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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Please, Please, Please - Tell Me I Don't Have It :)
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3 posts in this topic

My GI tested me for celiac and the results have been trickling in (I am able to access them online). The first round of blood work came in and he sent me back for more.  Here are the results of both, and I'd appreciate any input (first number is the range, last number is my result). 

 

TISSUE TRANSGLUTAMINASE AB IGA <4 U/mL

<1

GLIADIN/GLUTEN IGA AB <20 units 5 IMMUNOGLOBULIN A 81 - 463 mg/dL 58 TISSUE TRANSGLUTAMINASE ANTIBODY IGG <6 U/mL 4 GLIADIN/GLUTEN IGG AB <20 units 4 IMMUNOGLOBULIN M 48 - 271 mg/dL 33 IMMUNOGLOBULIN G 694 - 1618 mg/dL 589

 

I will be following up with my doctor, but wanted to glean some information in the meantime.Thanks in advance, googling these the past couple of days has made my head spin.

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The Immunoglobulin A and G tests are done to be sure you have enough IgA or IgG for the celiac antibody tests to be accurate. You seem to be deficient in both which means your celiac antibody tests that are in normal range could be incorrect.

This does not mean you have celiac disease - just that more investigation is needed.

I know it is very frustrating, but your next step is to speak with your doctor.

Don't remove gluten from your diet until you are certain testing is complete.

Hang in there...if anxious try to see if your appt can be moved up....Dr. google can be very helpful but not when you are unclear on what to research.

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Your tTG and AGA tests look negative. Was that Anti-gliadin Antibody tests (AGA IgA and AGA IgG) or the deaminated gliadin peptides (DGP IgA and DGP IgG) tests that were run?  The DGP tests are newer and considered very good... the AGA tests, well... not so much.

 

This report has some good info on testing on pages 10-12: http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

Good luck! I know the waiting is horrible... try not to go too crazy. ;)

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