Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Boyfriend's Sister Is A Pastry Chef - Misinformed About Celiac?


  • Please log in to reply

18 replies to this topic

#1 Waitingindreams

 
Waitingindreams

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 345 posts
 

Posted 01 November 2013 - 06:32 PM

(I was not sure where else to post this topic, I apologize if it's out of place!)

 

So, my boyfriend is completely supportive of my celiac disease...he tries my gluten free food, and makes sure he brushes my teeth before he kisses me, etc etc. His sister went to school to be a chef, and she worked in a pastry kitchen. She learned about celiac disease and, apparently - wrote a paper on it. She thinks he is being extremely overprotective (which he is in, a way, but for good reason)

 

One of the more recent times I was at his house, we were looking up gluten free restaurants in the area to try. His sister encouraged me to try a wheat wrap and said I should be fine. She said something about how it's not the actual wheat that makes us sick, but how it reacts with other proteins or something like that. Of course, I didn't take her advice. I was just...kind of speechless, really. Now he's telling me that she's telling him that people with celiac disease can't get "that sick". 

 

I'm really confused. If she went to school for this, and wrote a paper on it - why is she so dangerously misinformed? This is really scary. I already told my boyfriend I don't feel safe eating anything she makes for me *though she hasn't tried or offered as of yet*

 

What is going on here, what are the chefs that prepare gluten free food really being told? Has anyone dealt with anything similar?


  • 0

Diagnosed via blood test: July 2013

Digestive Issues: Lactose Intolerance, Candidiasis, recurring hiatal hernia, possible SIBO

Skin Issues: Rosacea, Seborrheic Dermatitis, Tinea Versicolor

Sleeping Issues: Idiopathic Central Nervous System Hypersomnia, Sleep Paralysis

Allergies: Severe Seasonal allergies,histamine intolerance (under control) sulpha drugs, Oral Allergy Syndrome

Other: TMJ, Gallstones, Orthostatic Hypotension, Dysmennorhea, possible Adrenal Fatigue

Gluten Free - 07/13, Soy Free 05/14, Legume Free 05/14, Dairy Free 09/14, Grain Free 10/14

"I am in control of my own health" - working on crossing everything off this list.

 


Celiac.com Sponsor:

#2 nvsmom

 
nvsmom

    Moderator

  • Moderators
  • PipPipPipPipPipPip
  • 3,587 posts
 

Posted 01 November 2013 - 06:51 PM

Yikes! :huh:  If you can gently educate her about celiac disease, I am sure hundreds of future customers will be grateful!

 

Seriously though, I would try to correct her.... gently.  Good luck!


  • 1
Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#3 WinterSong

 
WinterSong

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 547 posts
 

Posted 01 November 2013 - 06:55 PM

Oh my goodness!!!!!! That's terrible!!! 

 

I hope your boyfriend isn't listening to her. If he starts to, ask him to read a few things on this board. He is wonderful for being protective and brushing his teeth. It's exactly what he should be doing for someone he cares about. 

 

When did she graduate? And where? I wonder if you could ask to read her paper if she still has it...I'm so curious.

 

My sister is a pastry chef. Her favorite class was where they learned about dietary restrictions, but she knows a lot more about gluten free cooking than most people because I got diagnosed. I'll ask her this weekend what her teachers said about it.


  • 0

Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test (tTg off the charts) - March 18th, 2011

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

 

Blood test results back down to normal levels November 2012


#4 Waitingindreams

 
Waitingindreams

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 345 posts
 

Posted 01 November 2013 - 07:10 PM

nvsmom - I want to, but it's a touchy subject. I don't know her that well, I rarely see her - but my boyfriend has been arguing with her about it. She brushes it off and tells him that he's being overprotective, and he gets annoyed and tells her she doesn't understand (which, clearly she doesn't) She's someone that's hard to get along with, that always has to be right. I don't know if she's ever actually cooked for someone with celiac disease before, I imagine she hasn't. I'll have to ask him about that. I'm just...so confused. Most of the gluten-free places i've gone to have some kind of knowledge...like putting the pizza on aluminum foil/its own little plate before putting it in the oven. SOMETHING that indicates that they're aware of the dangers of cross contamination, you know? She was arguing with him about that, too. 

 

WinterSong - He isn't listening to her at all, he's trying to tell her she's wrong and he's getting increasingly annoyed by her. I have sent him a few forum threads from here, and he reads up on it on his own as well. He even downloaded a gluten-free app on HIS phone and he's constantly finding me new markets/restaurants to try. He even surprised me by driving me to a gluten free/organic place near his job. :) He's been great, really. He's very annoyed by her. I don't know where she went to school, actually. Hmm. I'm wondering if she's mixing up a gluten intolerance with celiac disease...but I don't know much about gluten intolerance...so it's hard to say. 

 

Thank you! I'm just...well, I'm very new to the gluten free diet (and celiac in general) and my boyfriend has been a huge help, so I'm not concerned with him listening to her or anything like that...I AM concerned with this causing strife with her trying to cook for me and me...being afraid to eat it, lol. I don't want to offend her, but...what is going on here? 


  • 0

Diagnosed via blood test: July 2013

Digestive Issues: Lactose Intolerance, Candidiasis, recurring hiatal hernia, possible SIBO

Skin Issues: Rosacea, Seborrheic Dermatitis, Tinea Versicolor

Sleeping Issues: Idiopathic Central Nervous System Hypersomnia, Sleep Paralysis

Allergies: Severe Seasonal allergies,histamine intolerance (under control) sulpha drugs, Oral Allergy Syndrome

Other: TMJ, Gallstones, Orthostatic Hypotension, Dysmennorhea, possible Adrenal Fatigue

Gluten Free - 07/13, Soy Free 05/14, Legume Free 05/14, Dairy Free 09/14, Grain Free 10/14

"I am in control of my own health" - working on crossing everything off this list.

 


#5 WinterSong

 
WinterSong

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 547 posts
 

Posted 01 November 2013 - 07:26 PM

Even with a gluten intolerance you can't eat a wheat wrap. I have no idea what she's talking about  :blink:  People who are gluten intolerant can get VERY sick. They just won't have the same internal damage as Celiacs. 

 

My best advice - stay away from her cooking, obviously. Since you said she's the type of person who always has to be right, she'll most likely be hard to convince otherwise. But I would still try to have a talk with her about it when the time feels right. Maybe the next time she offers you something that clearly contains gluten? But casual, and like nvsmom said - gently. 

 

As for your boyfriend - marry him, lol  :D


  • 0

Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test (tTg off the charts) - March 18th, 2011

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

 

Blood test results back down to normal levels November 2012


#6 Waitingindreams

 
Waitingindreams

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 345 posts
 

Posted 01 November 2013 - 07:38 PM

Yeah, I definitely am going to steer away from her cooking. The thing is, so far, she seems to like me (or at least not dislike me) and I don't want to stir up anything. This is a pretty new relationship (I literally had only been with him for about 10 days when I got diagnosed. Yeah!) I wouldn't be rude about it, I'm not like that anyway - but it's one of those things. I read other forums talking about it...where you have those friends/family members that try to be helpful but they have no idea what they're doing, so they end up doing things that could make you sick, even though they mean well. I was just curious if anyone had heard of this type of thing happening or going around. If she really did take a class and learn about celiac disease, why is she being taught misleading information? Who else is being taught this information? 

 

'Daw. Yeah, he's a good catch, definitely. I'm lucky...I've seen some of the posts on here about people not supporting their loved ones with celiac. My dad doesn't get it or seem to care to understand it, and my mom means well but she's a bit like his sister. "Of course ____ is gluten free, why wouldn't it be?" She doesn't get why I have to read every label and look up brands and products. i can't just blindly assume something is gluten free because it seems like it should, or would be. 

 

My mom worked with a woman who has a husband with celiac disease. She, for whatever reason - refused to cook gluten free food for him. My mom said he ended up in the hospital multiple times. I don't understand people like that. I can see how/why dating with celiac disease would be difficult, so I was very wary about telling my new boyfriend that everything had changed. He's really taken it in stride, though. :) 


  • 0

Diagnosed via blood test: July 2013

Digestive Issues: Lactose Intolerance, Candidiasis, recurring hiatal hernia, possible SIBO

Skin Issues: Rosacea, Seborrheic Dermatitis, Tinea Versicolor

Sleeping Issues: Idiopathic Central Nervous System Hypersomnia, Sleep Paralysis

Allergies: Severe Seasonal allergies,histamine intolerance (under control) sulpha drugs, Oral Allergy Syndrome

Other: TMJ, Gallstones, Orthostatic Hypotension, Dysmennorhea, possible Adrenal Fatigue

Gluten Free - 07/13, Soy Free 05/14, Legume Free 05/14, Dairy Free 09/14, Grain Free 10/14

"I am in control of my own health" - working on crossing everything off this list.

 


#7 LauraTX

 
LauraTX

    Advanced Community Member

  • Moderators
  • PipPipPipPipPipPip
  • 1,344 posts
 

Posted 01 November 2013 - 08:45 PM

I will add this:  the longer you don't confront her about her misinformation, the more upset she is going to get, because she thinks you are okay with it at the moment.  You'll have to bite the bullet and talk with her sooner than later, or the worst case scenario is you marry this nice guy and have to deal with her trying to poison you for the rest of your life.  Bring her something from the University of Chicago celiac disease research center to back yourself up.  Maybe you can also get her some info from a fellow chef, she may be receptive to that.

 

When she wrote her paper she probably just read stuff off an internet search that were not legitimate sources.  


  • 2
I am my husband's "Silly Yak Girl" :)
I was diagnosed with Celiac Disease in January 2013. I also have Lupus and Common Variable Immunodeficiency(CVID) for which I am on IVIG.

Celiac.com - Celiac Disease Board Moderator

#8 Waitingindreams

 
Waitingindreams

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 345 posts
 

Posted 01 November 2013 - 09:05 PM

I see your point - but the problem is she mainly argues this with my boyfriend when I'm not around. Only one time she told me that she didn't think wheat wraps would bother me, but she did say "I mean if it's going to make you sick, don't eat it..." and I just kind of held my tongue and nodded. I told her I'm not going to risk it, and she didn't really seem put off. She doesn't really bring it up when I'm around. I don't even know how they get on the topic of it, really. So far she hasn't offered to cook for me, which is good...but if it does come up again I'm going to have to try to be more aggressive about it. Right now my boyfriend is really fighting with her on it, but again - I'm not there to hear what exactly she is saying. 

 

I mean...most sites about celiac disease do not say wheat is okay, or that you don't get 'that sick' from cross contamination. i really am curious where she got her information, but again - these are discussions she is having with him when i'm not around. 


  • 0

Diagnosed via blood test: July 2013

Digestive Issues: Lactose Intolerance, Candidiasis, recurring hiatal hernia, possible SIBO

Skin Issues: Rosacea, Seborrheic Dermatitis, Tinea Versicolor

Sleeping Issues: Idiopathic Central Nervous System Hypersomnia, Sleep Paralysis

Allergies: Severe Seasonal allergies,histamine intolerance (under control) sulpha drugs, Oral Allergy Syndrome

Other: TMJ, Gallstones, Orthostatic Hypotension, Dysmennorhea, possible Adrenal Fatigue

Gluten Free - 07/13, Soy Free 05/14, Legume Free 05/14, Dairy Free 09/14, Grain Free 10/14

"I am in control of my own health" - working on crossing everything off this list.

 


#9 GF Lover

 
GF Lover

    Melanoma Warrior

  • Moderators
  • PipPipPipPipPipPip
  • 1,705 posts
 

Posted 02 November 2013 - 04:54 AM

Here's another opinion for you.

 

I would let the whole issue drop.  You don't have to eat anything she makes so that's a non-issue.  It's never good to create drama where none is needed.  I applaud your boy friend for sticking up for you but maybe he needs to let it go to.  IMO, the only way she will come around is if she takes it upon herself to get educated on celiac disease.  I have a brother who thinks he is an expert in everything and still an idiot.  I would hate for this issue to cause friction between your boy friend and his sister when it can be avoided.  In time, she may do some investigating herself and come around.  This "paper" she wrote is probably pretty generic.  I met a nurse once who said she did a paper on Addison's Disease so she "knew all about it".  She actually didn't know the ins and outs of the disease, basically just the definition.

 

Colleen


  • 0

HAVE A SUPER SHINY DAY

 

LTES gem 2014

*BiPolar, Major Depression, Anxiety *Hypothyroidism, *Celiac

*Metastatic Melanoma, *Immunotherapy Mitigated Vitiligo, *General Insanity

"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

gingerbread-man-smiley-emoticon.gif


#10 Waitingindreams

 
Waitingindreams

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 345 posts
 

Posted 02 November 2013 - 05:58 AM

There hasn't been any drama between me and her, because i do just try to let it go. Like you said, as long as I'm not eating her food and getting sick it's not a big deal. My main concern is what they're teaching chefs at these schools. Was it just her school, just her class? Why is she so misinformed about it when she's going to be making food for other people? That's what my main problem was...I never have to eat anything she cooks (and I don't want to, lol) as for my boyfriend...well, they're siblings and they'd bicker anyway. :P I think it really bothers him, the celiac disease really scares him. I don't know who starts the issue, I do know his mom tries to help and offers to pick up gluten free food and asks him what I can eat, so the sister might get involved from there, who knows. I was just wondering if anyone knew why this kind of information would be TAUGHT to people who prepare food for others. It's scary.


  • 0

Diagnosed via blood test: July 2013

Digestive Issues: Lactose Intolerance, Candidiasis, recurring hiatal hernia, possible SIBO

Skin Issues: Rosacea, Seborrheic Dermatitis, Tinea Versicolor

Sleeping Issues: Idiopathic Central Nervous System Hypersomnia, Sleep Paralysis

Allergies: Severe Seasonal allergies,histamine intolerance (under control) sulpha drugs, Oral Allergy Syndrome

Other: TMJ, Gallstones, Orthostatic Hypotension, Dysmennorhea, possible Adrenal Fatigue

Gluten Free - 07/13, Soy Free 05/14, Legume Free 05/14, Dairy Free 09/14, Grain Free 10/14

"I am in control of my own health" - working on crossing everything off this list.

 


#11 notme!

 
notme!

    Advanced Community Member

  • Moderators
  • PipPipPipPipPipPip
  • 2,126 posts
 

Posted 02 November 2013 - 01:51 PM

maybe she got an 'f' on her paper  :lol:


  • 1

arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#12 nvsmom

 
nvsmom

    Moderator

  • Moderators
  • PipPipPipPipPipPip
  • 3,587 posts
 

Posted 02 November 2013 - 03:47 PM

maybe she got an 'f' on her paper  :lol:

 

LOL :lol:


  • 0
Nicole Posted Image

"Acceptance is the key to happiness."

ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012

CANADIAN

Celiac.com - Celiac Disease Board Moderator

#13 LauraTX

 
LauraTX

    Advanced Community Member

  • Moderators
  • PipPipPipPipPipPip
  • 1,344 posts
 

Posted 02 November 2013 - 06:41 PM

Hahahaha, and at least she is making wheaty pastries for people and not trying to cook her version of gluten free.


  • 0
I am my husband's "Silly Yak Girl" :)
I was diagnosed with Celiac Disease in January 2013. I also have Lupus and Common Variable Immunodeficiency(CVID) for which I am on IVIG.

Celiac.com - Celiac Disease Board Moderator

#14 WinterSong

 
WinterSong

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 547 posts
 

Posted 03 November 2013 - 04:24 AM

Well, she could be making wheat pastries and telling people they are gluten-free which is the scary part.

I spoke with my sister. She studied pastry art at Johnson and Wales. They were taught about cooking for people with different food intolerances, not just gluten. She learned which flours have wheat in it and basic CC. They would wash everything really well and keep gluten-free prep separate from wheat prep. She compared it to keeping raw meat away from raw vegetables. They seemed to teach her well. She didn't know the details of how strongly being glutened can effect someone nor the complications of celiac - even so, she took food intolerances very seriously. She learned a few more CC things from me, like how scratched plastic can retain gluten, especially when heated.

I told her about this post and she was quite upset.
  • 0

Diagnosed with IBS - Fall 2007

Diagnosed with Celiac via blood test (tTg off the charts) - March 18th, 2011

Gluten free as of March 25th, 2011 and going strong!

Positive biopsy April 1st, 2011

 

Blood test results back down to normal levels November 2012


#15 kareng

 
kareng

    HO! HO! HO!

  • Moderators
  • PipPipPipPipPipPip
  • 14,312 posts
 

Posted 03 November 2013 - 05:29 AM

(. His sister encouraged me to try a wheat wrap and said I should be fine. She said something about how it's not the actual wheat that makes us sick, but how it reacts with other proteins or something like that. Of course, I didn't take her advice. I was just...kind of speechless, really. Now he's telling me that she's telling him that people with celiac disease can't get "that sick". 

 

 

 

What is going on here, what are the chefs that prepare gluten free food really being told? Has anyone dealt with anything similar?

 

 

This doesn't sound like something they teach in cooking schools.  This food combining theory is something quacks use to sell weight loss books.  I bet she just got it somewhere like that.  Who knows what she wrote a paper on?  I imagine the quality of writing in a cooking school is lower than in ,say a college writing class.  Maybe they had to research a food trend or something.


  • 0

santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: