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I Have Much To Be Thankful For This Thanksgiving. Help Me Celebrate!
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After having been low iodine for what seems like a lifetime in order to keep the dh rash from eating me/us alive, I am overjoyed to say that both my husband & I are eating iodine without incident! We began the iodine experiment slowly & cautiously on September 10th of this year. We have a whole egg every morning, in fact, this morning my hubs had two! We have cheese, ohhhhhhh that lovely flavor of cheese.... longhorn cheddar, sharp cheddar, mozzarella, parmesan, swiss. Milk, milk for sake of itself, milk in things, milk chocolate (we may die from Raisinette overdose! LOL!), sour cream, chicken parmesan with the cheese, pizza, butter. Tonight we had baked potatoes halved & loaded with butter & sharp cheddar. Cheese in salads! The list goes on. We're no longer afraid of anything dairy because of the iodine content. You ought to see next weeks grocery list. Cream cheese, cottage cheese & more. I can finally have one of my favorite comfort foods ~~~~ cream of potato soup. 

Being gluten free was one thing & we have dealt with that very well. Not a big deal. But not being able to have dairy or turnip greens, spinach, asparagus, lima beans or other high iodine beans, whole eggs was torture. It seemed that every time we turned around we couldn't eat this or that or make this or that because of the iodine. I would find wonderful gluten-free recipes online or given to me by friends & there was always that big moment of letdown when it contained high iodine foods.

Yes, we still both have rash but it has been no worse since we reintroduced iodine.

It won't be long before we try adding back seafood.

But for now we are celebrating like crazy!!!!!!!! We truly have much to be thankful for this Thanksgiving. :D

 

 

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So glad that you are healing so well and are able to include a few more tasty goodies in your diet. I love to hear this! :wub:

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After having been low iodine for what seems like a lifetime in order to keep the dh rash from eating me/us alive, I am overjoyed to say that both my husband & I are eating iodine without incident! We began the iodine experiment slowly & cautiously on September 10th of this year. We have a whole egg every morning, in fact, this morning my hubs had two! We have cheese, ohhhhhhh that lovely flavor of cheese.... longhorn cheddar, sharp cheddar, mozzarella, parmesan, swiss. Milk, milk for sake of itself, milk in things, milk chocolate (we may die from Raisinette overdose! LOL!), sour cream, chicken parmesan with the cheese, pizza, butter. Tonight we had baked potatoes halved & loaded with butter & sharp cheddar. Cheese in salads! The list goes on. We're no longer afraid of anything dairy because of the iodine content. You ought to see next weeks grocery list. Cream cheese, cottage cheese & more. I can finally have one of my favorite comfort foods ~~~~ cream of potato soup. 

Being gluten free was one thing & we have dealt with that very well. Not a big deal. But not being able to have dairy or turnip greens, spinach, asparagus, lima beans or other high iodine beans, whole eggs was torture. It seemed that every time we turned around we couldn't eat this or that or make this or that because of the iodine. I would find wonderful gluten-free recipes online or given to me by friends & there was always that big moment of letdown when it contained high iodine foods.

Yes, we still both have rash but it has been no worse since we reintroduced iodine.

It won't be long before we try adding back seafood.

But for now we are celebrating like crazy!!!!!!!! We truly have much to be thankful for this Thanksgiving. :D

 

Wow Squirms,  you sooooooooooooooooo deserve to have those foods back.  I will think of you today when I have my spinach salad for lunch !  We are all blessed and have much to be thankful for :D

 

Colleen

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Wow Squirms,  you sooooooooooooooooo deserve to have those foods back.  I will think of you today when I have my spinach salad for lunch !  We are all blessed and have much to be thankful for :D

 

Colleen

You are right on all counts Colleen! You have conquered cancer & hubs & I have an entire food group back AND more! I just can't wait to find some fresh asparagus!!!! Hubs calls it a vile weed but I say yummy, yummy in my tummy. :) And baked rice pudding here I come! Weeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee!!!!!!!!!!!!!!!!!!!!!!!!

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I am always happy to hear my friends are enjoying better health, reintroducing foods without adverse reactions and

in general, enjoying life as they so richly deserve! So whooooohoooo!

 

There was a time when I could barely eat anything, my GI tract was a such a burning, churning mess and then, the histamine intolerance made 

me so unhappy, but all that is reasonably under control now. I had shellfish last week and I'm ok! whew! 

 

Healed gut = happy campers enjoying simple pleasures!

Happy Thanksgiving. xx  Mangia & bon appetite!

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So glad that you are healing so well and are able to include a few more tasty goodies in your diet. I love to hear this! :wub:

You'll get there Abbs! There is light at the end of the tunnel & I can see it! One day we will both be on the other side of this bitch called dh & dancing in the rain. :)

 

I am always happy to hear my friends are enjoying better health, reintroducing foods without adverse reactions and

in general, enjoying life as they so richly deserve! So whooooohoooo!

 

There was a time when I could barely eat anything, my GI tract was a such a burning, churning mess and then, the histamine intolerance made 

me so unhappy, but all that is reasonably under control now. I had shellfish last week and I'm ok! whew! 

 

Healed gut = happy campers enjoying simple pleasures!

Happy Thanksgiving. xx  Mangia & bon appetite!

 

Thanks IH! :D

Bully for you having shellfish! Yaaaaaaaaaaaayyyyyyyyyyyyyyy!!!!!!!!!!!!!!!!! Hmmmm...... do I see oysters in your stuffing?

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Thanks IH! :D

Bully for you having shellfish! Yaaaaaaaaaaaayyyyyyyyyyyyyyy!!!!!!!!!!!!!!!!! Hmmmm...... do I see oysters in your stuffing?

 

actually, no. :D

I know--you would think a New England Yankee like me would do that, but I am a purist. I only like apple and sage stuffing.

But yes, I love oysters. Oysters rockefeller. oh boy. (holy smokes, I just drooled a little.........)

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:lol:  :lol:  :lol:

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Congratulations!  

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Hip Hip Hooray!

 

This is fantastic news and I am thrilled to join in your joy :)

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Thank you both! :)

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that is so wonderful! I miss dairy! I can't wait to eat cheese again, too. Enjoy it for me too!

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Thank you! And now I feel bad that you can't have dairy. :( It sucks doesn't it? You'll get there too though. Just hang in there & you'll get there. It's funny how when you haven't had something in a long, long time, you tend to OD on it. I'm putting cheese on things I never put cheese on in my entire life. LOL! I can't seem to get enough of it. My bones are thanking me though for the "calciyum". :D

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Yeah... I crave greek yogurt and sharp cheddar cheese! I miss them so much!! But don't feel bad for me. Enjoy your food, you deserve it! I will get there one day, too. :) 

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This time next year or before & you will be eating greek yogurt & sharp cheddar Jamie. And having pumpkin pie too.

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I am SO SO SO glad to hear this!!!!! You have been through so much, and you have helped so many people here. YIPPEEEE!! I am doing the happy dance for you!!!!

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This time next year or before & you will be eating greek yogurt & sharp cheddar Jamie. And having pumpkin pie too.

 

I made a dairy free pumpkin pie this Saturday! It was delicious. I made it using coconut milk! I used some ground flax and whole oats as the binding agent. My crust was made from almond meal. It totally worked. Silver lining!! :D

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Thanks Barty!!!!

 

Jamie! That sounds amazing! Yum! Mind sharing the crust recipe? I have some almond meal just waiting for me to do something with it.

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Thanks Barty!!!!

 

Jamie! That sounds amazing! Yum! Mind sharing the crust recipe? I have some almond meal just waiting for me to do something with it.

 

The almond meal pie crust:

 

1.5 cups of almond meal

3 tbsp butter

3 tbsp sugar (or sugar subst)

 

Melt butter and mix with almond meal and sugar and then press into the pie pan. Bake at 350 for about 20 minutes (or until the crust starts to brown)

 

for the pie recipe I got it from this site:

 

http://chocolatecoveredkatie.com/2013/11/04/healthy-pumpkin-pie-recipe/

 

I made it with brown sugar - not the coconut sugar or stevia. Came out great. The only thing is you really don't want to pull it out of the oven because it jiggles so much but it has to refrigerate and set. I let mine refrigerate over night and the texture was great!

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Thanks so much! I can make the pie part regular since I can have dairy now but until you shared this I was just planning on having it crustless. This crust recipe sure seems easy peesy! Thanks! Yummy!

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Thanks so much! I can make the pie part regular since I can have dairy now but until you shared this I was just planning on having it crustless. This crust recipe sure seems easy peesy! Thanks! Yummy!

Oh it is sooooo easy!! And you could easily spice it up too and add cinnamon, etc to make it more festive! I made this crust before I went gluten-free too because it's lower carb. My boyfriend (a gluten eater) prefers it to the traditional graham cracker crusts or the flakey pie crusts. Enjoy!

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    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
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