Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Got Glutened...ugh
0

6 posts in this topic

I let a friend cook an extravagant dinner for a group, she knows I have celiac...but something slipped in there obviously.  This was LAST Sunday...as in, the 13th.  It took a few days before I knew what was going on...but then it hit me, and hit me hard.  And still is.  I've been gluten-free for over a year now...this has to be my biggest unknown slip-up, and I'm miserable!  My stomach is making noises it never should.  Food is literally running out of me.  It's been almost 2 weeks...anything I can do to ease the "pain"??  I thought it would be out of my system by now!  Dang food anyway...

0

Share this post


Link to post
Share on other sites


Ads by Google:

I've had a similar experience recently and the only thing that helped me was gluten and wheat free slippery elm (in capsule form). Hope this helps. Good luck. Hope you feel better soon.

0

Share this post


Link to post
Share on other sites

i am right there with you - not last saturday, but the saturday before we went out of town and one of the places we ate at (yeah, i broke my own rules - sick of hearing 'we're hungry, where should we eat" so i did the 'find me gluten-free' app (which is actually pretty good on the phone - i thought it was better than the website) and let them pick some places - MISTAAAKKE!)  evidently glutened me.  i am just starting to feel a little better today  :(  this thing is soooo miserable.  my digestive issues weren't as bad as the neuro ones this time.  i am going to take that as i am doing pretty good with healing after 3 years lolz - but - i thought it might go away sooner(it's 14 days for me)  but i am still dragging and staying pretty close to the bathroom :( and bed :( 

 

hard to believe i used to feel like this (or worse!) all the time...  wait it out, be gentle on your insides as far as foods, drink water, for me,. hot showers maybe, i guess mostly time.  feel better soon!  :)

0

Share this post


Link to post
Share on other sites

When I have been hit, I double the probiotics for a week  (dose in morning, dose at bedtime) and it knocks down the inflammation

and I drink a lot of water. Take it slow, rest. It's all we can do.

 

Time heals.

 

I eat mostly carby stuff (I know, fattening) but toast with jam  just makes me feel better and then, just ride it out.

 

Sorry, hunny ((HUGS))

0

Share this post


Link to post
Share on other sites

Thanks for all the good advice, and support!  I know we all try hard to be super careful...but sometimes it happens!  I really need to get back on a good probiotic...I used to take it religously, but have slacked lately.  Hadn't heard of the slippery elm...I'll look into that too!  I am just sick of having to run to the bathroom 100 times a day...gets old!! :angry:

0

Share this post


Link to post
Share on other sites




I've heard papaya extract (papayne sp?) can be helpful but I think after two weeks, it wouldn't do much.  :(

 

L-glutamine is helpful in healing muscular linings (ie. the intestines). That might be one to try. It's usually in health food stores.

 

I hope you turn a corner this weekend.  (hugs)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,503
  • Topics

  • Posts

    • I already did. Thats how i found the place. Its amazing to actually go to a restraunt again.
    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,417
    • Most Online
      1,763

    Newest Member
    Suzette Porter
    Joined