Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How To Live With Those Who Don't Have Celiac
0

9 posts in this topic

My name is Jon, I'm 40 and this is my first post.  I was recently diagnosed with Celiac.  I'm still trying to figure out the in and outs of this disease, so it has been frustrating for me.  When I received the diagnosis I said to myself, "big deal, all I have to give up is wheat bread."  The doctor at that point told me it was a little more complicated than that.  I was shocked at how many things gluten is in, even some prescription drugs.  

 

I'm scheduled to see a nutritionist next week, but until then, I've been reading everything I can get my hands on.  At this point, I'm extremely paranoid about what I'm eating.  I have just gone through 7 weeks of nasty symptoms and I don't want to consume any gluten.  Since I know so little about the disease I've been buying boxed "Gluten Free" foods (I generally don't eat a lot of processed stuff).  

 

My question is this.  How concerned should I be about my household family members and the cookware, utensils, plates, toaster, etc. that we use?  My family eats a lot of products with gluten in it.  Do I need to go buy new stuff for me only?  Can I use the toaster?  What about the colander that we generally put whole wheat spaghetti in?  Can gluten get on plates?  I have no idea what I'm doing, so any help would be much appreciated.

 

I look forward to talking to you.

 

Thanks,

Jon

 

 

0

Share this post


Link to post
Share on other sites


Ads by Google:

hi, jon - welcome to the forum.  most of us were clueless when we were first dx'd, so don't feel alone!  there is a thread on the 'coping with' section of the forum called 'newbie 101' - go ahead and read it.  it has alot of helpful info that you won't get from a dr or nutritionist.  you and your family will have to make adjustments but living in a shared household is do-able.  i have a shared house/kitchen, although my husband (who is not celiac) eats gluten free meals, mostly.  (sometimes he gets bread, but he has to keep it quarrantined lolz)  it was a pain at first, but it becomes second nature.  certainly better than being sick all the time!  good luck!  :)

0

Share this post


Link to post
Share on other sites

Hi Jon!

I am learning the in's and out's to this diet myself and learning more everyday.

I live with gluten consumers and it has not been easy so far. I am the main cook in the house so I have control over some of the meals. Here's what I just did to prep my own kitchen recently... http://www.celiac.com/gluten-free/topic/105006-nesting/?hl=nesting

 

You should definitely read the newbie 101 thread Arlene mentioned... http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  Tons of good tips and advice there. You'll need to spend some time reading and learning where there is hidden gluten and how and where cross contamination occurs. 

 

You can ask questions as you go. There is a wealth of experience to draw from here and everyone is very helpful!

0

Share this post


Link to post
Share on other sites

hi, jon - welcome to the forum.  most of us were clueless when we were first dx'd, so don't feel alone!  there is a thread on the 'coping with' section of the forum called 'newbie 101' - go ahead and read it.  it has alot of helpful info that you won't get from a dr or nutritionist.  you and your family will have to make adjustments but living in a shared household is do-able.  i have a shared house/kitchen, although my husband (who is not celiac) eats gluten free meals, mostly.  (sometimes he gets bread, but he has to keep it quarrantined lolz)  it was a pain at first, but it becomes second nature.  certainly better than being sick all the time!  good luck!  :)

Thanks for pointing me to the Newbie 101 section; I didn't know where to start or even where to post.  Last year I went through being diagnosed with Diabetes, so I'm used to change.  Hopefully dealing with celiac disease will become as second nature as diabetes has.  It's nice to meet you and thanks for your help.  

0

Share this post


Link to post
Share on other sites

Hi Jon!

I am learning the in's and out's to this diet myself and learning more everyday.

I live with gluten consumers and it has not been easy so far. I am the main cook in the house so I have control over some of the meals. Here's what I just did to prep my own kitchen recently... http://www.celiac.com/gluten-free/topic/105006-nesting/?hl=nesting

 

You should definitely read the newbie 101 thread Arlene mentioned... http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  Tons of good tips and advice there. You'll need to spend some time reading and learning where there is hidden gluten and how and where cross contamination occurs. 

 

You can ask questions as you go. There is a wealth of experience to draw from here and everyone is very helpful!

I just read your previous post about how you are handling your kitchen.  Really good information.  I would have never thought about a lot of those things.  Thanks so much for your help.

0

Share this post


Link to post
Share on other sites




hi jon and welcome!

 

before you spend money on your nutritionist appointment I'd suggest visiting this page http://www.eatright.org/programs/rdfinder/

 

make sure you see a registered dietician (RD).  In addition, at the above link make sure the RD you see has both experience in diabetes and gluten intolerance/celiac disease.  the link above will allow you to search by expertise.  If the RD you are scheduled to see doesn't have specific expertise in the two areas, I'd suggest canceling the appointment and finding one who does.

 

hope this helps!

0

Share this post


Link to post
Share on other sites

hi jon and welcome!

 

before you spend money on your nutritionist appointment I'd suggest visiting this page http://www.eatright.org/programs/rdfinder/

 

make sure you see a registered dietician (RD).  In addition, at the above link make sure the RD you see has both experience in diabetes and gluten intolerance/celiac disease.  the link above will allow you to search by expertise.  If the RD you are scheduled to see doesn't have specific expertise in the two areas, I'd suggest canceling the appointment and finding one who does.

 

hope this helps!

Honestly I don't know if she does or not; you make a really good point.  I'll contact her and make sure.  She helped me with IBS (which was what the doctor initially thought it was), but I'm not sure if knowing about IBS would translate into Celiac nutrition.  And I'll check out the link.  Thanks so much for your help.

0

Share this post


Link to post
Share on other sites

Hey Jon,

 

I also suggest reading the book Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler.

Tons of excellent advice by 50 celiac experts--on everything from the diet to living with WEs to nutritional advice to what the disease is all about. This book is awesome. Trust me!

 

Here is another helpful article on tips for living with WEs (wheat eaters) and how to avoid cross contamination in the kitchen and in  your home.

 

 

http://www.todaysdietitian.com/newarchives/100713p16.shtml

 

Anything else you need, just holler. And "IBS" is not the same as celiac and I think you will be pleased to see that "IBS" go away on the gluten free diet. My "IBS" surely did! :)

 

If I were in your shoes, I'd find an endocrinologist's RD who can help you figure out the best

diet for your diabetes and celiac.  Call the endo's office or your local hospital.

 

You can do this. Welcome to the forum and the celiac family. 

IH

0

Share this post


Link to post
Share on other sites

Hey Jon,

 

I also suggest reading the book Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler.

Tons of excellent advice by 50 celiac experts--on everything from the diet to living with WEs to nutritional advice to what the disease is all about. This book is awesome. Trust me!

 

Here is another helpful article on tips for living with WEs (wheat eaters) and how to avoid cross contamination in the kitchen and in  your home.

 

 

http://www.todaysdietitian.com/newarchives/100713p16.shtml

 

Anything else you need, just holler. And "IBS" is not the same as celiac and I think you will be pleased to see that "IBS" go away on the gluten free diet. My "IBS" surely did! :)

 

If I were in your shoes, I'd find an endocrinologist's RD who can help you figure out the best

diet for your diabetes and celiac.  Call the endo's office or your local hospital.

 

You can do this. Welcome to the forum and the celiac family. 

IH

Thanks for the great advice!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,343
    • Total Posts
      920,483
  • Topics

  • Posts

    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
    • Had my scope today. Dr said my esophagus is damaged and stomach inflamed. Waiting on biopsy results. Taking protonic and flagyl and he said to go ahead and try cutting gluten out to see if that helps. Thanks for the feedback everyone! 
    • Welcome to the club you never wanted to join! The good thing about this club is that you don't have to take any pills, get radiation or chemo, or stick yourself with a needle every day. Things could be much worse than this. Does your brother live close? If so he could go to your same savvy doc. That would be great! Also what about your mom?
    • Hi There! I am Aly and I have suffered seriously for about 4 years with an huge increase in symptoms. I just recently started a gluten free diet a few months ago and I am sure I make mistakes because I feel it when I do. Your symptoms are a lot like mine and after many blood tests and visits to Neurologist still no answers. They diagnosed with relapse/remission MS for all these years and now say its not that. It's Auto-immune but no answers. They never tested me for Celiac's but A friend suggested I try going gluten free. Here are my symptoms below.  See if you relate or if anyone can relate. Heat Sensitivity, Nerves jumping in face and eyes, sometimes pain and redness around the skin of eyes, kinda pinkish.... occasional trimmers coupled with loss of coordination and balance along with in and out slurred speech, a other varying waves of relapse include Extreme fatigue and a huge fog comes over me. I can't sit up or stand without getting dizzy and feel like passing out. For a few days of the relapse It's just bed rest. The other parts are off and on having to use cane. Up and down, symptoms change but eventually the waves grow dim and I go back to being normal for a while. Things seem to get exacerbated when I do to much like go more than 4 -5 hours without taking a break and resting, lifting anything to heavy...so it seems to be straining things lead me to relapse. I used to be go go go...on the run but life has changed and I find that although I am eating gluten free and being careful not to relapse, I entered another a month ago and I am having to get IV steroid infusion tomorrow to break the cycle of this one. Just when I think I am beginning to feel better and go do something I go right back down. Its seems Gabapentin, Baclofen, and LOTS of rest only get me where I need to be again. It's frustrating. I wanted to share as well so that we can combine forces to get some answers! I have decided to go to a Allergy Clinic of sorts to try and get tested for environmental and food allergies. I am sorry you do not have funding for care. See if there is local clinic that can at least run some preliminary blood work on you. I am not sure if you can see one now in your state being 17 but there is usually a 211 or a 311 line in most cities that will give you the list of places you can go for free or on sliding scale. See if they will run any allergy panels as well. I have found that we have to be proactive in our own care because sometimes there is no simple answer and the more we talk one another with the research sometimes we do on own, we find out more than 4 years of going to a doctor could ever tell you. Thanks for all your input here. I look forward to being a member and helping where I can! I will send updates as I get them. Blessings to you all! Aly
    • Garlic Mashed Cauliflower. Glazed Salmon. Gluten-Free Bagels. Graham Crackers & Vegan Pumpkin Cheesecake Dip. Grilled Chicken Fajita Kabobs. View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,414
    • Most Online
      1,763

    Newest Member
    Vic40
    Joined