Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I'm Actually Really Scared... Help?
0

3 posts in this topic

Okay so basically it was a year ago when I started thinking that I had IBS. However it was about two months ago when I found out that I had a blood test and I am vitamin D deficient and anemic. I do have restless leg syndrome, (which is a symptom for Celiac). I also found out that whenever I ate gluten and wheat, my IBS symptoms were worse.  :wacko:

 

So I went on a gluten free diet for a week and it was amazing. I didn't feel any cramps of bloating... My doctor suggested that I might have Celiac. I had a blood test and it came out negative but she said that they can't rely on just a blood test, so she suggested an endoscopy... At first I was willing to because if I do have Celiac then, I should get diagnosed. However, I am only 16 and I'm not really keen on the idea...  :o

 

I decided that I would have the endoscopy later on when I'm ready but if I do have Celiac and carry on eating gluten, then I could end up with type 1 diabetes and cancer... and that really scared me... I've been eating gluten for a year now since I found out that I might have 'IBS' and so if it is Celiac then... ahhhh I'm so scared. 

 

I've decided to go on a strict gluten-free diet but do you think I'm worrying too much or am I doing the right thing? Also... should I have started the diet earlier on? (I'm such a worry bag, I'm so sorry)

 

Thank you so much :(

0

Share this post


Link to post
Share on other sites


Ads by Google:

Okay so basically it was a year ago when I started thinking that I had IBS. However it was about two months ago when I found out that I had a blood test and I am vitamin D deficient and anemic. I do have restless leg syndrome, (which is a symptom for Celiac). I also found out that whenever I ate gluten and wheat, my IBS symptoms were worse.  :wacko:

 

So I went on a gluten free diet for a week and it was amazing. I didn't feel any cramps of bloating... My doctor suggested that I might have Celiac. I had a blood test and it came out negative but she said that they can't rely on just a blood test, so she suggested an endoscopy... At first I was willing to because if I do have Celiac then, I should get diagnosed. However, I am only 16 and I'm not really keen on the idea...  :o

 

I decided that I would have the endoscopy later on when I'm ready but if I do have Celiac and carry on eating gluten, then I could end up with type 1 diabetes and cancer... and that really scared me... I've been eating gluten for a year now since I found out that I might have 'IBS' and so if it is Celiac then... ahhhh I'm so scared. 

 

I've decided to go on a strict gluten-free diet but do you think I'm worrying too much or am I doing the right thing? Also... should I have started the diet earlier on? (I'm such a worry bag, I'm so sorry)

 

Thank you so much :(

There is no need to stress out so much :)

 

While a diagnosis is good, if you feel you would do better without it, then go for it. However, from my understanding, you are still on a gluten diet right? If so, i would redo the blood test (as being off of gluten for a week could cause it to have a false negative) and then do the endoscopy.

 

The reason behind this is if you go gluten free for quite some time and then decide you want to be tested, then you would have to do a gluten challenge for several weeks and you may feel even worse then.

0

Share this post


Link to post
Share on other sites

I second what shadowicewolf said. If you were gluten free prior to the blood test then you could have had a false negative. In order to get a positive diagnosis you need to be eating gluten prior to the blood test and the endoscopy.

 

It is a personal decision to get the official diagnosis. I went through the gluten challenge for my endoscopy in October. It was horrible - but I definitively know that I HAVE TO BE gluten free forever. It made it more real for me. But if you feel good being gluten free and can maintain it without a diagnosis then do that. But to wait and then get diagnosed later because of the fear of endoscopy -- not worth it. The endoscopy is simple and painless. You absolutely won't have any pain from the biopsies. You will be sedated and it's a quick process.

 

Hope that helped.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,902
    • Total Posts
      919,564
  • Topics

  • Posts

    • Johnny Carinos
      If you cant be sure then don't eat it!  
    • Gluten does WHAT to the brain?
      I'm ok, just a little tired right now.  Lots of stress getting elderly parents and in-laws taken care of. My thyroid took a dip low (no surprise there) so I had to increase dose by a quarter grain. Overall, I am not dragging all day but waking up and getting going in the morning is slowwwwwwwww.  I'm sure you understand that! Yeah........Barty.  I thought of her for DAYS on end and it just saddens me to no end that such good people are the ones being taken.  Sometimes life is just so unfair. We all know that but there are times when it really hits you in the gut. There are times I think they are the lucky ones with the way the world is going these days. This terrorism plague is unnerving and I am really getting mad about it. Dear God, please stop this shyte!  I also miss nvsmom and others who have not been heard from. I hope she is feeling better and is just busy with life.  I got glutened on vacation about 6 years ago on the first day in Liverpool.  Jeez, was I sick!  I know how you feel but take heart........that was the last time I was bagged on vacation.  The longer you are gluten free and heal, the faster you recover from hits. You also get very good at not being glutened. It has been almost 2 years since it happened to me last so after 11 years gluten-free, I think I am doing well with that. I still have a little work to do with the vitamin D levels but I work so seeing much sun isn't happening.  My levels have doubled but they are still under 50. This whole Celiac thing is a part time job!
    • Test Results
      Hang in there SLLRUNNER...it is hard and frustrating.  Good job getting that appointment moved up.  I've done too...I've called daily looking for cancellations.  I can also remember counting down the days until my appointment.  ((((Hugs)))) and please let us know how it goes.
    • So I've been glutened....
      Miso soup has gluten in it, doesn't it? =/ I know that I've been avoiding it, which is a big shame because I adore miso!
    • Kissing and gluten
      Hi guys. I know this is a topic that has come up before, but I'd appreciate a little bit of advice. I've been 'courting' a guy for the past few months; nothing has happened yet but we have a proper date in a few weeks which is likely to lead to kissing. He didn't even know what a ceoliac was until a few days ago; I don't think he'd caught the hints that I'd been dropping beforehand. English isn't his first language - he's east Asian. Anyway, I've heard about being potentially glutened via a kiss. How do I broach this? I don't want to scare him off or make him think that I'm a lot of hard work; I know, I know, he's going to have to accept me as I am, etc. but for someone new to the entire thing, it is likely overwhelming. It would be for me if I'd never heard of it! Do I laughingly bring it up beforehand? We aren't going for food so if he isn't eating, just having a cup of tea, will I still need to be careful? If this seems safe, do I just let him kiss me and then bring up afterwards that any future kisses after food will have different precautions?  It all feels so clinical! He's a lovely guy so I do think he'll be understanding, but if anyone has any advice of first hand experience on how to approach the topic without it being a weird moment, that would be great.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,948
    • Most Online
      1,763

    Newest Member
    VER
    Joined