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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

One Study Said 60% Of Celiacs Are Not Healing Just With Diet.
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11 posts in this topic

This was posted by the administer recently.  http://scoopsandiego.com/online_features/hot_topics/going-gluten-free-may-not-be-enough-to-manage-celiac/article_05b9fda4-5aef-52d3-b32d-f9039af5dd4a.html

 

I guess there may be a lot of reasons for not healing .  This is a thread to see what your ideas are.  Also, do other studies find that 60% are not healing?

 

 

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There is no reference to back up that number so for all we know they pulled that 60% out of their you-know-whats. On top of that, it looks like nothing more than a sponsored story by a company that has been pushing the media very hard lately in an attempt to get more guinea pigs for their study so they can sell drugs to celiacs so they can get money. "News" about celiac doesn't come from drug pushers.

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Diana

Read the entire article. No references. That number came from where exactly?

scroll to the bottom of the "article"

It's an ad for people to be part of a drug research study.

It's not a fact that 60% of celiacs do not heal.

 

.

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I agree with Adalaide and Irish, not much there to back that up.  That being said, I wouldn't be surprised if about half of celiacs continue to have some problems after going gluten-free. If you've been damaging yourself with gluten for years, not everything will be repairable. I personally have made HUGE gains in my health since going gluten-free over a year ago but I still have lingering health issues... I just can't be sure if it is still from celiac or if it is some other autoimmune health problem (possibly kicked off by celiac disease) that is causing it all.  KWIM?

 

If I regain my full health, I'll be pleasantly surprised. I am pretty pleased with the improvements so far.  :)

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Furthermore, I find this type of article "alarmist" and inappropriate.

 

The articles come through the website --anything that is related to "gluten" and "celiac"

floating around out there is on a constant media loop. so to speak.

 

They run the gamut from blog articles to fluff pieces to book reviews to recipes to actual published medical literature.

 

Just because it was posted by admin, does not mean anyone endorses it or that someone has proofread it for accuracy..

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The article also says that as long as you wash the gluteny stuff off the cutting board, you shouldn't get glutened... and I think we all know that unless it's one of those glass ones, then a shared cutting board (for example) could be causing low-level cc no matter how well you wash it

So their idea isn't that even if you take every precaution possible (completely gluten-free household, no eating out, etc) you might still have symptoms from long term consequences of damage, rather than damaging yourself more through CC.

As much as something that prevents mild cc symptoms would be nice, it's probably going to have a huge $$ on the bottle.

 

Yeah, the 60% seems to have come straight out of the air.

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There are some studies that say that about 60% do not entirely heal.  But we should read the actual studies before panicking &  to see things like:

 

- compliance to the diet

- were they actually biopsied or just going on anecdotal  reports of stomach aches. gas, etc which may be caused by other things

- what was actually considered continued damage

- probably some other things I haven't thought of.

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Should have added that the article didn't give a time frame, did it?  It may be referring to this study.  After 5 years 85% were healed. 

 

http://celiacdisease.about.com/gi/o.htm?zi=1/XJ&zTi=1&sdn=celiacdisease&cdn=health&tm=213&gps=105_6_1366_627&f=11&su=p284.13.342.ip_&tt=12&bt=6&bts=72&zu=http%3A//www.ncbi.nlm.nih.gov/pubmed/12219789

 

"Of patients with Marsh IIIA, IIIB, or IIIC lesions, histologic remission was seen in 65.0% within 2 years, 85.3% within 5 years, and 89.9% in long-term follow-up"

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This was posted by the administer recently.  http://scoopsandiego.com/online_features/hot_topics/going-gluten-free-may-not-be-enough-to-manage-celiac/article_05b9fda4-5aef-52d3-b32d-f9039af5dd4a.html

 

I guess there may be a lot of reasons for not healing .  This is a thread to see what your ideas are.  Also, do other studies find that 60% are not healing?

 

Hi Diana,

 

To answer your question, I think sometimes people don't heal quickly because they are experiencing damage from other food intolerances, or they are not really as gluten-free as they think they are.  Especially for beginners, it seems to take a while to get used to avoiding gluten.

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Just one point to add... it also depends on how healthy the person ate before and after going gluten free.  Simply being gluten free does not equate to healthy.  If the person ate like crap before the diagnosis then their body is likely to be weaker and more depleted and therefore take longer to heal.  And if the person continues to eat like crap after going gluten free then it will take them a long time to heal - if they ever really do.  Unfortunately, many people do not know how to eat healthy, nor do they understand the importance of it.

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I wonder if they were referencing the same study as the Celiac Disease Center is for their 60% number:

http://www.cureceliacdisease.org/medical-professionals/guide/treatment

 

Unfortunately, the celiac center doesn't reference the research specifically, either. But the research center makes more mention of the fact that diet compliance can affect the results.

 

The study results seem to vary, otherwise. I wonder if they are more consistent when you look at them by area, perhaps? Some differences in brands or gluten free food laws that might affect the patients' food? Or maybe better patient education and support?

 

I know the study Kareng mentions is from the Netherlands, but a study in Italy and in the USA had different results. It seems weird that the results would be so different without something else going on that is maybe not being taken into account by the researchers, you know? :-/

 

http://www.ncbi.nlm.nih.gov/pubmed/20145607

http://www.ncbi.nlm.nih.gov/pubmed/19302264

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