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Please, Please, Please - Tell Me I Don't Have It :)


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#1 Darzmr

 
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Posted 23 October 2013 - 12:55 PM

My GI tested me for celiac and the results have been trickling in (I am able to access them online). The first round of blood work came in and he sent me back for more.  Here are the results of both, and I'd appreciate any input (first number is the range, last number is my result). 

 

TISSUE TRANSGLUTAMINASE AB IGA <4 U/mL

<1

GLIADIN/GLUTEN IGA AB <20 units 5 IMMUNOGLOBULIN A 81 - 463 mg/dL 58 TISSUE TRANSGLUTAMINASE ANTIBODY IGG <6 U/mL 4 GLIADIN/GLUTEN IGG AB <20 units 4 IMMUNOGLOBULIN M 48 - 271 mg/dL 33 IMMUNOGLOBULIN G 694 - 1618 mg/dL 589

 

I will be following up with my doctor, but wanted to glean some information in the meantime.Thanks in advance, googling these the past couple of days has made my head spin.


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#2 GottaSki

 
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Posted 23 October 2013 - 01:49 PM

The Immunoglobulin A and G tests are done to be sure you have enough IgA or IgG for the celiac antibody tests to be accurate. You seem to be deficient in both which means your celiac antibody tests that are in normal range could be incorrect.

This does not mean you have celiac disease - just that more investigation is needed.

I know it is very frustrating, but your next step is to speak with your doctor.

Don't remove gluten from your diet until you are certain testing is complete.

Hang in there...if anxious try to see if your appt can be moved up....Dr. google can be very helpful but not when you are unclear on what to research.
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#3 nvsmom

 
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Posted 23 October 2013 - 07:04 PM

Your tTG and AGA tests look negative. Was that Anti-gliadin Antibody tests (AGA IgA and AGA IgG) or the deaminated gliadin peptides (DGP IgA and DGP IgG) tests that were run?  The DGP tests are newer and considered very good... the AGA tests, well... not so much.

 

This report has some good info on testing on pages 10-12: http://www.worldgast..._long_FINAL.pdf

 

Good luck! I know the waiting is horrible... try not to go too crazy. ;)


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