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Thank You For This Site

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Good afternoon! I have been a creeper on this site since June, and just had to join.  I'll hopefully keep this post shorter, but also introduce myself and give some of my background.


I am a stay at home mom with two children, run a small daycare in my home and also have a part time job as a bookkeeper.  I live in Canada, and have a mini zoo in my home.  As a child I always wanted to 'save' every animal I found, and now that Im the grown up I get too... and major bonus is my husband supports it :)


What brought me here?

I had my first born, and from the moment he was born both of us were going through medical issues. I knew the second he was placed on my chest that there was something wrong.  But it was chalked up to be being a young parent and hormonal. At the age of 5 months my son had already been in the hospital 3 times, and we found out that he was anaphylactic to dairy (I supplemented with formula). This is were my journey with learning everything there was to know about food began. My son has major food allergies, but as he has gotten older he has been reintroduced to many foods that he can now have.  At his worse, he had to be a vegan who was also allergic to a handful of fruits a couple of veggies and nuts.  It was a crazy time, and felt like the biggest elimination diet ever (this lasted for 18 mths) He is able to eat almost everything now, except he is anaphylactic to dairy (all derivatives), peanuts and tree nuts, and all types of seafood.  He's 9 yrs old now


Now about me, since I had my first born I started feeling ill all the time. I had to run to the bathroom, what felt like every time I ate. I started suffering from horrible migraines, and restless nights. I felt tired all the time.  I had gone to the doctor many times about my issues, brought it up at every physical.  I had gone for blood work, and everything came back normal.  After 4 yrs of my complaining they set me up an appt for a colonoscopy.  I couldnt make that appt due to the fact I found out I was pregnant with my second child.  I prayed that my issues would correct themselves with this pregnancy.  They did not.  They got worse.  I had to start seeing a neurologist for my migraines, as I was getting them in clusters.  My stomach issues got worse, so I was set for a full panel of allergy tests.  Everything came normal except a few things. I was in horrible pain all the time, and never had energy to do anything. I started having joint issue's, and got sent for xrays to see if I had arthritis. I also got sent to a dermatologist because I starting suffering from psoriasis. My goodness, I felt broken.  Then in the beginning of this year I had had enough!  I chose to do a total elimination diet for myself.  I started feeling better after a few months, my skin started clearing up and my migraines even got better.  After a doctors appt I had in May, I told her what I had been doing.  She sent me for more blood work (first time that she had check for gluten screen).  I got a call the next week from a GI doctor asking me to come in.  I met with him at the end of May, and give my medical history he was very surprised that I hadn't been referred to him years ago.  He told me to go back to eating what I was when I was ill, and that I'd have an endoscopy done. 

Boy oh boy, I did not realize what I was getting myself into.  My endoscopy was booked for Aug 29, so needless to say I had the worse summer ever.  I was so sick, all the time.  I had to go for more blood work 2 weeks before the test and it came back with low B12.  I had the biopsy done and he suggested right after the procedure I go on a gluten free diet asap. I was told that I would get a call once the test results came back.  (during the summer months I started really looking into things, and that is how I found this site)

I had my appt with the GI doctor two weeks ago and got the diagnose of celiac disease.  He said that he was pretty shocked to see the amount of bluntness to the villi considering I was gluten free for some time before we had even met.  So, I am gluten free 100%.  Ive changed hair and makeup products and have already started seeing a change in my skin. 

It's been a long road, and I'm sure it'll still be a bit longer as I'm gonna need time to heal.  Both my children have been requested to go for blood work to check them, and their B12 levels by their paediatrician. I'll be bringing them next week.  The doctor is a tad worried about my daughter, she's almost 4, as since she was 7 mths old she has had constipation issue's, and has already gone for a barium enema. My son has been screened before, but the doctor would like to do it again. Do to his medical history, and he is also anaemic.

So... ya... that was my "short" post on introducing myself.

Thank for reading!!


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Welcome to the board!  Sounds like quite a road you have traveled.  This has been a real helpful place for me and wrote my thank you earlier this month, actually.  Way to take control of your health!


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I am thankful for your definitive results.  I hope the same for your children


You have an incredible story and I hope one day you will produce a happy ending for it.




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Welcome,  I'm so glad you decided to share your story.  Like so many of us here, it has been a long hard road.  Now you, and  soon your family, can start some real healing and feel some control about your health.  I'm so happy for you :D




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    • My Celiac symptoms always flare after vaccinations.  I've been gluten free for 6 1/2 years.  I find the vaccine benefit to outweigh the temporary rise in symptoms--even though it is quite annoying. Since you've been gluten free for about a year, it's very likely you need more time to heal.  Just stick with it as best you can .  Keep getting flu shots! I think it's best to think of Celiac as a lifelong "trait" (like having red hair, for example) rather than something you can "fix". You will be OK.  Keep eating simple, healthful foods to help your body heal.  Good luck!    
    • Hello, I've had a pretty rough ride health-wise over the past year due to Coeliac. I posted a few months ago explaining my story: I've seen small, incremental improvements over the past few months (headaches starting to ease, more stomach 'rumbling' instead of just an uncomfortable bloated/full feeling etc.) and have just started back at university which I'm pleased about.  However, progress is painfully slow and I was hoping to have seen more concrete improvements by now. My stomach also seems to affected by the tiniest thing (i.e. I took some ibuprofen and it upset my stomach for a week or so). Is this normal? Any advice/reassurance from others who still had fairly severe symptoms after 6-8 months gluten free would be really helpful. It can be quite tough both physically and mentally sometimes and the 'light at the end of the tunnel' can seem a long way off.   In addition, I had a flu vaccination around a month ago and since then, have had quite bad GI symptoms, headaches and fatigue which seem to occur in 'flares' of a few days before settling and then starting up again a few days later. I think they're beginning to settle down a little more now but just wondered if it's possible that the flu jab could have had this effect due to the severity of my symptoms and sensitivity of my 'system'/stomach post-diagnosis?  I stick to very similar foods on a daily basis because I'm only able to tolerate a bland diet, so I can't put my finger on anything food-related that could be causing this and I'm very careful to avoid gluten and cross-contamination etc (I live at home and prepare meals myself, I don't eat out at the moment and have been 'glutened' once and these symptoms are quite different to that). Has anyone else in the earlier stages of recovery had reactions to vaccinations? Thanks everyone for your support.  
    • It really can be anywhere or any random source, Few tips, as mentioned eat whole foods only nothing processed, Use Freezer paper on your prep surfaces to fix your foods, perhaps gloves in case your touching something else (door to fridge, pantry, computer keyboard, etc) that might have trace gluten residue. Have dedicated gluten-free cooking utensils, pots, and pans. Check your soaps, shampoos, make up and other hygiene products, these might also contain gluten that could be cross contaminating.  I personally had this exact issue and broke down sold everything I had and started new in a new apartment, new appliances, new everything since I was getting sick at least twice a week and could not hold a job. I will link you to the list of gluten ingredients to look out for. Hopefully you can find the cause and not have to go as radical as I did to get relief. It might be something as simple as a spice, or a random product in you house.
    • Thanks for your replies...!  Thanks for all the tips, I am indeed on a caveman diet and trying to figure out what works best. I had rice on Friday and unfortunately did get a reaction (bloating/nervousness), which for now makes carbs a thing of the past. I do indeed do very well on protein and am becoming picky about the ingredients in foods as well. For example I had asparagus the other day but they were packed in citric acid. Little did I know citric acid had sugar. Suffered a severe reaction. All-natural indeed is the only way to go when it comes to curing this thing..  Well, it's a valuable lesson. I never drank enough during my childhood but I'm trying to drink at least a bottle nowadays. It probably contributed to my gut issues.  I'll do my best and see how it goes.  Thanks again, Ken
    • In Saint Denis , the capital,  New shop L ile ô bio , rue Michel Ah Sam tel 0262946564sells gluten free biscuits brand Nature & Co quite nice, pasta  Italian shop Mediterraneo 38bis rue Charles Gounod 0262134702 sells nice pasta and sauces  Frozen shop Picard sells a Genius bread , not bad    local food, beware of the gratin de chouchou , very nice but the bechamel sauce got flour easy to find salad and grilled fish, lots of rice base dishes 
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