I've been so distraught about all this for the past couple months, and I don't know where to turn/how to get the help I need. I am female, 22 years old, and live in Ontario.
For the past couple of years, I've had general crappy feeling issues - regular headaches, light-headed, almost daily headaches, unsettled stomach, constipation, diarrhea. After suffering, I decided to go to the doctor and was told I had IBS and that there wasn't really much to be done. I think I wasn't taken as seriously as I have a history of anxiety/depression, and think my issues were chalked up to nothing more than stress.
Several months ago, I began having a lot of pains in my chest and upper stomach that were sharp and pulsing, then disappeared. After going to three different doctors, I was finally tested for h. pylori, and the results came back negative. I was told to take the h-pac (8 pills a day of antibiotics and acid meds I believe?). While it helped, I still had symptoms and was put on a PPI. I was still feeling incredibly weak, light-headed, foggy, exhausted, and asked to have a blood test which my physician reluctantly agreed to. She told me if there were any issues, that she would call, otherwise, come back in a month.
A month later (now), things had not improved, and I went back to see her. At this point, I am experiencing the following:
-headache (almost daily)
-extreme fatigue (even with sleeping 8 hours a day)
-need to lie down a lot
-diarrhea, or just having very heavy BMs
-tingling in my left hand that comes and goes
-hard to explain, but when I close my eyes, my brain feels weird
My blood test from beginning of October showed (don't have exact numbers, I didn't get my own copy):
-very low iron, hemoglobin
-very low vitamin B12
I've been crying a lot because I feel so hopeless and trapped. I was also so angry that I had lived a month with such low levels of iron and B12 considering I've been feeling like a zombie all month and she forgot to call with my positive results.
Does it seem possible that I have Celiac? What are the best ways to know for sure?
My doctor said she's going to refer me to a GI for an endoscopy, but that process is going to take months. Is there a way I could speed this up? Would going to my ER be an option? I don't know how much longer I can handle these symptoms/constantly feeling awful.
Also, has anyone else experienced a link between H. pylori and Celiac? I have read things about Celiac being started by some kind of event/infection that really exacerbated symptoms?
Any advice/support/information or places to go for support would be so appreciated.
I'm barely an adult and facing this wall of daily symptoms has really taken a toll on me.