Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New Here - Ongoing Symptoms After Glutening
0

55 posts in this topic

Hello, all! I'm "new" but have lurked here, many times, trying to figure out what was wrong with me. So, thank you, to the powers that be and the posters for providing this resource. :)

 

I have been gluten-free since about mid-July. I had gone Low FODMAPs after a particularly evil bout, slipped a few bites of cookie and ended up in the bathroom for several days.

 

I made an appointment with a GI doc, but as I was suffering from a lack of funds (always am, it seems), I bowed out on the scopes. *sigh*

 

I couldn't bring myself to eat gluten, except for on the occasion I needed to prove to myself that it is the culprit. I needed this, because the gluten-free diet is so exorbitant, when you don't know what to eat, except for premade items.Every time, I'd get sick. I was at my dad's house, and they didn't have much that I could eat. My stepmother, half-jokingly, said she had the mini Snickers candybars in the fridge. I read the package, picked out what I could have and liked, and munched a few down, just to have something to eat. 

 

For a time, I thought I was able to have milk, but without gluten in the diet, I was noticing some mild issues with it. I seemed to have a threshold, though, rather than an out-and-out reaction. 

 

Fast-forward to Halloween.I bought the same package for my trick-or-treaters, but ended up not being at home, since I have kids and took them to their parties. So, I started munching on these things. A few Snickers. some Midnight Milky Ways, 3 Musketeers...regular Milky Ways (totally forgot). I also had a spinach dip the maker's celiac father can eat, and corn tortilla tacos, which might have contained wheat modified food starch or maltodextrin or something. I can't remember. (I think it was Old El Paso.)

Oh, GAWD! I was sick. Not so much in the "running" way, if you know what I mean (a little the first day after), but the OTHER way. BAD! I even took a laxative, which I rarely do, unless it's B.A.D.. I started juicing vegetables. My appetite had dropped so low, the heartburn kicked up. Milk? Forget it. Started juicing fruits (more like making dairy-free smoothies). Mostly liquid diet, as I had cut down even the gluten-free bread products. I was bound up for a week, and not just not going, but hurting and not going, being able to FEEL that stuff isn't getting through. (Aren't these intro's just peachy? O.O ) Had other symptoms, too: backache, fatigue, itchiness, joint pains, dehydration, dry eyes.

 

My friend suggested the saltwater cleanse, which just seemed extreme, but I was nearly desperate enough. Finally, things started working again.  

It's been about another week, now, I tried milk again. Did okay on a little. Tried more. NOPE! Got a little loose. Now, I'm starting to cramp in the middle of my abdomen. My toilet product is looking strange. Yesterday seemed to be slight steatorrhea, I've also had some strange sensations in my leg, tingling at about the knee, with weakness, and I felt it in the arm on the same side (right), too. So, tonight, I have tummy rumblies (I haven't had milk, but did have a slice of cheese, in a totally DUH moment as I made a gluten-free sandwich earlier--It was provolone, c'mon ;p ). Toilet + Mayo Clinic says possible gall bladder/bile trouble. (Aren't these website maddening?)

Any ideas, besides, "Go see the doctor there is no way you can afford, right now?" I know it's coming to that, but I'm trying to stave it off until I can afford it. And yes, I know how ironic that is.

 

Thanks. :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

I think it's kind of obvious what your trouble is.  You seem to be getting glutened regularly enough to keep these reactions going.  If in the next 6 months you feel you will be able (from a money standpoint) to see the Doc then start eating a regular gluten diet now so Celiac testing will be accurate.  If you feel that you know that gluten is the culprit then you may decide to go the self-diagnosis route and become 100% gluten free.  It sounds as if you may need that Celiac diagnosis to remain completely gluten free since you keep testing your theory.  If you've been lurking on the site, then you have read all the nasty things that come with Celiac.  You've also most likely read how diligent you need to be to successfully eat gluten free.  Whichever decision to go with, we can help you get there. 

 

Colleen

0

Share this post


Link to post
Share on other sites

I think Colleen may be right. If you pursue testing, the endoscopic biopsy requires only 2-4 weeks of gluten (about 2 slices of bread per day) whereas the blood tests need 8-12 weeks for accurate testing. If you can stay away from all gluten, even the tiny amounts in some candies and sauces as well as being more careful eating away from home (bring your own food), then testing isn't as needed as you are already treating it by being gluten-free.

 

Constipation can be a sign of celiac disease. D might be more common but I would guess about a third of celiacs deal with C. I know it can get pretty uncomfortable.  :( Nuts and coffee helped me a bit. Exercise can be helpful... and for some reason the library seemed to help me.  LOL  :lol:

 

Best wishes.

0

Share this post


Link to post
Share on other sites

Sounds like celiac to me.  The gluten-free diet should not be expensive.  Most of your diet should be whole foods, not processed foods.  Whole foods cost the same for us as they do for anyone else.  Processed foods are more expensive, but you don't need to eat them.  There are some processed foods that are made with limited ingredients and are not expensive.  Like Mission corn tortillas and chips.  "Natural" kinds of peanut butters, frozen veggies, even some canned veggies.  The fewer ingredients the simpler it is to figure out if there is gluten in it.

0

Share this post


Link to post
Share on other sites

Thank you for the welcome and support. I'm sorry I haven't gotten back before now. I was dealing with my daughter being tummy-ill yesterday. I broke down, given that this happens often with her. She wakes up in the early morning with stomach ache and she often gets nauseated.

 

PCP--> referred to GI doc.---> Script for bloodwork. We did that this morning. 

 

The GI ordered metabolic panel, thyroid check, and IgA. She didn't put on there the anti-gliadin Ab, though, which surprised me a little bit. 

 

I have learned that eating the processed GI foods isn't really good for the padding on the middle. ha! They're just a denser form of calories. I like to have a Lara bar on the run. I'm a tutor, so this happens a LOT! I've even had to make "emergency" calls. So, I think I would benefit, greatly, in reading about how others handle things on the run, especially if you guys are also short on time.

 

Again, I thank you all for your hellos and information and support. :)

0

Share this post


Link to post
Share on other sites




I usually have (home made) trail mix or Lara bars with me. If I am out for many hours I will sometimes bring a veggie and fruit smoothie. Hard boiled eggs are handy to ave in the fridge, and most nuts and fruit or veggies travel well.

0

Share this post


Link to post
Share on other sites

Now that it's not the middle of the night, I have time for a proper response.

gluten-free Lover,

I'm having the compulsion to test the theory less and less. lol. The problem, lately, is trying to get my children on board with being meticulous about keeping the gluten-free and regular utensils and baking tools separate. I think we'll need my daughter's diagnosis to make my kitchen completely gluten free. :( Besides for that, I'm not sure what to do. 

 

I'm still trying to decide if it's better to have the diagnosis or to go the DIY route. I do okay with it, but as I said, my children aren't very thoughtful sometimes, which makes for problems. As I'm a single mom, I need them to be diligent, and they're not there yet. 

 

NVSMom,

 

I experienced the "library effect," too! :o Maybe it was the coffee. ;p Every morning (or nearly), on my way to the university, I would stop for coffee, and by lunchtime, I was RUNNING to the restroom. The last time I had the C, I did situps, everyday, which had helped before. Even though I had taken the laxative, juiced everything in sight, drunk water until you could see the waterline in my eyeballs, I still had no relief. :( It was BAD. A time before, my dad suggested I could have a blockage. My stepmother has severe AI/GI problems, too, so I suppose he would know. I didn't get it checked, and I got relief eventually, thank goodness. I'm keeping a watch, and I know the signs.

Anyway, thank you for saying that about C versus D. I'm not underweight, either (far from it!), so I don't fit what most people think as Celiac, either. 

I like the idea of carrying fruits with me. I've been trying to figure out how to fit my trunk with a cooler or two, but then, even though I am gone for long hours sometimes, I'm not driving like I was in my first semester as a tutor. The cooler seems like more of a luxury now. haha! 

 

GFinDC,

 

I agree. At first, I missed the foods I could no longer have. I tried to replicate them without gluten, Searched recipes, gave in to cravings. Booo...

Of course, the effects of a few months of this have not been kind. heh. But I made the decision that if I had to have something "starchy" I would limit my intake and supplement the calories with raw foods and meats (cooked!). 

Thank you for the information about the Mission corn chips and tortillas. I actually seem to tolerate corn more than rice, and I've always had some issue with oatmeal. (My mom said she would vomit oatmeal up, if she tried to eat it in the morning.) 

I decided, when I went on the Low FODMAPs diet, that I would rather have celiac disease than IBS. :( Either are bad, but celiac disease focuses on gluten, while the Low FODMAPs diet has all of those sugars to look out for. Giving up mangoes and mushrooms, AND wheat and other foods? No thanks! I would rather focus on eliminating gluten. 

Again, thank you, ALL, for the responses, and I'm sure I will enjoy learning more from and getting to know all of you.

0

Share this post


Link to post
Share on other sites

Anyway, thank you for saying that about C versus D. I'm not underweight, either (far from it!), so I don't fit what most people think as Celiac, either. 

 

Before going gluten-free I never experienced D unless I had a severe stomach bug. Now it is a fairly common occurrance... I don't fit the celiac mold either... and I've lost a good 20+lbs without trying after going gluten-free. I gain weight whem I don't feel well as I eat for comfort and to find energy. When I am well, food isn't as needed. Go figure, eh?  LOL

0

Share this post


Link to post
Share on other sites

Just wanted to add that you should beware the chocolate miniatures.  The miniatures are often made with run-off chocolate - meaning the chocolate could have been used to make a different type of candybar, one with gluten in it, and then the extra run-off chocolate is used to make the miniature - thus contaminating the miniature.  So a full-sized Snickers is safe, but you're taking your chances with the Snickers miniature.

0

Share this post


Link to post
Share on other sites

Hi Justcricket,

 

I don't have kids myself, but I hear they can be a lot of fun! :)  Or something like that.  Anyhow, the little rug rats may not be good at keeping gluten cleanliness top most in their minds like you said.  That's a good reason to consider making the whole house gluten-free.  If there is no gluten in the house, they won't be spreading it around.

 

There are also Food for Life brand rice tortillas, which are larger than the corn tortillas.  They are usually in the freezer section.  Rudi's makes gluten-free tortillas also.

 

Getting tested now is much easier than getting tested for blood antibodies later.  If you wait until you have been gluten-free for a while, the antibodies decline and the tests are no good.  You don't have to get tested of course.  But if you decide to get tested later, you will need to do a gluten challenge for possibly 3 months of eating gluten every day.  That can be very unpleasant and not everyone can make it through that without serious symptoms developing.  Basically, it sucks to get tested later, so don't assume you will do it.  Which is fine!  If you know it makes you sick, don't eat it!

 

I wouldn't worry about self testing yourself.  Many of us make plenty of mistakes at the start of the gluten-free diet.  It is hard to avoid gluten when you aren't used to doing it.  And even a small crumb can cause a reaction.  So there plenty of chances to find out you are reacting by accident.  Your kids may develop celiac disease also.  Celiac  is passed genetically, but not necessarily activated.  Many more people have the genes for it than actually develop the active condition.  But it is a good idea to keep it in mind as the kids grow.

 

0

Share this post


Link to post
Share on other sites

Ugh! I didn't know that about the mini's. Why do they put the ingredients on the bag, then? I know, I know, it's not labeled "gluten free." lol.And, I guess it's a safe bet, since they're run in the same facilities. I knew I was taking a chance, but never reacted before I had the mini Milky Ways. 

 

Thanks for pointing that out, NGCooties. Love your moniker, by the way. ;p

 

GFinDC,

 

I thought I picked up some of those tortillas, but I put them back and got the burger buns, instead. Just my luck that it ended up being the tortillas I wanted. lol.

 

I have seriously considered making the whole house gluten-free. I have to learn to cook all over again, and I guess, taking a heaping helping of patience until we're completely converted. That's actually proving to be a long haul, anyway, so I'll stay as well as I can, until we're in the clear. 

 

Just a word about my background. I'm a private tutor, now, but I got my education in Biotechnology. I think I saw here (I'm hoping) that one or a few among us went into similar fields? At any rate, the methods for avoiding cross-contamination in the lab may help me in the kitchen. lol. Perhaps, too, I can find ways to clean up my kitchen in the meantime and for the future (when my kitchen is 100% gluten-free), While I know that denaturing proteins isn't enough, perhaps I can beat the...stuffing out of any residual gluten that happens to be lurking in there somewhere. (Notice my avoidance of a pun? ;p ) 

I had loads of fun turning the seasoning on my cast iron skillets into ash. ;p Now, there, the kids and I have had success! :)

0

Share this post


Link to post
Share on other sites

I don't know about this run-off chocolate :fact".  I eat Snickers of various sizes and have not had issues.  In the case of Snickers & M&Ms, from Mars, the company has been labeling things made on shared equipment with a "may contain wheat" statement.  For some reason, my computer isn't letting me copy links.  Its mentioned in the gluten-free Halloween candy link I posted before - on Celiacdisease.about.com

0

Share this post


Link to post
Share on other sites

milky ways are not on the safe list, mini or not.  m&m mars is pretty good about labeling their products, so if it says it may contain wheat, i wouldn't eat it.  i don't eat too much chocolate because i have a secondary sensitivity to soy, and soy lecithin makes my insides wonky.    just make sure you check the labeling :)  i have been to the m&m mars facility - it is positively pristine - i used to deliver paychecks and if i brought my kids with me, we walked off with tons of 'mistakes' <bags of candies that were not u[p to their standards.  you couldn't tell anything was wrong with them (maybe the 'm' was off center or misprinted or something) my kids loved going up there!   so, the idea that they are putting 'run-off' chocolate into stuff just willy nilly is a little hard to believe.  some manufacturers will, around high-candy demand holidays (like halloween) sub out their novelty production, but it still should be labeled.  hope you feel better :)

0

Share this post


Link to post
Share on other sites

Just wanted to add that you should beware the chocolate miniatures.  The miniatures are often made with run-off chocolate - meaning the chocolate could have been used to make a different type of candybar, one with gluten in it, and then the extra run-off chocolate is used to make the miniature - thus contaminating the miniature.  So a full-sized Snickers is safe, but you're taking your chances with the Snickers miniature.

 

I have never heard of this before. Is this something the company has shared on its website? 

0

Share this post


Link to post
Share on other sites

If anything was verification that it's gluten that I should be worried about, it was the surprise I got after having the Milkways. Good I like the Midnights better. ;p 

 

While going through the candies and the kids' hauls, I found Whoppers. I've never been able to eat many of them. Even as a kid, they would make me sick. Telling? Maybe so. Anything malted (unless it was in a drink or something), made me feel icky, after. The icky factor increased with the more I had. Before realizing my sensitivity, I decided I could eat one little Whopper a year, and be just fine. lol. Maybe not. 

 

Thanks for the information. I will definitely keep my eyes open and won't make the same mistake regarding Milkways, again! (Except for maybe the Midnights. ;p )

0

Share this post


Link to post
Share on other sites

The original Milky Way is off limits, but a couple other varieties are ok:  http://celiacdisease.about.com/od/glutenfreefoodshopping/a/GFcandies.htm

 

I know this isn't the original place I read about the chocolate miniatures, but Hersey's miniatures are listed on the "not gluten-free list":  http://glutenaway.blogspot.com/2012/10/gluten-free-candy-list.html

I'm still looking for the other stuff I read.  Once I know it's on the off-limits list I don't bother to keep documentation on it...

0

Share this post


Link to post
Share on other sites

The original Milky Way is off limits, but a couple other varieties are ok:  http://celiacdisease.about.com/od/glutenfreefoodshopping/a/GFcandies.htm

 

I know this isn't the original place I read about the chocolate miniatures, but Hersey's miniatures are listed on the "not gluten-free list":  http://glutenaway.blogspot.com/2012/10/gluten-free-candy-list.html

I'm still looking for the other stuff I read.  Once I know it's on the off-limits list I don't bother to keep documentation on it...

 

 

I think I may have first read about the danger of the minis on this forum... http://www.celiac.com/gluten-free/topic/77321-are-hersheys-miniatures-gluten-free/

0

Share this post


Link to post
Share on other sites

Ok... now I'm obsessing.  I just wrote an email to the Mars people.  I'll let you all know what I find out.

1

Share this post


Link to post
Share on other sites

LOL! I just got off the phone with Old El Paso. I accidentally picked up the soft and hard pack, instead of just the hard shell pack. I know I'm taking a chance, anyway, but I read that Old El Paso is one of the good ones. Plus, I ran today, and if I don't make exceptions, I'll be out of food money in a week.

 

He's going to give me a call back. I'll share what I find out.

0

Share this post


Link to post
Share on other sites

I think I may have first read about the danger of the minis on this forum... http://www.celiac.com/gluten-free/topic/77321-are-hersheys-miniatures-gluten-free/

But that "run-off" statement.....That's a thought a former member expressed, not a fact.

 

 

The run off chocolate may have been used to coat the gluten containing chocolate bars too, at least that was the theory from what I have read.

0

Share this post


Link to post
Share on other sites

NoGlutenCooties, Please let us know what they say at M&M/Mars. :) I'll post what I hear from Old El Paso. He's going to call me, though, so I won't have the benefit of copying and pasting from an email.

0

Share this post


Link to post
Share on other sites

LOL! I just got off the phone with Old El Paso. I accidentally picked up the soft and hard pack, instead of just the hard shell pack. I know I'm taking a chance, anyway, but I read that Old El Paso is one of the good ones. Plus, I ran today, and if I don't make exceptions, I'll be out of food money in a week.

 

He's going to give me a call back. I'll share what I find out.

 

 

Are the soft tortillas wheat or corn?  Plain corn ones should be fine.  Does it contain a powdered spice packet?  Just read the ingredients, it will list if it has wheat.

0

Share this post


Link to post
Share on other sites

But that "run-off" statement.....That's a thought a former member expressed, not a fact.

 

 

The run off chocolate may have been used to coat the gluten containing chocolate bars too, at least that was the theory from what I have read.

 

True.  But half the stuff we "know" about Celiac has come from someone's own analysis/thoughts.  If we waited for hard "facts", half of us would be dead before the medical professionals figured this out.

:blink:

0

Share this post


Link to post
Share on other sites

Are the soft tortillas wheat or corn?  Plain corn ones should be fine.  Does it contain a powdered spice packet?  Just read the ingredients, it will list if it has wheat.

 

It was the seasoning packet I was worried about. It has maltodextrin, so that's why I called. The package says "Contains Wheat" of course, because of the flour tortillas. I wanted to be sure the seasoning packet was fine, and I would avoid the flour tortillias.

0

Share this post


Link to post
Share on other sites

Maltodextrin is gluten-free:

 

Maltodextrin

Maltodextrin is gluten free. It can be made from a variety of starches, including corn, potato, rice or wheat. However the source does not matter because maltodextrin is such a highly processed ingredient that the protein is removed, rendering it gluten free. If wheat is used to make maltodextrin, "wheat" will be appear on the label. Even in this case, the maltodextrin would be gluten free.

http://www.glutenfreeliving.com/nutrition/ingredients/

 

That said, many people (especially Celiacs) are sensitive to processed food because of all the additives and crap that's in it, gluten or not.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,342
    • Total Posts
      917,393
  • Topics

  • Posts

    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
    • Could this possibly be related to celiac or a gluten intolerance?
      If you did actually have celiac disease, it can take weeks, months and years to recover from some of your symptoms, especially neurological ones.   Best to get screened for celiac disease.  It's a simple blood test.  Any medical doctor can do it.  But a GI doctor is needed for a diagnosis, since an endoscopy is part of the diagnostic procedure.  BUT you have to be consuming gluten to get accurate results! http://www.cureceliacdisease.org/screening/ http://gi.org/guideline/diagnosis-and-management-of-celiac-disease/ Keep on researching.  I wish you well!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,478
    • Most Online
      1,763

    Newest Member
    Andrew Miller
    Joined