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#1 MommyOfTwinkies<3

 
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Posted 19 October 2013 - 10:05 AM

My 5 year old daughter was just recently diagnosed with celiac disease. I have already got new pans, silverware, cook wear, plastic containers, toaster & containers with lids. I am doing everything I know to do! Trying to read labels & shopping are really overwhelming this is only my 3rd day.. I need some help with her shampoo, conditioner, deodorant, lotion & toothpaste. She already has sensitive skin so I have always used the same brands however I was told by her DR. that I need to change them if they aren't gluten free. I cant find any information on the back of these products and the 800 #s have been NO HELP! If anyone can please help me and give me information about any of the products she uses I would be so grateful!This is what she is currently using, if there not gluten free can you please recommend some products for her for sensitive skin & scalp. :)

 

Lotion- Johnson & Johnson baby lotion (original scent in pink bottle)

Shampoo- Johnson & Johnson baby shampoo (original bottle)

Conditioner- Herbal Essences Hello Hydration (Blue Bottle)

Body wash- Dove Sensitive Skin ( unscented)

Tooth Paste- Crest Pro Health For Me (kids)

Deodorant- Degree (Sheer Powder)

 

Any Help or advice would be greatly appreciated! :)

 

Also do you have to switch laundry detergent & fabric softener??


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#2 kareng

 
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Posted 19 October 2013 - 10:11 AM

Your 5 year old uses deodorant? I wouldn't worry about that being gluten-free. Nor the detergent. Shampoo and options that can get in her mouth are a concern. Usually, a shampoo or lotion will list wheat germ oil or something like that.

I have never seen a toothpaste with gluten in have US.

Take a deep breathe. I don't know how you did all that on 3 days! It's OK to take a week or two to figure it out. Read the newbie thread for some basic info.

http://www.celiac.co...e-2#entry892339
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Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#3 MommyOfTwinkies<3

 
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Posted 19 October 2013 - 10:23 AM

Your 5 year old uses deodorant? I wouldn't worry about that being gluten-free. Nor the detergent. Shampoo and options that can get in her mouth are a concern. Usually, a shampoo or lotion will list wheat germ oil or something like that.

I have never seen a toothpaste with gluten in have US.

Take a deep breathe. I don't know how you did all that on 3 days! It's OK to take a week or two to figure it out. Read the newbie thread for some basic info.

http://www.celiac.co...e-2#entry892339

Yes my 5 year old uses deodorant ( both of my kids do) She is a very active little girl & plays sports (soccer season right now) so yes deodorant :) & Ive had a very busy 3 days.. I don't see anything on the back that says anything that I understand to be wheat :/


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#4 kareng

 
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Posted 19 October 2013 - 10:47 AM

Yes my 5 year old uses deodorant ( both of my kids do) She is a very active little girl & plays sports (soccer season right now) so yes deodorant :) & Ive had a very busy 3 days.. I don't see anything on the back that says anything that I understand to be wheat :/

Then it should be fine. And it's only a concern for things that get in your mouth - so shampoo or lotion might be, toothpaste ( never seen any that aren't gluten-free), lip balm ( a few have wheat germ oil listed ).

http://www.curecelia...smetic-products
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#5 MommyOfTwinkies<3

 
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Posted 19 October 2013 - 10:51 AM

How do I know for sure they are gluten free?? & Thanks for your replies. They are several toothpaste in (TX) that have gluten in them. My daughters GI specialist gave me a list of toothpaste that was gluten free & there was only 3 brands on them. But I was also told that the ingredients change often. Sorry for all of the questions! We only found out Thursday. She has had GI problems since she was born :(
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#6 Adalaide

 
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Posted 19 October 2013 - 10:53 AM

I have called J&J about lotions and soaps in the past and haven't been told of any (as of yet) that contain gluten. They're very helpful if you call them, just have the product at hand to read off the UPC to the person on the phone and they'll tell you if it is gluten free or not.

 

I'm not saying you need to change soaps, but if you do and are looking for something for sensitive skin Eucerin makes a calming body wash that is safe.

 

I'd also not worry about deodorant. Since it is celiac and not an allergy, the only concern is ingestion. Even if she were so inclined, she can't reasonably lick her armpits so it's a non-issue.


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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#7 kareng

 
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Posted 19 October 2013 - 10:57 AM

How do I know for sure they are gluten free?? & Thanks for your replies. They are several toothpaste in (TX) that have gluten in them. My daughters GI specialist gave me a list of toothpaste that was gluten free & there was only 3 brands on them. But I was also told that the ingredients change often. Sorry for all of the questions! We only found out Thursday. She has had GI problems since she was born :(


What toothpastes have gluten?
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#8 MommyOfTwinkies<3

 
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Posted 19 October 2013 - 10:59 AM

Thanks so much for your reply! & I have tried to call & had no luck. I will try again on Monday! So as long as she doesn't ingest it I should be fine. So i shouldn't need to change laundry detergent, fabric, softner or lotion? Thanks for all of yalls help! :)
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#9 MommyOfTwinkies<3

 
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Posted 19 October 2013 - 11:09 AM

Colgate, Crest & Aqua fresh we're the toothpaste approved by my daughters DR.
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#10 kareng

 
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Posted 19 October 2013 - 11:19 AM

Colgate, Crest & Aqua fresh we're the toothpaste approved by my daughters DR.

 

 

And she already uses Crest, so you don't have to change.  Many other toothpastes are gluten-free, too.  Those are the 3 major brands so its easy to choose something.

 

As for "approved by the doctor", you need to be careful of this.  Very few doctors have any idea what is in a product.  You should read the ingredients for yourself.  It sounds like they have made a list to make it easy for you by picking a few major brands.  That does not mean all the others have gluten.  It likely means that whoever made that list didn't check any other brands.


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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#11 Adalaide

 
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Posted 19 October 2013 - 11:24 AM

Nothing personal against your doctor, and he may be great... but as a general rule unless a doctor personally has celiac they tend to know about as much as the family dog about what is and isn't gluten free. (Maybe less.) Just because the doctor didn't tell you something is safe, doesn't mean it isn't. Doctors live in a world of medical stuff. The rest of us live in the real world and are accustomed to navigating the world and surviving just fine with celiac without the help of some doctor telling us what we can and can't have.

 

My only concern with lotion has ever been that I use lotions on my hands. I don't want to have to second guess myself or just flat out forget if I want a snack. EOS makes really great slip in the pocket lotions if she can tolerate them. I think they all have scents that not everyone may love. (They also have lip balms, less pocket friendly, since winter is coming and chapped lips may be a problem.)


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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#12 IrishHeart

 
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Posted 19 October 2013 - 11:25 AM

Colgate, Crest & Aqua fresh we're the toothpaste approved by my daughters DR.

 

Those are not the only G F toothpastes, however. I use Sensodyne, for example. Tom's of Maine is G F.The point is:

It's not a common ingredient in toothpaste, honest.

 

Don't get too crazy replacing things, ok?

 

Laundry detergent, things that you would not swallow --are of no concern.

I have never changed my laundry detergent, dish soap, bar soap or my shampoo and I am perfectly fine.

I guess if a child can get shampoo in her mouth, it is of concern, but she would have to drink gallons of it to be an issue.

But if it makes you feel better, avoid shampoos with the terms "hydrolyzed wheat protein"

and "wheat germ oil". 

 

Please, read what a celiac registered dietician has to say about all this before you start changing out things you do not need to.

 

http://glutenfreedie...uctsBlog.11.pdf


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 MommyOfTwinkies<3

 
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Posted 19 October 2013 - 11:25 AM

Is there a list of words besides "wheat" that I need to look for? Or where could i find a list. I have been reading all the labels on everything. Do i only buy food products that say gluten free?! Or can she have them if they list nothing about "wheat"? & can she still have all drinks? I am taking a class with a dietitian that specialise in celiac disease but that's not for another week.
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#14 IrishHeart

 
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Posted 19 October 2013 - 11:39 AM

Is there a list of words besides "wheat" that I need to look for? Or where could i find a list. I have been reading all the labels on everything. Do i only buy food products that say gluten free?! Or can she have them if they list nothing about "wheat"? & can she still have all drinks? I am taking a class with a dietitian that specialise in celiac disease but that's not for another week.

Read this:

 

http://www.webmd.com...urces-of-gluten

 

and please, read the Newbie 101 thread in the coping section.

 

Maybe you should get the book

 

Real Life with Celiac Disease by Melinda Dennis and Daniel Leffler.

 

and take a giant deep breath  because you are doing a good job, :) but you need to take one step at a time.


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#15 kareng

 
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Posted 19 October 2013 - 11:40 AM

You might find this helpful? I haven't read it but its from a reputable source.

http://www.curecelia...free-diet-ebook

In the US, wheat has to be labelled as an ingredient. You would also want to look for barley/ malt and, rarely, rye.

I don't know of any drinks that have gluten except for a malted milk shake or some of those " health" drinks with wheat grass or barley. Sodas, juices, milk, etc are fine. Some Celiacs have a hard time digesting milk for the first few months until they heal their intestines.

If she eats only products marked " gluten-free" she will miss a lot of foods like cheese, meat, fruits, etc. It is important that oatmeal or oatmeal as an ingredient, be labelled gluten-free. A weird twist in law that allows regular oatmeal to be contaminated with a significant amount of wheat without listing it.
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 





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