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How To Live With Those Who Don't Have Celiac


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#1 JHuffington

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Posted 17 November 2013 - 09:49 AM

My name is Jon, I'm 40 and this is my first post.  I was recently diagnosed with Celiac.  I'm still trying to figure out the in and outs of this disease, so it has been frustrating for me.  When I received the diagnosis I said to myself, "big deal, all I have to give up is wheat bread."  The doctor at that point told me it was a little more complicated than that.  I was shocked at how many things gluten is in, even some prescription drugs.  

 

I'm scheduled to see a nutritionist next week, but until then, I've been reading everything I can get my hands on.  At this point, I'm extremely paranoid about what I'm eating.  I have just gone through 7 weeks of nasty symptoms and I don't want to consume any gluten.  Since I know so little about the disease I've been buying boxed "Gluten Free" foods (I generally don't eat a lot of processed stuff).  

 

My question is this.  How concerned should I be about my household family members and the cookware, utensils, plates, toaster, etc. that we use?  My family eats a lot of products with gluten in it.  Do I need to go buy new stuff for me only?  Can I use the toaster?  What about the colander that we generally put whole wheat spaghetti in?  Can gluten get on plates?  I have no idea what I'm doing, so any help would be much appreciated.

 

I look forward to talking to you.

 

Thanks,

Jon

 

 


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#2 notme!

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Posted 17 November 2013 - 10:05 AM

hi, jon - welcome to the forum.  most of us were clueless when we were first dx'd, so don't feel alone!  there is a thread on the 'coping with' section of the forum called 'newbie 101' - go ahead and read it.  it has alot of helpful info that you won't get from a dr or nutritionist.  you and your family will have to make adjustments but living in a shared household is do-able.  i have a shared house/kitchen, although my husband (who is not celiac) eats gluten free meals, mostly.  (sometimes he gets bread, but he has to keep it quarrantined lolz)  it was a pain at first, but it becomes second nature.  certainly better than being sick all the time!  good luck!  :)


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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

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have a nice day :)

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#3 SkyBlue4

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Posted 17 November 2013 - 10:14 AM

Hi Jon!

I am learning the in's and out's to this diet myself and learning more everyday.

I live with gluten consumers and it has not been easy so far. I am the main cook in the house so I have control over some of the meals. Here's what I just did to prep my own kitchen recently... http://www.celiac.co...ing/?hl=nesting

 

You should definitely read the newbie 101 thread Arlene mentioned... http://www.celiac.co...ewbie-info-101/  Tons of good tips and advice there. You'll need to spend some time reading and learning where there is hidden gluten and how and where cross contamination occurs. 

 

You can ask questions as you go. There is a wealth of experience to draw from here and everyone is very helpful!


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Celiac Disease 2013

~Elevated tTG IgA despite insufficient Total IgA~

Autoimmune Gastritis 2013   

LADA 2010

Hashimoto's Disease 2003

and...

 


#4 JHuffington

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Posted 17 November 2013 - 10:24 AM

hi, jon - welcome to the forum.  most of us were clueless when we were first dx'd, so don't feel alone!  there is a thread on the 'coping with' section of the forum called 'newbie 101' - go ahead and read it.  it has alot of helpful info that you won't get from a dr or nutritionist.  you and your family will have to make adjustments but living in a shared household is do-able.  i have a shared house/kitchen, although my husband (who is not celiac) eats gluten free meals, mostly.  (sometimes he gets bread, but he has to keep it quarrantined lolz)  it was a pain at first, but it becomes second nature.  certainly better than being sick all the time!  good luck!  :)

Thanks for pointing me to the Newbie 101 section; I didn't know where to start or even where to post.  Last year I went through being diagnosed with Diabetes, so I'm used to change.  Hopefully dealing with celiac disease will become as second nature as diabetes has.  It's nice to meet you and thanks for your help.  


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#5 JHuffington

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Posted 17 November 2013 - 10:25 AM

Hi Jon!

I am learning the in's and out's to this diet myself and learning more everyday.

I live with gluten consumers and it has not been easy so far. I am the main cook in the house so I have control over some of the meals. Here's what I just did to prep my own kitchen recently... http://www.celiac.co...ing/?hl=nesting

 

You should definitely read the newbie 101 thread Arlene mentioned... http://www.celiac.co...ewbie-info-101/  Tons of good tips and advice there. You'll need to spend some time reading and learning where there is hidden gluten and how and where cross contamination occurs. 

 

You can ask questions as you go. There is a wealth of experience to draw from here and everyone is very helpful!

I just read your previous post about how you are handling your kitchen.  Really good information.  I would have never thought about a lot of those things.  Thanks so much for your help.


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#6 powerofpositivethinking

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Posted 17 November 2013 - 10:39 AM

hi jon and welcome!

 

before you spend money on your nutritionist appointment I'd suggest visiting this page http://www.eatright....grams/rdfinder/

 

make sure you see a registered dietician (RD).  In addition, at the above link make sure the RD you see has both experience in diabetes and gluten intolerance/celiac disease.  the link above will allow you to search by expertise.  If the RD you are scheduled to see doesn't have specific expertise in the two areas, I'd suggest canceling the appointment and finding one who does.

 

hope this helps!


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Diagnosed with celiac disease, fat malabsorption, severe pancreatic insufficiency (taking Creon) and vitamin K and D deficiency

Thankful for all the help I've received from members on this board!

Happy to have answers  :) 


#7 JHuffington

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Posted 17 November 2013 - 10:56 AM

hi jon and welcome!

 

before you spend money on your nutritionist appointment I'd suggest visiting this page http://www.eatright....grams/rdfinder/

 

make sure you see a registered dietician (RD).  In addition, at the above link make sure the RD you see has both experience in diabetes and gluten intolerance/celiac disease.  the link above will allow you to search by expertise.  If the RD you are scheduled to see doesn't have specific expertise in the two areas, I'd suggest canceling the appointment and finding one who does.

 

hope this helps!

Honestly I don't know if she does or not; you make a really good point.  I'll contact her and make sure.  She helped me with IBS (which was what the doctor initially thought it was), but I'm not sure if knowing about IBS would translate into Celiac nutrition.  And I'll check out the link.  Thanks so much for your help.


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#8 IrishHeart

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Posted 17 November 2013 - 02:47 PM

Hey Jon,

 

I also suggest reading the book Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler.

Tons of excellent advice by 50 celiac experts--on everything from the diet to living with WEs to nutritional advice to what the disease is all about. This book is awesome. Trust me!

 

Here is another helpful article on tips for living with WEs (wheat eaters) and how to avoid cross contamination in the kitchen and in  your home.

 

 

http://www.todaysdie...100713p16.shtml

 

Anything else you need, just holler. And "IBS" is not the same as celiac and I think you will be pleased to see that "IBS" go away on the gluten free diet. My "IBS" surely did! :)

 

If I were in your shoes, I'd find an endocrinologist's RD who can help you figure out the best

diet for your diabetes and celiac.  Call the endo's office or your local hospital.

 

You can do this. Welcome to the forum and the celiac family. 

IH


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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#9 JHuffington

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Posted 17 November 2013 - 04:01 PM

Hey Jon,

 

I also suggest reading the book Real Life With Celiac Disease by Melinda Dennis and Daniel Leffler.

Tons of excellent advice by 50 celiac experts--on everything from the diet to living with WEs to nutritional advice to what the disease is all about. This book is awesome. Trust me!

 

Here is another helpful article on tips for living with WEs (wheat eaters) and how to avoid cross contamination in the kitchen and in  your home.

 

 

http://www.todaysdie...100713p16.shtml

 

Anything else you need, just holler. And "IBS" is not the same as celiac and I think you will be pleased to see that "IBS" go away on the gluten free diet. My "IBS" surely did! :)

 

If I were in your shoes, I'd find an endocrinologist's RD who can help you figure out the best

diet for your diabetes and celiac.  Call the endo's office or your local hospital.

 

You can do this. Welcome to the forum and the celiac family. 

IH

Thanks for the great advice!


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