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I'm An Undiagnosed Newbie.
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Hello, my name is Ashlyn and I am 19, (20 next week) and I recently found out I possibly have celiac disease. I found that out in August from a friend's post on facebook and ever since then, I've lost 36 pounds, and it all makes sense..

 

Let me start when I was 6 months old. At such a young age, I gained a lot of weight so my mother took me to several doctors and they all told her, "You're feeding her too much!" They didn't even listen to what she was telling them, that I had diarrhea, I easily bruised, and I was always sick. I ate bananas, lemons, jalepenos, graham crackers, and formula when I was a year old. From when I was 1 till I was almost 6, I was always sick. I would be sick every month for about 4-5 days, not being able to keep anything down. I would throw up hours on end and the doctors never figured out why. My mom figured out that it was a small intolerance to dairy but that went away when I was 7. I was also tested for diabetes and thyroid problems 12 different times but they all said I did not have them.

 

From then on till now, I have been gaining weight every year like crazy and am clinically obese.I was in ballet for 9 years, gymnastics for 3, soccer for 1 season, swimming for 6 years, basketball for 3 years, and volleyball for 1 year. I did all these sports plus Curves, Weight Watchers, walking every morning before school, and I had PE 5 days out of the week at school. Throughout all of this, I lost no more than 10 pounds and then gained it back with even more. I did all those things while being overweight and obese and never quit. In the last 2 months of going gluten free, I lost 36 pounds, no more excema, no more unexplained bloody noses or headaches, water retention in legs went down, no more bloating, gas, acid reflux, diarrhea, & constipation. I sleep better and my head is clearer. I have ADD, Aspergers syndrome, dyselxia, anxiety, and bouts of depression. Almost all of it has stopped and I am doing better in my college courses.. 

 

Right now I am in North California, where I was born and raised, but I live in North Idaho. I am in the middle of getting insurance and finding a doctor that can help me. It would be nice to find some people my age that live close by that can help me.

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    • Thanks, I'll check that out. I may have to apply for my own Medicare card in order to get any kind of coeliac-testing done beyond the screen (see above post.)  No, nobody has even mentioned it. I'm unsure if my doctor knows that I do not need to use my hands to vomit, or if she knows about the involuntary vomiting.  I have a part time job at McDonald's and make around $150 per week, which is how I afford to smoke. Mostly, I spend my money on (generally gluten-containing) binge food and cigarettes. I did attempt to start saving money, but then my shifts were cut at work - which meant I had more time to study, but no money, which was kind of pointless. It's complicated. Here in Australia, cigarettes are $25 per pack. These aren't fancy cigarettes either, just your run-of-the-mill Marlboro 20s. Thanks for caring. I am trying to stop I've had the vomiting thing all my life, way before I started smoking. And no, I'm not sure. I know he had an endoscopy and the flattened villi, but I'm not sure if he got a blood test - I assume he would have done, don;t know if it was the full panel. Supposedly he has this FODMAP thing, which I'll admit that I know next to nothing about. Interestingly, people who have to follow low-FODMAP or no-FODMAP diets can't eat gluten either, so there's that. 
    • Would a coeliac screen be the same as a test for antibodies, then? I have no idea why it was even included in my list of tests. It could be my brother, or my symptoms, or both - regardless, I can't say I know too much about the testing.  It's possible that my brother has coeliac disease, I really do worry about it sometimes. He was told to follow a strict low-FODMAP diet by his doctor, and eventually my parents stopped caring. Occasionally they will remind him not to eat things like pasta, greasy foods, etc. because of his condition, but by and large they don't care. He basically just eats whatever he wants. I'm not sure if it affects him or not. However, he isn't shorter than other family members - my dad is 183cm, and my brother is 178cm at the age of 14. Our mother is 173cm.  I do think I have bad digestion, yes. I get gassy and very bloated often, as well as constipated phases (and then following that, diarrhea phases.)  I have tried to ask my mum to call the doctor to get the tests done, but I'm hesitant to mention anything to do with gluten as I know they won't believe me, solely because a good friend of mine has celiac disease. I know they'll think I'm doing it for attention, or to be trendy, when in actual fact I'm just tired of being sick and having no explanation for it other than diet. I'm positive it's not dairy, as I was vegan for a couple of months at one stage. When I went back to eating animal products, I had no issues whatsoever. 
    • He had the IgG ELISA done as well as other blood panels, fecal and saliva tests. He is on an elimination diet right now where foods that score above 0.2 are eliminated for 2-6 months depending on the score, then added back slowly after the detox period.  I am aware that there is a lot of controversy over the IgG, and I'm not here to go into that issue, but I can say with certainty that eliminating the additional foods he reacted to has seen a huge reduction in the symptoms that persisted after cutting gluten and dairy. We will be attempting to add rice back in around October, and see how he does but until then I still need a solution for a baking mix.  I tried to wing it a bit with pumpkin bread today and my attempt was okay but not great. The loaf sank a bit and was overly chewy.  So, to my original question....recipes?
    • Ask the doctor's office!  But usually you can eat right after if you feel like it.  But ask them!  Some of them will try to give you crackers, so you may want to bring some gluten-free applesauce or Rice Chex
    • I'm wondering if he doesn't have an oat problem. He was only dx'd several months ago and really shouldn't use oats for a year after dx. Just thinking out loud. I too am wondering how the rice was picked out of all those other flours to be determined to be affecting him.
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