Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Just Got Back From My Endoscopy


bellybattle

Recommended Posts

bellybattle Apprentice

I just got back from my endoscopy and I am surprisingly alert! I thought that I was going to be dead tired the rest of the day. The procedure wasn't too bad, I don't really remember too much. I feel silly for worrying so much about it! :rolleyes:

The doctor said that there wasn't any noticable damage so basically I just have to wait for the biopsy results. I was wondering though, if I were to have celiac disease, wouldn't the doctor be able to see some damage with the scope? Or, is it the biopsy that will show the most damage? I thought that he would be able to see villi damage with the scope. Any thoughts? Thanks!

BB

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I also was alert after the procedure and I had both an endoscopy & colonoscopy. Actually, my husband and I stopped at Whole Foods on the way home! (I was supposed to go home and rest, but went anyway) They have to look at the samples under a microscope to see if there was any villi damage. The Dr. can see inflammation during the procedure if present. I knew before I left the surgery center that he had found gastrisis, but the biopsy took a week or so. Glad you came through with no problems!

Link to comment
Share on other sites
skbird Contributor

I was pretty alert, too, but not very hungry as I had a blood sugar problem during the whole thing. That did make me tired in the end. They didn't see anything, except a polyp, and then when the biopsy came back everything was fine. I was really surprised they didn't notice any inflammation at all because I had a pretty upset system at the time. Goes to show it doesn't always show what you feel, I guess.

Stephanie

Link to comment
Share on other sites
Rachel--24 Collaborator

I wasn't alert at all. The nurse pushed me out to the car (was in a wheelchair). Apparently I was chatting with her the whole time but I have no recollection of what was said...I also barely remembered how I even got to the car. :huh:

Link to comment
Share on other sites
bellybattle Apprentice

Thanks guys! I'm a little anxious to get the results back. My bloodwork came back only slightly positive as opposed to really high as many of you have mentioned. I was a little surprised after the biopsy. I remember feeling like I was gagging a little at the beginning, and I think I remember a poking feeling in my stomach, but that was it. I wasn't expecting my throat to hurt so much though. I was expecting my throat to be a little sore, but not like this. I actually had to stay in the recovery room a little longer because I lost my voice ! :o I have it back now - I still have that froggy feeling and a little bit of a cough. I'm not sure if this is normal or not. I hope there wasn't any damage done...

Link to comment
Share on other sites
VydorScope Proficient
Thanks guys! I'm a little anxious to get the results back. My bloodwork came back only slightly positive as opposed to really high as many of you have mentioned. I was a little surprised after the biopsy. I remember feeling like I was gagging a little at the beginning, and I think I remember a poking feeling in my stomach, but that was it. I wasn't expecting my throat to hurt so much though. I was expecting my throat to be a little sore, but not like this. I actually had to stay in the recovery room a little longer because I lost my voice ! :o  I have it back now - I still have that froggy feeling and a little bit of a cough. I'm not sure if this is normal or not. I hope there wasn't any damage done...

<{POST_SNAPBACK}>

Nah thats fine.. sounds liek they just did not put you under quite as far as some of us have went.. took me 1/2 a day to just wake up enough to get in thte truck for my wife to get me home! LOL

Link to comment
Share on other sites
NYCisTHEplaceTObe Rookie

i was actually really alert too. I remember everything that the doc told me before I left. I actually remember being really upset because I was having a really good dream that they woke me up from! Then I was fine the rest of the day, I just layed around and was lazy, which felt really good since I am usually such a high strung stressed out person!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast
I was wondering though, if I were to have celiac disease, wouldn't the doctor be able to see some damage with the scope? Or, is it the biopsy that will show the most damage? I thought that he would be able to see villi damage with the scope. Any thoughts? Thanks!
Not necessarily, the villi are very tiny and the procedure is so quick that they don't really have much time to look. My GI doctor said that he could see that there were problems with my intestine after the scope, but he couldn't confirm anything until after the biopsy results.
Link to comment
Share on other sites
jenvan Collaborator

it is hard to tell with the naked eye...and there is quite a range of damage that can be found--villi that are merely blunted (the tips are gone) to no villi in areas...

Link to comment
Share on other sites
jmarie Newbie

I just had a 2nd endoscopy (6 month follow-up). Last time, my dr said that my intestines had atophied & were just really dysfunctional. This time, he just said "Your celiac's is unresolved by your diet". At which point, of course, I burst into tears. They all looked confused that I would be so upset, but I feel like I put forth a lot of effort for naught.

Anyway, the procedure was not that bad - I was totally asleep for the 2nd one. The colonoscopy, on the other hand, was horrible b/c I had to fast for so long and drink that vile liquid laxative. And that test showed nothing.

Argh.

Link to comment
Share on other sites
darkangel Rookie
I just had a 2nd endoscopy (6 month follow-up).  Last time, my dr said that my intestines had atophied & were just really dysfunctional.  This time, he just said "Your celiac's is unresolved by your diet".  At which point, of course, I burst into tears.  They all looked confused that I would be so upset, but I feel like I put forth a lot of effort for naught.

Anyway, the procedure was not that bad - I was totally asleep for the 2nd one.  The colonoscopy, on the other hand, was horrible b/c I had to fast for so long and drink that vile liquid laxative.  And that test showed nothing. 

Argh.

<{POST_SNAPBACK}>

Doctors can be so insensitive. When I asked about dietary recommendations or lifestyle changes, my first GI told me, "You have ulcerative colitis. You'll never be well. You'll be on medication the rest of your life and may eventually have to have your colon removed to be 'cured.' Get over it." Then she wondered why I burst into tears.

I'm feelin' ya on the colonoscopy. The first one I had was a nightmare. I was so inflamed and reactive, they couldn't get all the way around. They gave me maximum drugs. Afterwards, they asked me if I could remember any of it and I said, "I remember hearing someone screaming." Um... yeah... that would be me. Yet, my Mom says they gave me all kinds of post-procedure instrux and I sat and chatted with the doctor, but couldn't remember any of that when I got home.

Thank God the next time they tried it a year or two later, they used a child-sized scope and managed to knock me out completely.

Link to comment
Share on other sites
jknnej Collaborator

Both my colonoscopy and endocscopy they had to give me double the meds to put me out. I guess i won't go easily! LOL

because of the double dosage I was OUT for the entire day and night. My hubby had to bring me out in a wheelchair and take me home and put me to bed.

Endo was So easy, prep for colonoscopy sucked. I was starving and dehydrated, plus nauseated from drinking all that soda with the laxatives. Ick.

Link to comment
Share on other sites
FaithInScienceToo Contributor
I just had a 2nd endoscopy (6 month follow-up).  Last time, my dr said that my intestines had atophied & were just really dysfunctional.  This time, he just said "Your celiac's is unresolved by your diet".  At which point, of course, I burst into tears.  They all looked confused that I would be so upset, but I feel like I put forth a lot of effort for naught.

Anyway, the procedure was not that bad - I was totally asleep for the 2nd one.  The colonoscopy, on the other hand, was horrible b/c I had to fast for so long and drink that vile liquid laxative.  And that test showed nothing. 

Argh.

<{POST_SNAPBACK}>

I am sorry to hear that your gut is not healed yet...and that your doc delivered the news in a poor manner -

Have you begun to look into ALL possible sources of gluten contamination?

Did you doc mention that it can take longer than 6 months to heal?

Also...I have seen threads on here that discuss other possible causes of villi damage...did your doc talk to you about them?

Gina

PS - I, too, had a colonoscopy, and got sick from the prep, then had to be up all night drinking more prep...glad it's over...for 10 years, at least! :-)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,061
    • Most Online (within 30 mins)
      7,748

    Stephanie Thompson
    Newest Member
    Stephanie Thompson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zackery Brian
      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
×
×
  • Create New...