing dairy products, slowly one for 3 days, so I'm thinking maybe we should just wait a little longer on the nuts, and then re-introduce them the same way we're doing the dairy foods.
What do you think?
Me: various symptoms such as eczema throughout my life; HLA-DQ2 gene
Daughter: positive blood test and HLA-DQ2 gene; no biopsy. Gaining weight and grew taller since gluten-free; had been same weight for 2 years.
gluten-free since May 1
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