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Amazing Lectures At The Gluten Summit


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#1 CR5442

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Posted 12 November 2013 - 07:08 AM

Please do go online now and have a listen.  This guy has brought together so many seminars from the world's big brains on Celiac and the related conditions.  Free and lectures only available for 24 hours from the initial broadcast of the lecture... so get online now!  http://theglutensummit.com/day-1/

Let me know what you think of it.!


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#2 Gemini

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Posted 12 November 2013 - 07:54 AM

Some of this looks interesting but I was disappointed that they included Perlmutter as a speaker.  He is over the top on some of his stuff and promotes a no grain diet as the best way to go...even if many people have no sensitivities to gluten free grains.  And then there is that ridiculous cross reactivity nonsense.  This is why Celiac myths persist.

 

Thanks for posting though......I will have a look at some of them!


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#3 moosemalibu

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Posted 12 November 2013 - 08:16 AM

I have been enjoying the summit thus far.


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Jamie


"We can't help everyone, but everyone can help someone." Ronald Reagan

  • Diagnosed Celiac via blood test 8-22-13
  • Dairy & gluten free in 8-22-13 then did gluten challenge in October
  • Endoscopy/Biopsy Oct-26-13 positive for Celiac
  • HLA-DQ2 positive
  • Vitamin D insufficiency 12-6-13 (had it prior no doubt, just wasn't checked until December)
  • Dairy Added back in successfully 3-1-14
  • Normal Antibody Levels 3-19-14! 
  • Egg, sugar alcohols Intolerant 5-2014

Supplements: Fish Oil, Digestive enzymes, probiotics, biotin, multivitamin, joint supplement, psyllium husk

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#4 Adalaide

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Posted 12 November 2013 - 08:30 AM

Some of this looks interesting but I was disappointed that they included Perlmutter as a speaker.  He is over the top on some of his stuff and promotes a no grain diet as the best way to go...even if many people have no sensitivities to gluten free grains.  And then there is that ridiculous cross reactivity nonsense.  This is why Celiac myths persist.

 

Thanks for posting though......I will have a look at some of them!

 

I knew when I looked at the list of people that some are complete whackjobs, while some are the best of the best. The only reason I signed up to get the email was because we can pick and choose who to listen to so I can weed out the nuts and just listen to the people who are the kind of people ICDS would let speak. If ICDS would tell them to go walk their ideas off a short pier, well nobody is making me listen.


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"You don't look sick or anything"

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#5 moosemalibu

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Posted 12 November 2013 - 08:40 AM

Dr. Fasano's information about leaky gut is intriguing. I never understood it before. He explains it well.


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Jamie


"We can't help everyone, but everyone can help someone." Ronald Reagan

  • Diagnosed Celiac via blood test 8-22-13
  • Dairy & gluten free in 8-22-13 then did gluten challenge in October
  • Endoscopy/Biopsy Oct-26-13 positive for Celiac
  • HLA-DQ2 positive
  • Vitamin D insufficiency 12-6-13 (had it prior no doubt, just wasn't checked until December)
  • Dairy Added back in successfully 3-1-14
  • Normal Antibody Levels 3-19-14! 
  • Egg, sugar alcohols Intolerant 5-2014

Supplements: Fish Oil, Digestive enzymes, probiotics, biotin, multivitamin, joint supplement, psyllium husk

Celiac.com - Celiac Disease Board Moderator


#6 moosemalibu

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Posted 12 November 2013 - 10:33 AM

OK.. Dr. Ford's lecture is fascinating. The gluten-zero approach versus the gluten-free approach (less than 20ppm) makes sense. We are not talking about just gut damage.  But can you truly be gluten-zero?


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Jamie


"We can't help everyone, but everyone can help someone." Ronald Reagan

  • Diagnosed Celiac via blood test 8-22-13
  • Dairy & gluten free in 8-22-13 then did gluten challenge in October
  • Endoscopy/Biopsy Oct-26-13 positive for Celiac
  • HLA-DQ2 positive
  • Vitamin D insufficiency 12-6-13 (had it prior no doubt, just wasn't checked until December)
  • Dairy Added back in successfully 3-1-14
  • Normal Antibody Levels 3-19-14! 
  • Egg, sugar alcohols Intolerant 5-2014

Supplements: Fish Oil, Digestive enzymes, probiotics, biotin, multivitamin, joint supplement, psyllium husk

Celiac.com - Celiac Disease Board Moderator


#7 Gemini

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Posted 12 November 2013 - 12:37 PM

I knew when I looked at the list of people that some are complete whackjobs, while some are the best of the best. The only reason I signed up to get the email was because we can pick and choose who to listen to so I can weed out the nuts and just listen to the people who are the kind of people ICDS would let speak. If ICDS would tell them to go walk their ideas off a short pier, well nobody is making me listen.

I like the way you think, Addy!  ;)


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#8 Gemini

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Posted 12 November 2013 - 01:02 PM

OK.. Dr. Ford's lecture is fascinating. The gluten-zero approach versus the gluten-free approach (less than 20ppm) makes sense. We are not talking about just gut damage.  But can you truly be gluten-zero?

I am not a fan of Ford, either.  These people are fear mongers. Gluten free can very well mean gluten free.  I am one of those extremely sensitive ones, who presented with classic Celiac Disease and nearly died from it. Really....no BS in that statement.  If I can come back from having one foot in the grave and heal well, anyone can.....unless you have added intolerances that no one can figure out or another underlying condition that no one can figure out.  Most of these issues can be figured out, though, and many have nothing to do with gluten.

 

The problem I have with their pseudo logic is that no one can prove there is 1 ppm of gluten in any given product so why instill fear that there could be and if you eat it, you will remain sick?  Most reputable companies test down to around 5 ppm's but that does not mean there is 5 ppm's, or less, of gluten in the product. It could very well be zero. But instilling fear with regards to gluten-free products makes money for these people. Plus, the testing required to prove minute amounts of gluten would price these products right out of the ballpark.

I think Ford is a fan of the idea of banning gluten altogether...yeah, that will work!  Everything I have read by him smacks of kooky..... :rolleyes:

 

I guess if you ate only protein and carby and non-carby veggies, that might qualify as cutting out all risk but then again, someone will try and tell you that there is gluten in veggies. It could get very boring eating like that also and very hard for gluten free kids.


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#9 moosemalibu

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Posted 12 November 2013 - 01:08 PM

I am not a fan of Ford, either.  These people are fear mongers. Gluten free can very well mean gluten free.  I am one of those extremely sensitive ones, who presented with classic Celiac Disease and nearly died from it. Really....no BS in that statement.  If I can come back from having one foot in the grave and heal well, anyone can.....unless you have added intolerances that no one can figure out or another underlying condition that no one can figure out.  Most of these issues can be figured out, though, and many have nothing to do with gluten.

 

The problem I have with their pseudo logic is that no one can prove there is 1 ppm of gluten in any given product so why instill fear that there could be and if you eat it, you will remain sick?  Most reputable companies test down to around 5 ppm's but that does not mean there is 5 ppm's, or less, of gluten in the product. It could very well be zero. But instilling fear with regards to gluten-free products makes money for these people. Plus, the testing required to prove minute amounts of gluten would price these products right out of the ballpark.

I think Ford is a fan of the idea of banning gluten altogether...yeah, that will work!  Everything I have read by him smacks of kooky..... :rolleyes:

 

I guess if you ate only protein and carby and non-carby veggies, that might qualify as cutting out all risk but then again, someone will try and tell you that there is gluten in veggies. It could get very boring eating like that also and very hard for gluten free kids.

 

 

I get where you are coming from completely. I do think there is a bit of fear mongering but honestly I don't have any previous exposure to him. So I have no bias one way or the other...

 

In regards to a diet of protein and vegetables being boring... I am a bodybuilder so I eat lots of veggies, meat, sweet potatoes and brown rice and eggs. I don't eat much carbs or dairy. I don't think it is that boring but I guess I'm not the average person. I'm also not a child so I can see how hard it would be to do that with a child... Thanks for your input. It's a very interesting subject for all of us.


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Jamie


"We can't help everyone, but everyone can help someone." Ronald Reagan

  • Diagnosed Celiac via blood test 8-22-13
  • Dairy & gluten free in 8-22-13 then did gluten challenge in October
  • Endoscopy/Biopsy Oct-26-13 positive for Celiac
  • HLA-DQ2 positive
  • Vitamin D insufficiency 12-6-13 (had it prior no doubt, just wasn't checked until December)
  • Dairy Added back in successfully 3-1-14
  • Normal Antibody Levels 3-19-14! 
  • Egg, sugar alcohols Intolerant 5-2014

Supplements: Fish Oil, Digestive enzymes, probiotics, biotin, multivitamin, joint supplement, psyllium husk

Celiac.com - Celiac Disease Board Moderator


#10 moosemalibu

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Posted 12 November 2013 - 01:10 PM

What are your guys thoughts on the whole case study regarding microwaved food? I think that was a bit of fear mongering...


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Jamie


"We can't help everyone, but everyone can help someone." Ronald Reagan

  • Diagnosed Celiac via blood test 8-22-13
  • Dairy & gluten free in 8-22-13 then did gluten challenge in October
  • Endoscopy/Biopsy Oct-26-13 positive for Celiac
  • HLA-DQ2 positive
  • Vitamin D insufficiency 12-6-13 (had it prior no doubt, just wasn't checked until December)
  • Dairy Added back in successfully 3-1-14
  • Normal Antibody Levels 3-19-14! 
  • Egg, sugar alcohols Intolerant 5-2014

Supplements: Fish Oil, Digestive enzymes, probiotics, biotin, multivitamin, joint supplement, psyllium husk

Celiac.com - Celiac Disease Board Moderator


#11 Gemini

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Posted 12 November 2013 - 02:53 PM

I get where you are coming from completely. I do think there is a bit of fear mongering but honestly I don't have any previous exposure to him. So I have no bias one way or the other...

 

In regards to a diet of protein and vegetables being boring... I am a bodybuilder so I eat lots of veggies, meat, sweet potatoes and brown rice and eggs. I don't eat much carbs or dairy. I don't think it is that boring but I guess I'm not the average person. I'm also not a child so I can see how hard it would be to do that with a child... Thanks for your input. It's a very interesting subject for all of us.

I also do weight training (which is a bit different than body building) in a gym with a trainer and I have to eat carbs because I need the sugar or I lose weight.  I don't have the weight to lose.  I eat much of what you do and love that kind of food but every once in awhile...like last night......I need a brownie!  :P   So I ate a whole row from the pan...I am so bad sometimes.  Ha, ha!  Luckily, I have a thin husband who eats most of the rest of them.

 

I haven't looked at the whole series but what is the deal with microwaved food?  I can only imagine what their take is on it......if you listen to what they say, none of us should have survived this long.


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#12 moosemalibu

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Posted 12 November 2013 - 03:01 PM

I also do weight training (which is a bit different than body building) in a gym with a trainer and I have to eat carbs because I need the sugar or I lose weight.  I don't have the weight to lose.  I eat much of what you do and love that kind of food but every once in awhile...like last night......I need a brownie!  :P   So I ate a whole row from the pan...I am so bad sometimes.  Ha, ha!  Luckily, I have a thin husband who eats most of the rest of them.

 

I haven't looked at the whole series but what is the deal with microwaved food?  I can only imagine what their take is on it......if you listen to what they say, none of us should have survived this long.

 

I do love a treat meal occasionally! I am trying to lose fat and maintain lean body mass so my diet is a over 50% carbs (don't let me fool you otherwise - carbs are not the devil!). I try to stay away from processed food. I do treat myself occasionally though. I like to make coconut milk ice cream and the occasional baked good. I also experimented with gluten free pizza since my boyfriend is not NCGS or Celiac so he misses the 'gluten' food so I indulge him on occasion. But 90% of the time I'm pretty good.

 

Dr. Lipski was presenting a case study of a man that ate all his meals microwaved and how he had leaky gut and food sensitivities. Once he stopped microwaving his food they narrowed down his food sensitivity to like only 2 versus the myriad he had prior. It seemed kinda sweeping though how it was presented. Like you should never use the microwave. I was a little perturbed.


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Jamie


"We can't help everyone, but everyone can help someone." Ronald Reagan

  • Diagnosed Celiac via blood test 8-22-13
  • Dairy & gluten free in 8-22-13 then did gluten challenge in October
  • Endoscopy/Biopsy Oct-26-13 positive for Celiac
  • HLA-DQ2 positive
  • Vitamin D insufficiency 12-6-13 (had it prior no doubt, just wasn't checked until December)
  • Dairy Added back in successfully 3-1-14
  • Normal Antibody Levels 3-19-14! 
  • Egg, sugar alcohols Intolerant 5-2014

Supplements: Fish Oil, Digestive enzymes, probiotics, biotin, multivitamin, joint supplement, psyllium husk

Celiac.com - Celiac Disease Board Moderator


#13 Gemini

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Posted 12 November 2013 - 03:45 PM

While I am no MD, I really think that leaky gut is most likely not caused by microwave ovens.  The jury is still out on whether microwaved foods can actually cause a problem BUT they have been around for awhile now and people aren't falling over in droves.  I would think, after having leaky gut myself for years from undiagnosed Celiac, that it is caused by what people are eating and/or bacteria, viruses or the usual things that can tip the balance to the bad side in your gut. Definitely food allergies and intolerances would be the leading cause.  If this guy was microwaving all of his food then he probably wasn't eating healthy food to begin with because there are certain things that you just can't do well in a microwave. Microwave food tends to be processed food. Good healthy eating generally originates from a real oven! ;)  I would totally believe that eating all processed food could cause leaky gut.

 

What makes me annoyed and angry are all these people selling this line of pooh to the general public who may be desperate for answers to their health problems. They need real information, not nonsense that microwave ovens cause leaky gut. And wheat isn't dangerous for everyone, either. They are jumping on the bandwagon to make money and selling nonsense to vulnerable people.


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#14 moosemalibu

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Posted 12 November 2013 - 04:56 PM

While I am no MD, I really think that leaky gut is most likely not caused by microwave ovens.  The jury is still out on whether microwaved foods can actually cause a problem BUT they have been around for awhile now and people aren't falling over in droves.  I would think, after having leaky gut myself for years from undiagnosed Celiac, that it is caused by what people are eating and/or bacteria, viruses or the usual things that can tip the balance to the bad side in your gut. Definitely food allergies and intolerances would be the leading cause.  If this guy was microwaving all of his food then he probably wasn't eating healthy food to begin with because there are certain things that you just can't do well in a microwave. Microwave food tends to be processed food. Good healthy eating generally originates from a real oven! ;)  I would totally believe that eating all processed food could cause leaky gut.

 

What makes me annoyed and angry are all these people selling this line of pooh to the general public who may be desperate for answers to their health problems. They need real information, not nonsense that microwave ovens cause leaky gut. And wheat isn't dangerous for everyone, either. They are jumping on the bandwagon to make money and selling nonsense to vulnerable people.

 

Yeah the microwave bit was too much for me. I lost interest in the lecture. Dr. Marsh apparently allows his patients to drink English beer. He says that he has had a Celiac practice for over 25 years with over 300 patients with no issue. I never liked beer so I don't really care to drink it... but others have said the day before that beer was to be avoided. How interesting..


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Jamie


"We can't help everyone, but everyone can help someone." Ronald Reagan

  • Diagnosed Celiac via blood test 8-22-13
  • Dairy & gluten free in 8-22-13 then did gluten challenge in October
  • Endoscopy/Biopsy Oct-26-13 positive for Celiac
  • HLA-DQ2 positive
  • Vitamin D insufficiency 12-6-13 (had it prior no doubt, just wasn't checked until December)
  • Dairy Added back in successfully 3-1-14
  • Normal Antibody Levels 3-19-14! 
  • Egg, sugar alcohols Intolerant 5-2014

Supplements: Fish Oil, Digestive enzymes, probiotics, biotin, multivitamin, joint supplement, psyllium husk

Celiac.com - Celiac Disease Board Moderator


#15 CR5442

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Posted 13 November 2013 - 02:12 AM

Wow, some great conversations going on here!  I think we have to all pick and choose who we listen to and look at the published peer reviewed papers each of them have had and in what medical journals.  There are definitely some who are more quacky than others.  It might be worth having a read of some of their research papers to get a better insight.  It is difficult in interview to cover every technical detail.  I don't think that these speakers would be presenting on just what they 'think' is right, they will be saying things based on research and also patient experience.  They get to see a lot more gluten intolerant/celiac patients than we do.  There is a lot to learn from here though!


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