Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Treating Celiac Related Anemia While Taking A Ppi - Prevacid


HavaneseMom

Recommended Posts

HavaneseMom Explorer

Hi Everyone,

 

I am wondering if anyone has had success treating their Celiac related Iron Deficiency Anemia while taking a Proton Pump Inhibitor such as Prilosec or Prevacid?

 

I am currently taking Prevacid for GERD and have been taking various PPI's for about 3 years now. I was just recently diagnosed with Celiac Disease and am hoping that as my body begins to heal that I will be able to stop taking PPI's completely, but I have only been gluten free for a few weeks and still have lots of GERD issues.

 

I also have moderate anemia and my doctor has recommended that I take either 325 mg of iron, or 65 mg of elemental iron, three times a day. Everything I have read says that PPI's reduce stomach acid and inhibit absorption of iron. My doctor kind of blew me off when I asked him about this and said we could test in a few months to see if I am absorbing the iron. I am wondering if iron supplements will even work in correcting the anemia while I am taking the PPI? I would dive right in and start taking them, but when I have taken iron supplements in the past it has made me very nauseous along with constipation. I'm not sure if I should put my body through taking such high doses of iron if it won't be absorbed anyway?

 

If anyone here has any experience with the situation I would so appreciate any advice or suggestions. The fatigue and brain fog the anemia is causing me is pretty extreme and I want to work at correcting it as quickly as possible.

 

For reference my iron blood test numbers are:

Ferritin: 2 , Iron: 11 , Iron Binding Capacity: 466 , Iron Saturation: 2 , Hemoglobin: 9.2 , Hematocrit: 30.7

They are all out of ideal range, but I don't think they are bad enough for IV iron.

 

Thanks in advance!

 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I had iron deficiency anemia.  My last ferritin check came back at 55 (started at 2).  Anemia was how I was diagnosed back at the end of March 2013 for celiac disease  My doc recommended iron taken twice a day.  I took a cautious approach.  I took nothing -- no supplements for a month.  Then I added in the iron taking only one a day with Vit. C at night prior to going to bed and started all the other supplements recommended on this forum for the various deficiencies I had.  That's it.  After another month I haphazardly began taking two (65 mg.) a day.  I'd reduce my dosage if I felt that it was causing constipation.  

 

I'm doing great now.  Back to running after a fractured vertebrae in June doing nothing!  (Get a bone scan!)  My hemoglobin is the best it's ever been (I also have Thalassemia another anemia that does not respond to iron).  I declined several blood transfusions by several doctors.  I decided to be patient.

 

Hopefully, you'll feel more relief in a few weeks and will be able to get off the GERD meds.  

 

Welcome to the board!

 

 

 

Think about slowly adding iron.  You won't absorb all, but at least a little.   Iron is a cheap supplement (esp. at Costco).  Add into your gluten-free diet, iron rich foods (like molasses, I ate it by the spoonful) and cook in cast iron.

Link to comment
Share on other sites
HavaneseMom Explorer

I had iron deficiency anemia.  My last ferritin check came back at 55 (started at 2).  Anemia was how I was diagnosed back at the end of March 2013 for celiac disease  My doc recommended iron taken twice a day.  I took a cautious approach.  I took nothing -- no supplements for a month.  Then I added in the iron taking only one a day with Vit. C at night prior to going to bed and started all the other supplements recommended on this forum for the various deficiencies I had.  That's it.  After another month I haphazardly began taking two (65 mg.) a day.  I'd reduce my dosage if I felt that it was causing constipation.  

 

I'm doing great now.  Back to running after a fractured vertebrae in June doing nothing!  (Get a bone scan!)  My hemoglobin is the best it's ever been (I also have Thalassemia another anemia that does not respond to iron).  I declined several blood transfusions by several doctors.  I decided to be patient.

 

Hopefully, you'll feel more relief in a few weeks and will be able to get off the GERD meds.  

 

Welcome to the board!

 

 

 

Think about slowly adding iron.  You won't absorb all, but at least a little.   Iron is a cheap supplement (esp. at Costco).  Add into your gluten-free diet, iron rich foods (like molasses, I ate it by the spoonful) and cook in cast iron.

Thank you for the great advice cyclinglady!

My anemia was what led to my Celiac diagnosis also. I am more comfortable taking the cautious approach you suggested - and I will try to be patient too. I have been so tired for so long that I want to see instant results, but it sounds like that is not realistic.

I am glad to hear you are doing so great! It is very encouraging. I actually have a Bone Density Scan scheduled for tomorrow. My Vitamin D level came back at 19, so I guess they want to look in to that too. Hopefully all will go well.

I will try the molasses and cast iron too. 

Thanks Again!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,094
    • Most Online (within 30 mins)
      7,748

    Tracym
    Newest Member
    Tracym
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...