Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Taking 15Yo For Tests Tomorrow!


NanaV

Recommended Posts

NanaV Rookie

She knows she reacts to milk proteins, and she has significant fatigue, almost daily. She has unexplained tummy pain now and then. She (and I) suspect that she reacts to gluten, but she hasn't wanted to go off of it. She has watched me go off gluten and become far more sensitive to it, so she'd like to avoid all that. AND she and her sister run a bakery. I'm comforting myself with the thought that she could run a gluten-free bakery if it turns out that she is gluten intolerant.

 

So, I'm going to ask for blood tests for reactions to gluten, dairy, & egg (which she just doesn't like). I'll also ask for a complete celiac panel and then common deficiencies like Vit D, calcium, iron.

 

What am I missing? This is my chance. She's still on gluten, so I'm hoping to extrapolate from her lab results for myself and the other children.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Sounds like a good plan. The full celiac panel is:

tTG IgA and tTG IgG

DGP IgA and DGP IgG

EME IgA

total serum IgA (a control test)

AGA IgA and AGA IgG (older and less reliable test but though by some to show non-celiac gluten intolerance (NCGI) as well as celiac disease)

 

Get as many tests as possible; some doctors only run a couple.

 

She may need to continue eating gluten after testing in case there is a follow-up endoscopic biopsy.

 

The other common deficiencies for celiacs are B12, ferritin, A, potassium, magnesium, zinc, copper.

 

Good luck with her testing.   :)

Link to comment
Share on other sites
powerofpositivethinking Community Regular

i think Nicole meant to say she needs to stay on gluten if they decide to do a biopsy.  Make sure your daughter stays on gluten until all testing is complete!

 

 

She may need to stay gluten-free after testing in case there is a follow-up endoscopic biopsy.

 

 

 

here's what I usually suggest testing wise

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing

check out page 12 in this report for testing information:

Open Original Shared Link

 

Vitamin/Minerals:

Complete Blood Count (CBC)

Complete Metabolic Profile (CMP)

Vitamin B-12

Folic Acid

Vitamin A, D, E, K

Ferritin

Iron

Magnesium

Zinc

Copper

Niacin

Riboflavin

C-Reactive Protein

Good info from University of Chicago Celiac Center:

Open Original Shared Link

 
 
good luck today!!
 
*EDIT: I'd suggest writing all symptoms down before going to the doctors.  That way if you get nervous, I do  :), you don't forget all your questions because you've got it all in front of you.
Link to comment
Share on other sites
nvsmom Community Regular

`Oops I did mean to eat gluten.  Thank you! I am editing the previous post that I made.

Link to comment
Share on other sites
NanaV Rookie

Poor thing gave 5 vials this morning, but I'm hoping we'll get useable information!

 

The doc added adrenal function tests to the list. Could that be related to celiac or gluten intolerance at all?

Link to comment
Share on other sites
nvsmom Community Regular

Some think that adrenals get worn out after dealing with illness/autoimmune issues for a long while. Adrenal fatigue is not a completely accepted idea but I think it has merit myself.

 

I hope she gets clear results.  :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,458
    • Most Online (within 30 mins)
      7,748

    RUTHANN BRANOFF
    Newest Member
    RUTHANN BRANOFF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
    • knitty kitty
      Hello, @Hannah24 Have you had a DNA test done?  Celiac Disease is genetic.  You must have at least one gene to develop celiac disease.  You don't have to be consuming gluten for a genetic test.   Anemia, diabetes and thiamine deficiency can cause false negatives.  Some lucky people are seronegative, but still have celiac disease.  Peripheral neuropathy, tingling in hands and feet are symptoms of vitamin deficiencies.  Vitamin C, Thiamine B1, Niacin B3, Pyridoxine B6, and Cobalamine B12 can each cause peripheral neuropathy.  These same vitamins are needed to produce blood cells.  Most undiagnosed Celiacs suffer from nutritional deficiencies. The DNA test would be helpful.
    • trents
      We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
×
×
  • Create New...