Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

   arrowJoin Celiac.com's New Online Support Group


 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Anyone From Western Ny?


  • Please log in to reply
20 replies to this topic

#1 lorka150

lorka150

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,476 posts

Posted 22 October 2005 - 03:07 PM

That's all. See subject :).
  • 0
Gluten-free, Vegan

Celiac.com Sponsor:

#2 ravenwoodglass

ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,620 posts

Posted 22 October 2005 - 03:38 PM

That's all. See subject :).

<{POST_SNAPBACK}>



Hi, Do you consider the Finger Lakes western NY?
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 lorka150

lorka150

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,476 posts

Posted 22 October 2005 - 03:41 PM

How close is that to Amherst area?
  • 0
Gluten-free, Vegan

#4 ravenwoodglass

ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,620 posts

Posted 23 October 2005 - 05:23 AM

How close is that to Amherst area?

<{POST_SNAPBACK}>


I don't know, I am smack in the middle between Rochester and Syracuse. Where is Amhurst?
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 lorka150

lorka150

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,476 posts

Posted 23 October 2005 - 06:58 AM

Close to Niagara.
  • 0
Gluten-free, Vegan

#6 elizabethtucker

elizabethtucker

    New Community Member

  • Members
  • Pip
  • 1 posts

Posted 22 November 2005 - 04:44 PM

Hi, Do you consider the Finger Lakes western NY?

<{POST_SNAPBACK}>


  • 0

#7 vallojo

vallojo

    New Community Member

  • Members
  • Pip
  • 9 posts

Posted 28 November 2005 - 09:01 AM

:D I'm from Rochester, NY anyone close to me feel free to E-Mail me @ jon_vallone@hotmail.com
AOL IM vallojo
  • 0

#8 lorka150

lorka150

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,476 posts

Posted 28 November 2005 - 03:34 PM

:D I'm from Rochester, NY anyone close to me feel free to E-Mail me @ jon_vallone@hotmail.com
AOL IM vallojo


Welcome to the boards? Did you just get diagnosed?
  • 0
Gluten-free, Vegan

#9 vallojo

vallojo

    New Community Member

  • Members
  • Pip
  • 9 posts

Posted 29 November 2005 - 10:51 AM

Welcome to the boards? Did you just get diagnosed?



No No been sick for 9yrs now :( just started to look around for fellow Celiac's
  • 0

#10 lorka150

lorka150

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,476 posts

Posted 29 November 2005 - 10:56 AM

No No been sick for 9yrs now :( just started to look around for fellow Celiac's

Cool!
You look relatively young - are you a student?
  • 0
Gluten-free, Vegan

#11 vallojo

vallojo

    New Community Member

  • Members
  • Pip
  • 9 posts

Posted 29 November 2005 - 11:05 AM

Cool!
You look relatively young - are you a student?


No i'm 28 work full time as a sales rep for Verizon Wireless. Thanks for the compliment. how old are you?
  • 0

#12 Suezboss

Suezboss

    Community Member

  • Advanced Members
  • PipPipPip
  • 66 posts

Posted 09 December 2005 - 03:32 PM

I'm from Long Island NY, not too far from Westchester. :D
  • 0

#13 lorka150

lorka150

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,476 posts

Posted 09 December 2005 - 04:54 PM

22.00
  • 0
Gluten-free, Vegan

#14 vallojo

vallojo

    New Community Member

  • Members
  • Pip
  • 9 posts

Posted 09 December 2005 - 07:09 PM

22.

how long have you been living with celiac?
  • 0

#15 lorka150

lorka150

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,476 posts

Posted 11 December 2005 - 11:37 AM

how long have you been living with celiac?


I just got diagnosed in August.
What about you?
  • 0
Gluten-free, Vegan


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: