Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Long Till He Starts To Feel Better? (Anemia Goes Away, Etc.)
0

13 posts in this topic

Hi,

 

My 4 year old son was just diagnosed with celiac disease. We had blood work done twice, endoscopy with biopsy, etc. He has been on a strict gluten free diet for about a week. He is very anemic, has had very slow growth the last 2 years, has the typical "pot belly", etc.  His stomach aches have already stopped...but I was curious when the anemia, pot belly, and growth, etc. might start to resolve. What was your experience?

 

Thanks so much.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi,

 

My 4 year old son was just diagnosed with celiac disease. We had blood work done twice, endoscopy with biopsy, etc. He has been on a strict gluten free diet for about a week. He is very anemic, has had very slow growth the last 2 years, has the typical "pot belly", etc.  His stomach aches have already stopped...but I was curious when the anemia, pot belly, and growth, etc. might start to resolve. What was your experience?

 

Thanks so much.

It can take a while. A few months to maybe a year or so.

0

Share this post


Link to post
Share on other sites

It took me about six months to stop being anemic and I was taking iron supplements.  Has the doctor suggested iron?  Has he been tested for other vitamin and mineral deficiencies?  

0

Share this post


Link to post
Share on other sites

Yes - the doctor has him on an iron supplement - adult dose.He is also taking a multivitamin. I just was curious -  as I know it takes time for the gut to heal for him to even be able to absorb his nutrients/vitamins/iron. I was hoping he would start to feel better in weeks vs months.  :/  But I understand this may be a long process.

0

Share this post


Link to post
Share on other sites

Welcome Lynn!

Your son may feel better within weeks rather than months. Young kids tend to improve quickly once all gluten is removed. Learn all you can about how to keep him gluten-free and preventing cross-contamination. Take a look at the "newbie 101" thread:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

It will take some time to correct nutritional deficiencies, but you will likely see symptom improvement in the coming weeks.

Hang in there Mom!

0

Share this post


Link to post
Share on other sites




Thank you so much!  We are trying to be strictly gluten free but there is def. a learning curve. I didn't realize his gummy flint stone vitamins had it....so I replaced those last weekend....and then today he got a nibble off another child's cracker at school. He is still learning too - that he can't take bites off other people's food they offer, the snack table, can't have foods he used to have, etc. It's just so hard - as you want them to heal ASAP but there is this long learning curve too! We have removed all items with gluten in our house....but have to replace the toaster this weekend. 

 

I'm so happy we found out what was making him ill...and making the change to gluten free wasn't too hard (as I already cook/don't' eat out much, etc.) but the lifestyle change for him is hard. I've bought children's books about being gluten free, etc. to try to help him understand...but he just turned 4 last month...so the truth is the maturity of remembering not to eat other food without asking mommy first or given to him by the teacher (for snack) is tough.

 

I just can't wait for him to feel better. My stomach just drops every time I find out he's been glutened a little bit either because I made a mistake or he did (learning curve). I know it just slows the healing down. Frustrating.

 

 

Welcome Lynn!

Your son may feel better within weeks rather than months. Young kids tend to improve quickly once all gluten is removed. Learn all you can about how to keep him gluten-free and preventing cross-contamination. Take a look at the "newbie 101" thread:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

It will take some time to correct nutritional deficiencies, but you will likely see symptom improvement in the coming weeks.

Hang in there Mom!

0

Share this post


Link to post
Share on other sites

It is indeed frustrating! I can tell you it gets better with time. For now try not to be too hard on yourself --- mistakes will happen, but they will become fewer and farther between as time goes on.

Often the reactions to small amounts of gluten become worse...which is no fun, but does help to reinforce the need to be completely gluten-free ... 4 year olds learn very quickly...he'll become a more confident celiac...again with time.

Sounds like you are off to a great start...keep up the great work and let us know if we can help :)

0

Share this post


Link to post
Share on other sites

PS....if you are going gluten free with him you should have a complete celiac antibody panel before removing gluten as celiac disease is genetic.

0

Share this post


Link to post
Share on other sites

PS....if you are going gluten free with him you should have a complete celiac antibody panel before removing gluten as celiac disease is genetic.

 

Yes - I was going to talk to my childrens pediatrician about this (or gastro) as he has a 2.5 year old sister. She isn't showing any signs like he was even at that age (looking back now - pot belly, loose poop issues, etc.) but I worry about it as the house is gluten free now. She is getting gluten containing snacks at school though...so I think I can get her tested anyway. My husband was diagnosed with IBS 10 years ago. They tested him for celiac at the time and he came back "borderline" on the blood results. They told him he could try a gluten free trial to see if it helped...he did for a short stint and said it didn't....so that was that and he just took the IBS diagnosis and moved on. But - now that our child has been positivly diagnosed...I'm thinking he should consider being retested.

0

Share this post


Link to post
Share on other sites

Yes - I was going to talk to my childrens pediatrician about this (or gastro) as he has a 2.5 year old sister. She isn't showing any signs like he was even at that age (looking back now - pot belly, loose poop issues, etc.) but I worry about it as the house is gluten free now. She is getting gluten containing snacks at school though...so I think I can get her tested anyway. My husband was diagnosed with IBS 10 years ago. They tested him for celiac at the time and he came back "borderline" on the blood results. They told him he could try a gluten free trial to see if it helped...he did for a short stint and said it didn't....so that was that and he just took the IBS diagnosis and moved on. But - now that our child has been positivly diagnosed...I'm thinking he should consider being retested.

I agree....once gluten is reduced significantly it can affect the antibody tests. If everyone feels better gluten-free - great - except you lose this data and may need to perform a gluten challenge if a diagnosis is needed in the future - which can be extremely difficult.

I'd vote for complete antibody panels all around. Your primary can order these tests.

0

Share this post


Link to post
Share on other sites

It sounds like you're doing a great job! My daughter (11) also had mild anemia, osteoporosis and slow growth. It's been 6-1/2 months since she was diagnosed, and her tTG went from 99 down to 6, her anemia is gone, and she grew 1-1/2 inches and gained 7 pounds! She also has so much more energy and we saw that difference within the first month. I've definitely read that kids heal faster, and I asked the Peds GI at our 6 month check-up if her low tTG meant that her small intestines are healed. He said yes. So keep up the good work and I bet you start noticing big changes in him soon!

 

(As a side note, the bone density doesn't respond as quickly, but hopefully at 4 that isn't too much of an issue for him. She had her first 2 fractures - in the same arm at the same time - at age 3-1/2 - so we definitely trace her Celiac back to a 3 week bout of diarrhea when she was about 6 months old.)

0

Share this post


Link to post
Share on other sites

It sounds like you're doing a great job! My daughter (11) also had mild anemia, osteoporosis and slow growth. It's been 6-1/2 months since she was diagnosed, and her tTG went from 99 down to 6, her anemia is gone, and she grew 1-1/2 inches and gained 7 pounds! She also has so much more energy and we saw that difference within the first month. I've definitely read that kids heal faster, and I asked the Peds GI at our 6 month check-up if her low tTG meant that her small intestines are healed. He said yes. So keep up the good work and I bet you start noticing big changes in him soon!

 

(As a side note, the bone density doesn't respond as quickly, but hopefully at 4 that isn't too much of an issue for him. She had her first 2 fractures - in the same arm at the same time - at age 3-1/2 - so we definitely trace her Celiac back to a 3 week bout of diarrhea when she was about 6 months old.)

That's great news!  I'm so happy for your daughter!  Good job, Mom!

0

Share this post


Link to post
Share on other sites

Good news! We went for his 2 week followup with the gastro (from last visit when he had the endoscopy)...and he's gained 4lbs! Still stomach distension (belly) but she thinks as he heals up and there is more food being absorbed the  belly will decrease! Wants to rerun blood work in 3 months to verify anemia has resolved and other numbers have normalized.

 

He is eating like a horse lately....I guess because the stomach aches are gone...so I'm not surprised he put on some weight - but 4lbs! sheesh!  :o)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,579
  • Topics

  • Posts

    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
    • Sigh. I totally do love the packs of stretch pants at Costco though...
    • hey, i'm vegetarian and gluten free as well
      have you tried making any recipes with cashew nuts like cashew cheese or pasta sauce? they're really good, easy to make and an excellent way to get more protein/iron
      i can send you some of the easy recipes if you like  
    • Right, fistulas or fissures are usually associated with Crohns, but not celiac.  It is not impossible to have both conditions though.
    • Bravo for being strong enough to bring this topic up.  Depression, anxiety, and other mental or neurological issues are common in celiacs and those with NCGI.  Science is finally catching up to what many of us have already known to be true.   http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ I have suffered from anxiety and still have some neuropathies.  At first I blamed menopause (that alone can make you crazy), but my symptoms tend kick in after a Gluten exposure and improve as I heal.   You are not crazy!  Gluten can cause so many problems.  What other disease requires that the patient be in charge of "medicating" and caring for themselves?  Most of us after a diagnosis get a "Well, just avoid gluten.  Lucky you that there are so many restaurants that offer a gluten free menu!", speech from our doctors.  We never get time off from thinking about food, our next meal and will it be safe?  Our relationship with food changes dramatically and it can be exhausting.   We do need more resources and support from medical, but for now, at least this forum is helpful!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined