Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Got Glutened About Two Weeks Ago - Confused?
0

4 posts in this topic

So a few Fridays ago, my boyfriend and I ordered takeout from a restaurant with a gluten free menu. We had eaten there before. I got the roasted organic vegetables, he got a quesadilla. Both meals had "gluten-free" next to them on the menu. When we brought the food home, I realized mine came with a small bread loaf. It certainly LOOKED gluten free,(you know gluten-free bread looks different) and it came with my gluten free meal, so naturally I assumed it was gluten free. After a few bites, I realized it tasted like wheat and definitely didn't taste gluten free. I stopped eating and called the restaurant and they confirmed that it was not gluten free, and actually got defensive with me because my boyfriend never stated that he was ordering off the gluten free menu. (It says that both meals are gluten free on both menus, but whatever.)

 

I got a little bit dizzy and light headed, so I went to rest. For about an hour or so I felt some cramping, like my stomach was being stretched/ripped apart. It hurt, but it was nothing unbearable. I've felt a lot worse. Within I'd say...an hour or two, I was feeling a lot better.

 

I didn't eat THAT much of the bread...I'd say if you touch your index finger to your thumb, that amount is about how much I ate...it's not a lot, but it's certainly more than the crumb amount that's supposed to make celiacs sick for weeks. The last time I had minestrone soup (before being diagnosed) I was in and out of the bathroom for 12 hours, and my stomach was still bothering me for awhile after. 

 

I'm not complaining, I'm glad I didn't get that sick - but why didn't I? Also, the day after I did start getting really sick..I had headaches and no matter how much water I drank I was still thirsty.and it slowly moved its way into bronchitis/ almost pneumonia. Did me eating gluten make my immune system more vulnerable? Why didn't I feel the gluten immediately like I usually would? I thought I would be spending hours in the bathroom. Again, I'm not complaining - just confused. I thought once you were gluten free for awhile, the tiniest amount would make you sick for days/weeks. Unless me having "very, very bad" bronchitis is a direct result of my gluten consumption, I really didn't get hit nearly as hard as I expected.

0

Share this post


Link to post
Share on other sites


Ads by Google:

i hadn't been sick in a year - 'germ' sick - i am around snotty children all the time lolz - it wasn't until i glutened myself, twice in a row (DUH!!) that i caught the virus du jour.  i am having more neuro issues than gastro from glutening, and i am attributing that to being further healed in the intestines.  btw - i am getting better on my own with the cold.  it has moved out of my chest into my head and is clearing up :)  my brother has the same cold. i am fairly certain he has undiagnosed celiac <we are like 6 year apart twins - he has allllll the issues but is in denial) had to go to the doctor and get antibiotics.  i am just getting my 'flora' to be all nice, i don't want to kill all those lovely digestive bugs lolz  :)  hope you feel better!

0

Share this post


Link to post
Share on other sites

Dreams,

I have been Gluten free for 11 months, except for the inadvertent glutening as you described. My DX was confirmed with a endoscopy ,graded as Marsh- 3 , severe damage consistent with having Celiac for a significant time span. My last glutening was the end of August. I ordered off the " Gluten Free " menu and two days later a bit of GI disruption and aprox 10 days of a headace, unsteady on my feet, clumsiess ,so tired I could barly drive home from work, insomnia and throw in the partners in crime- Irritability and  depression.

 

Approximately 2.5 years ago,  not coincidentally when I started having very noticeable GI symptoms( initially diagnosed with IBS) I was diagnosed with exercise induced asthma. This was a bit puzzling , since I have run 20-25 miles a week for 35 plus years. This was  treated with Advair inhalant. I also would get on average 4 colds that turned into sinus infections annually. Since going Gluten free I have not had a single cold and 5 months ago I no longer needed the Advair.

The mucosal lining of your throat, lungs, and  nose are not much different than the lining of the small intestine. The inflammation caused be the immulogical response to gluten can be systemic.

 

I do not have any scientific  data to evince a correlation between being gluten free and not needing asthma medication, nor thwarting every cold that other family members have endured. I am eating healthier, that certainly must have a positive impact on my immune system as well.

 

How long have you been gluten free ?

0

Share this post


Link to post
Share on other sites

A couple possible explanations: if you hadn't been glutened in a long time (and your gut had healed) it seems to take longer for symptoms to really kick in. Also, if your immune system is weakened, then you're definitely unacceptable to picking up a bug.

Really, everyone is different, and reactions can change over time.

 

I had a similar experience once, not long after going gluten-free. Ordered off a gluten-free menu, got a piece of bread with it. Yep, took 2 bites to know it wasn't gluten-free. Of course, then there was the xmas that me, Mom and my sister, all celiac, were eating the regular bread mom accidentally bought thinking it was gluten-free. Took a week before I thought, wait a second, I didn't know this was gluten-free. I never got really sick off of that either, but was run down and iffy for quite a while. That was also in early days.

In comparison, last xmas I discovered that there was indeed stuffing in the turkey my brother said was fine (thanks dude). I had one mouthful. Took a few days to kick in but I was so sick and it took a couple months to recover fully.

 

In any case, hope you feel better soon! Take out can be really tricky for us if we're not there to ask a million questions or send food back if they didn't get it right.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,099
    • Total Posts
      920,354
  • Topics

  • Posts

    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,133
    • Most Online
      1,763

    Newest Member
    Mycaringkidsmom
    Joined