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How To Live With Those Who Don't Have Celiac
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My name is Jon, I'm 40 and this is my first post.  I was recently diagnosed with Celiac.  I'm still trying to figure out the in and outs of this disease, so it has been frustrating for me.  When I received the diagnosis I said to myself, "big deal, all I have to give up is wheat bread."  The doctor at that point told me it was a little more complicated than that.  I was shocked at how many things gluten is in, even some prescription drugs.  

 

I'm scheduled to see a nutritionist next week, but until then, I've been reading everything I can get my hands on.  At this point, I'm extremely paranoid about what I'm eating.  I have just gone through 7 weeks of nasty symptoms and I don't want to consume any gluten.  Since I know so little about the disease I've been buying boxed "Gluten Free" foods (I generally don't eat a lot of processed stuff).  

 

My question is this.  How concerned should I be about my household family members and the cookware, utensils, plates, toaster, etc. that we use?  My family eats a lot of products with gluten in it.  Do I need to go buy new stuff for me only?  Can I use the toaster?  What about the colander that we generally put whole wheat spaghetti in?  Can gluten get on plates?  I have no idea what I'm doing, so any help would be much appreciated.

 

I look forward to talking to you.

 

Thanks,

Jon

 

 

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hi, jon - welcome to the forum.  most of us were clueless when we were first dx'd, so don't feel alone!  there is a thread on the 'coping with' section of the forum called 'newbie 101' - go ahead and read it.  it has alot of helpful info that you won't get from a dr or nutritionist.  you and your family will have to make adjustments but living in a shared household is do-able.  i have a shared house/kitchen, although my husband (who is not celiac) eats gluten free meals, mostly.  (sometimes he gets bread, but he has to keep it quarrantined lolz)  it was a pain at first, but it becomes second nature.  certainly better than being sick all the time!  good luck!  :)

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Hi Jon!

I am learning the in's and out's to this diet myself and learning more everyday.

I live with gluten consumers and it has not been easy so far. I am the main cook in the house so I have control over some of the meals. Here's what I just did to prep my own kitchen recently... http://www.celiac.com/gluten-free/topic/105006-nesting/?hl=nesting

 

You should definitely read the newbie 101 thread Arlene mentioned... http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  Tons of good tips and advice there. You'll need to spend some time reading and learning where there is hidden gluten and how and where cross contamination occurs. 

 

You can ask questions as you go. There is a wealth of experience to draw from here and everyone is very helpful!

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hi, jon - welcome to the forum.  most of us were clueless when we were first dx'd, so don't feel alone!  there is a thread on the 'coping with' section of the forum called 'newbie 101' - go ahead and read it.  it has alot of helpful info that you won't get from a dr or nutritionist.  you and your family will have to make adjustments but living in a shared household is do-able.  i have a shared house/kitchen, although my husband (who is not celiac) eats gluten free meals, mostly.  (sometimes he gets bread, but he has to keep it quarrantined lolz)  it was a pain at first, but it becomes second nature.  certainly better than being sick all the time!  good luck!  :)

Thanks for pointing me to the Newbie 101 section; I didn't know where to start or even where to post.  Last year I went through being diagnosed with Diabetes, so I'm used to change.  Hopefully dealing with celiac disease will become as second nature as diabetes has.  It's nice to meet you and thanks for your help.  

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Hi Jon!

I am learning the in's and out's to this diet myself and learning more everyday.

I live with gluten consumers and it has not been easy so far. I am the main cook in the house so I have control over some of the meals. Here's what I just did to prep my own kitchen recently... http://www.celiac.com/gluten-free/topic/105006-nesting/?hl=nesting

 

You should definitely read the newbie 101 thread Arlene mentioned... http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/  Tons of good tips and advice there. You'll need to spend some time reading and learning where there is hidden gluten and how and where cross contamination occurs. 

 

You can ask questions as you go. There is a wealth of experience to draw from here and everyone is very helpful!

I just read your previous post about how you are handling your kitchen.  Really good information.  I would have never thought about a lot of those things.  Thanks so much for your help.

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hi jon and welcome!

 

before you spend money on your nutritionist appointment I'd suggest visiting this page http://www.eatright.org/programs/rdfinder/

 

make sure you see a registered dietician (RD).  In addition, at the above link make sure the RD you see has both experience in diabetes and gluten intolerance/celiac disease.  the link above will allow you to search by expertise.  If the RD you are scheduled to see doesn't have specific expertise in the two areas, I'd suggest canceling the appointment and finding one who does.

 

hope this helps!

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hi jon and welcome!

 

before you spend money on your nutritionist appointment I'd suggest visiting this page http://www.eatright.org/programs/rdfinder/

 

make sure you see a registered dietician (RD).  In addition, at the above link make sure the RD you see has both experience in diabetes and gluten intolerance/celiac disease.  the link above will allow you to search by expertise.  If the RD you are scheduled to see doesn't have specific expertise in the two areas, I'd suggest canceling the appointment and finding one who does.

 

hope this helps!

Honestly I don't know if she does or not; you make a really good point.  I'll contact her and make sure.  She helped me with IBS (which was what the doctor initially thought it was), but I'm not sure if knowing about IBS would translate into Celiac nutrition.  And I'll check out the link.  Thanks so much for your help.

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Hey Jon,

 

I also suggest reading the book Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler.

Tons of excellent advice by 50 celiac experts--on everything from the diet to living with WEs to nutritional advice to what the disease is all about. This book is awesome. Trust me!

 

Here is another helpful article on tips for living with WEs (wheat eaters) and how to avoid cross contamination in the kitchen and in  your home.

 

 

http://www.todaysdietitian.com/newarchives/100713p16.shtml

 

Anything else you need, just holler. And "IBS" is not the same as celiac and I think you will be pleased to see that "IBS" go away on the gluten free diet. My "IBS" surely did! :)

 

If I were in your shoes, I'd find an endocrinologist's RD who can help you figure out the best

diet for your diabetes and celiac.  Call the endo's office or your local hospital.

 

You can do this. Welcome to the forum and the celiac family. 

IH

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Hey Jon,

 

I also suggest reading the book Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler.

Tons of excellent advice by 50 celiac experts--on everything from the diet to living with WEs to nutritional advice to what the disease is all about. This book is awesome. Trust me!

 

Here is another helpful article on tips for living with WEs (wheat eaters) and how to avoid cross contamination in the kitchen and in  your home.

 

 

http://www.todaysdietitian.com/newarchives/100713p16.shtml

 

Anything else you need, just holler. And "IBS" is not the same as celiac and I think you will be pleased to see that "IBS" go away on the gluten free diet. My "IBS" surely did! :)

 

If I were in your shoes, I'd find an endocrinologist's RD who can help you figure out the best

diet for your diabetes and celiac.  Call the endo's office or your local hospital.

 

You can do this. Welcome to the forum and the celiac family. 

IH

Thanks for the great advice!

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
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