I've been thinking about starting a "Celiac.com Online Support Group" which would hold regular online meetings here in our "Live Chat" area? I am hoping there are others out there who might be interested. Please let me know if you are:
Interested in joining such a group;
Interested in helping to lead or otherwise help out with such a group;
Iwould be interested in joining an online support chat group
Would be interested in joining. Unfortunately don't have the time to lead.
Blood tested 8-11 positive, Biopsy 9-11 negative (long story, most gastro drs. are morons)
gluten-free 7-11, Dairy Free (mostly) 8-13 - Everything but butter. Can't live life without butter....
DS - negative blood test, just diagnosed with ADD and other learning disorders, DNA test positive - high risk
Issues related to gluten: depression, low iron, hair loss, positive ana test for lupus, low vitamin D, headache, sinusitis, environmental allergies, brain fog, GI problems, weight gain....the list goes on....
I nominate Jamie (moosemalibu) to help lead our group. Also, I am starting to promote this more, so hopefully we'll have more folks join by posting here.
Haha - I can certainly try. Do we have organized agenda's/topics to discuss? How do we want to organize it? A date/time and then just have at it. What about a journal seminar? Like - read this article and then discuss kind of thing...
"We can't help everyone, but everyone can help someone." Ronald Reagan
Diagnosed Celiac via blood test 8-22-13
Dairy & gluten free in 8-22-13 then did gluten challenge in October. gluten-free forever Oct-26-13
Endoscopy/Biopsy Oct-26-13 positive for Celiac
Vitamin D insufficiency 12-6-13 (had it prior no doubt, just wasn't checked until December)
All good questions...at the moment I am thinking of using this thread as the ongoing discussion thread, and having one meeting per month, at least to being. If members later decide they want to meet more often that will also be possible, as the chat area is always open.
It may be too early yet to formulate the first meeting's agenda, as we really don't have enough members. Hopefully this will change soon as I am ramping up promoting this new group. I think we need at least 20 members before we can have a meeting.
The group will have both--this thread for posting, and live chat meetings (see the "Live Chat" link at the top of the board). So all meetings will be live, and participants can communicate in real time. I believe the live chat meeting content can also be archived.
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it." Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me. Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
I'm newly diagnosed, and still adjusting (healing and fighting leaky gut)...unfortunately there are no Celiac support groups locally so my hubby and I are muddling through this process on our own. We live in a small community with very limited grocery shopping options, etc. so any support online or otherwise would be greatly appreciated...