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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Stool Test Shows Elevated Eosinophils, Could It Be Celiac?
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3 posts in this topic

Hi, I am new to all this but need some advice on how I should proceed with testing. 

 

I have a 12 month old son, that is by all standards, a healthy normal boy. He is on tract developmentally, growth chart-wise, etc. He doesn't seem to be in pain before, during, or after eating. The only problem I have noticed is ever since starting solids (at 7 months) he has a lot of undigested food in his stool. I get mixed reviews on if this is a concern or not, but my gut feeling is its not right. I could easily tell you what he had as his last meal by his poop. Its that obvious. He has no other symptoms of pain, rashes, hives, etc. 

 

I am still breastfeeding him and I currently consume gluten, but have never gave it to him until recently. At his first birthday party a few weeks ago he got ahold of some gluten. Long story short, it was a poor decision on my part. He ended up breaking out in a Keratosis Pilaris type of rash all over his trunk area. The only thing I can figure is its from the gluten he ate. Two weeks later, its still not gone. 

 

Before all this, I went to a holistic MD/ND doctor and requested a Genova Dianogtics CDSA stool test. i wanted to see what was going on in his gut. After the party I got his results back. One of the biggest concerns is his had elevated eosinophils in his stool (his level was 11.2 and the max should be 7). The Dr was very concerned about this. Basically his body is fighting something off as if its an infection, but we don't know what. Also his pH level was really acidic (4.2 when it should be between a 6-7).

 

The doctor's first line of attack is its a parasite. I find this highly unlikely but I am retesting the parasite part of the Genova stool test to confirm. If its not that, then he suspects a food related allergy, such as celiac, crohn's disase, etc. 

 

In conclusion, I am trying to figure out what would be the best testing for him to figure out whats causing the undigested food. I have researched Cyrex, Genova, and Entero lab. He has never had any food allergy testing done (blood or skin prick). 

 

Here are my questions:

 

-would the blood test be accurate on him? Since he has only had one gluten exposure (other than he gets it everyday through me breastfeeding). 

 

-would jumping to a celiac test be necessary at this point? or should I stick with general allergy testing? 

 

-As anyone had elevated eosinophils in stool? I know this can be related to EGID and celiac but he honestly has no symptoms of either disease. 

 

Thank you for an insight you can give me, my doctors appt is tomorrow afternoon. 

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Celiac can be "silent" and not be diagnosed until blood panel and endoscopy with biopsy is done. Your child is showing symptoms of something going on and is possibly Celiac. (an endoscopy with biopsy can also test for EGID, H. Ployri infection, parasites and other possible conditions.)

 

Your child needs to keep eating a "normal" diet.  If you eliminate the "trigger" for Celiac or EGID it will not cause the damage and will not be diagnosed.

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My youngest's primary source of gluten was via breastmilk and she tested off.the.charts. in her celiac lab.

 

I'd get the blood test sooner rather than later.  It's easy enough to do and will give you a ballpark of where he stands.

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    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
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