Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Long Do Symtoms Last?
0

4 posts in this topic

Hello :)

 

I'm new to the forum. I have a question about the duration of symptoms once you have been 'glutened'.

 

I have been gluten free for 11 years (I'm 27) and have recently had a bloodtest for celiac disease - I'm still awaiting the results.

 

About 3 weeks ago I ate a piece of bread in preparation for the test, in order to create the antibodies needed for diagnosis. I had immediate effects including sore joints, awful nausea, stiff legs, abdominal cramping - I began to experience these 45 minutes after consuming the bread (I timed it).

 

Over the last 3 weeks have had terrible depression (very out of character for me), crippling anxiety.. and although these have thankfully now subsided I still have abdominal pains each late afternoon/early evening and in the morning. With this pain comes fatigue. Furthermore I am still experiencing joint pain - including pains in my hip/pelvic region and my fingers.

 

I understand from wider reading that the symptoms of celiac disease are often quite unique to the individual; but I wondered if anyone else has had similar experiences to mine.

 

In particular, is it 'normal' to still have abdominal pains 3 weeks after eating gluten?

 

Jenny

0

Share this post


Link to post
Share on other sites


Ads by Google:

One piece of bread after 11 years of being gluten-free is nowhere near enough gluten to get an accurate test. They say you need to eat gluten every day for three months before you get tested.

 

I'm curious why you were tested after 11 years. You obviously knew gluten bothered you. (If you weren't sure before you are now!) Quite a few of us here never got a doctor's diagnosis, but we know we have it. In my case, even my doctor has agreed that based on family history (my mother had an official diagnosis), and the fact that my symptoms resolved on the gluten-free diet, that I do indeed have celiac.

 

As for the symptoms, it is true that it varies with everyone. Some folks feel better in a few days, some are sick for weeks and weeks. Even people who were "asymptomatic" before going gluten-free usually get sick upon gluten exposure after thay have been gluten-free for a while.

 

I hope you are feeling better soon. :)

0

Share this post


Link to post
Share on other sites

Hey Jennifer,

 

That's rough! I do get symptoms that last at least that long, I'm finding (I've been gluten free since getting diagnosed this past June, but unfortunately I've had a good number of mishaps since then to learn all about how my body reacts, ugh). The worst part for me is the emotional part like you described - just a horrible sense of anxiety/despair/hopelessness that's severe enough to nearly keep me in bed for 2-3 days, and then gradually continues to lift over about 2 weeks. The gastro stuff (pain, discomfort, and all kinds of grossness) tends to also be worst the first few days/week, but that hangs around for me even longer - I'm currently about 3 weeks post-glutening and though mentally I feel like a human being again, my system's definitely still out of whack. From past experience I'll probably be back at "healthy" in another week or two.

 

It sounds like you've had a really long time to get practiced at eating safely gluten free, though, so I hope once the symptoms from the bread pass - however long it takes - you'll be better than I am yet at keeping yourself healthy.  :)

0

Share this post


Link to post
Share on other sites

yes, one piece of bread after 11 years gluten-free is not going to give you a positive blood test, but it WILL (as you just found out) give you a doozy of a glutening. If you haven't had problems for a long time, then your gut just went from healthy and happy to "WTF did you just feed me!?" and it going to take a while to recover. I'd say at least a month before you're back up to snuff.

 

Though the testing was probably pointless, I think your reaction to that one piece of bread is plenty of evidence that you definitely have Celiac or at least NCGI and should never touch gluten again. Tell your doctor what happened, declare yourself officially gluten-free for life, and don't worry about having an official stamp of doctor tested approval.

This is the reason why I never went back for testing after going gluten-free, because after feeling better, eating gluten again would put me out of commission for weeks. My mom was brave (crazy?) enough to do it, and has had problems with DH ever since (Don't do it, she told me). My response to the diet is enough for me.

 

In any case, welcome to the Forum! Hopefully we can help get you back on your feet and continue your gluten-free life healthy and happy.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,364
    • Total Posts
      920,549
  • Topics

  • Posts

    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
    • Hi Beachgrl, We have had members with microscopic colitis before, usually in addition to celiac disease.  Have you been tested for celiac disease?  The reason I ask is, it is much better to be tested for celiac before starting the gluten-free diet.  The primary tests for celiac are to detect antibodies to gliaden in the bloodstream.  Those antibodies start to decline when a person stops eating gluten, so the tests become useless. There is no reason a person can't have more than one digestive system disease.  So it is smart to be tested for celiac disease if you can get the testing arranged.  Any change in symptoms after stopping gluten is an indicator that gluten is causing a reaction of some kind.  It could be celiac, or it could be non-celiac gluten intolerance, (NCGI).  There aren't any reliable tests for NCGI yet. Welcome to the forum!
    • I have microscopic colitis. Having a bad flare of D.  On Budesonide for first time for this. It's helping some- only on it a week. Do you think gluten free would help even if tested negative a few years ago?  Was gluten free yesterday and no BM changes. Even had cramps this AM that wasn't really having before. Thank you!!
    • Do you want to tell us the name of it ans where it is located.  maybe someone else will be looking for a restaurant there. Also, it is very helpful if you go to Find me Gluten Free and review it.
    • Hi. Im currently under consultants at my hospital,  and have just been for a blood test to test for celiacs. My symptoms are.... Low weight (8stone and 5ft6tall) Joint pain,particularly my hips and lower back  Severe pain in my gall bladder area which happens spontaneously... Especially after eating foods containing gluten.  When i have foods with wheat in i pain in my  right side just under my bottom rib, i become a bit spaced out and cant focus on anything. Also get diahorrea aswell. I recently contracted C-Diff and was in hospital for 4 days very poorly. Im 29years old (female) and the doctors r trying to work out what is wrong with me. I have always struggled to gain weight,  even after having 2 children i am still only 8stone. I was just wondering if u think i could have celiacs?  The pain in my side has been on and off for 7years! And the last 3years its been severe. And it definitely comes on as soon as i have gluten/wheat.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined