Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Post Here To Join Celiac.com's Online Support Group With Live Chat Meetings! (Free)
0

82 posts in this topic

hello, I was diagnosed with celiac disease 14 months ago I have been gluten free for about 12 months what I find hardest is cross contamination I try my best to be gluten free. when I'm glutened I find my mood totally changes and the littlest things can set me off I have four children who suffer the effects of gluten

0

Share this post


Link to post
Share on other sites


Ads by Google:

hello, I was diagnosed with celiac disease 14 months ago I have been gluten free for about 12 months what I find hardest is cross contamination I try my best to be gluten free. when I'm glutened I find my mood totally changes and the littlest things can set me off I have four children who suffer the effects of gluten

 

 

Welcome. Are you just suggesting a topic for the chats?  Or did you have a question?  If you have some specific questions, you might want to make a new thread - maybe the post-dx section?

0

Share this post


Link to post
Share on other sites

Hi, I would like to join this support group. I was told by my doctor that I was gluten sensitive. I have fibromyalgia and ibs and other medical issues and really would like to get healthy and need the help and support.

0

Share this post


Link to post
Share on other sites

I would love chatting about this stuff.  My wife has become a Dictator in the kitchen.  I don't know what she can eat anymore.   Now she said she can't have bacon!!!! I give up.  Maybe I'll learn about food choices for her.  Good to know there's a chat for this.  I'm on it!

0

Share this post


Link to post
Share on other sites

I would love chatting about this stuff.  My wife has become a Dictator in the kitchen.  I don't know what she can eat anymore.   Now she said she can't have bacon!!!! I give up.  Maybe I'll learn about food choices for her.  Good to know there's a chat for this.  I'm on it!

I have never seen a bacon with gluten. Just read the ingredients.

0

Share this post


Link to post
Share on other sites




I would love chatting about this stuff.  My wife has become a Dictator in the kitchen.  I don't know what she can eat anymore.   Now she said she can't have bacon!!!! I give up.  Maybe I'll learn about food choices for her.  Good to know there's a chat for this.  I'm on it!

She can eat bacon.  Unless she has another reason like sodium nitrates.

0

Share this post


Link to post
Share on other sites

I would love chatting about this stuff.  My wife has become a Dictator in the kitchen.  I don't know what she can eat anymore.   Now she said she can't have bacon!!!! I give up.  Maybe I'll learn about food choices for her.  Good to know there's a chat for this.  I'm on it!

Bacon is fine.  Having recently been diagnosed, I'm learning all this, too - as is my wife.  One of the things you may want to consider is to eliminate gluten altogether - for both of you.  It becomes easier (if it is just the two of you, that is).  Because the other thing you need to worry about is cross-contamination.  That is, she'll need to have her own peanut butter jar, butter/margarine stick or tub, etc . . . this is because if you were to dip into, let's say, a peanut butter jar - spread that on wheat toast (or white toast), and then re-dip the knife - BOOM - that jar is now contaminated because even trace amounts (crumbs) can cause problems.  This has been the hardest part of adherence for me (or I should say - for my wife).  I know - ugh!  Also - worth considering - my GI guy told me that everyone would be better off not eating gluten - because the human body does not do a good job digesting modern wheat / gluten / gliadin.  You may find that you'll feel better, too.  Just my 2 cents.  Good Luck (Boars Head Deli Meat is ok, too . . . but, again, it's the dreaded cross-contamination that you need to worry about (e.g., did they clean the meat slicer from use with other non-gluten meats?) 

1

Share this post


Link to post
Share on other sites

Alrighty..... I think we have established that bacon is gluten free. Back to the purpose of this thread - joining an on- line chat.

0

Share this post


Link to post
Share on other sites

 

Just a quick reminder to everyone who wants to participate in the live chat - there are 3 articles and lovely recipe to try before the meeting. Be sure to check the link above! Hope to see you all there!

0

Share this post


Link to post
Share on other sites

I would like to join this support group.  Is it still meeting?

 

0

Share this post


Link to post
Share on other sites

I'm in the eastern standard time zone.  I am 34 and was diagnosed with Celiac a few months ago.  I've also been diagnosed with Candida and Small Intestine Bacterial Overgrowth by my holistic physician.  Finally, got the answers to the the root cause of my many health issues that I had for most of my life that all traditional doctors missed.  I am struggling everyday and need all the support I can get!

0

Share this post


Link to post
Share on other sites

I would like to join this support group.  Is it still meeting?

 

yes - Our first meeting is March 15th at 2pm pacific.

0

Share this post


Link to post
Share on other sites

I'm in the eastern standard time zone.  I am 34 and was diagnosed with Celiac a few months ago.  I've also been diagnosed with Candida and Small Intestine Bacterial Overgrowth by my holistic physician.  Finally, got the answers to the the root cause of my many health issues that I had for most of my life that all traditional doctors missed.  I am struggling everyday and need all the support I can get!

Hi - me too.  Just 2 months ago - ugh!  A bit older than you - I'm 48.  Probably had Celiac (I bet) for 15 years, easy.  Never even heard of it.  But was taking probiotics during that time.  Interested to hear about your candida and batercial overgrowth.  I've wondered about that myself - reading so much on Celiac in the last 2 months.  It seems so much of functional medicine is so far out in front of this issue, but traditional medicine trails behind (and my doctor is a traditional internist).  Testing, etc . . .

0

Share this post


Link to post
Share on other sites

Just a quick reminder which I'll post again before the meeting: Our first live chat Celiac.com Online Support Group meeting will be held on 03/15/2014 at 2 PM Pacific.

0

Share this post


Link to post
Share on other sites

Hi - me too.  Just 2 months ago - ugh!  A bit older than you - I'm 48.  Probably had Celiac (I bet) for 15 years, easy.  Never even heard of it.  But was taking probiotics during that time.  Interested to hear about your candida and batercial overgrowth.  I've wondered about that myself - reading so much on Celiac in the last 2 months.  It seems so much of functional medicine is so far out in front of this issue, but traditional medicine trails behind (and my doctor is a traditional internist).  Testing, etc . . .

Hey, I'm so sorry I haven't responded sooner.  Life has been crazy and hectic with struggling with all this chronic illness and trying to take care of my very active 13 month old boy!  Yeah, I actually think I've had most of my health issues the majority of my life.  I was very fortunate to find a board certified holistic physician, who is awesome!  I had to go through a lot of testing to get all the answers: standard blood work covered by insurance, ALCAT test (food sensitivities), NutrEval test, and CDSA 2.0 (Comprehensive Digestive Stool Analysis).  The CDSA showed the candida and the SIBO.  I also have a lot of food sensitivities and nutrient deficiencies, which is all common with Celiac.  Hope this info. may help and that you can find a physician to do this testing and get to the root of all your issues.

0

Share this post


Link to post
Share on other sites

sounds like you have a great doctor.  I can't get my doctor to even return an email at this point (have only sent him two on the subject).  I wanted to get an MMA and homocysteine test - for B12 - and I get no reply. And my Vitamin D test (that I asked to have done) came back at 28 - which I think is low . . . but he said nothing about it.  OK.  hmm . . . I'm supplementing with D3.

 

 

Hey, I'm so sorry I haven't responded sooner.  Life has been crazy and hectic with struggling with all this chronic illness and trying to take care of my very active 13 month old boy!  Yeah, I actually think I've had most of my health issues the majority of my life.  I was very fortunate to find a board certified holistic physician, who is awesome!  I had to go through a lot of testing to get all the answers: standard blood work covered by insurance, (Company Name Removed - They Spammed This Forum and are Banned) test (food sensitivities), NutrEval test, and CDSA 2.0 (Comprehensive Digestive Stool Analysis).  The CDSA showed the candida and the SIBO.  I also have a lot of food sensitivities and nutrient deficiencies, which is all common with Celiac.  Hope this info. may help and that you can find a physician to do this testing and get to the root of all your issues.

 

0

Share this post


Link to post
Share on other sites

Thanks for organizing this.  I put it on my calendar.

0

Share this post


Link to post
Share on other sites

my 16 year old son was just diagnosed with Celiac. i am so happy to have found this support group! cant wait to get started!

0

Share this post


Link to post
Share on other sites

Just a quick reminder which I'll post again before the meeting: Our first live chat Celiac.com Online Support Group meeting will be held on 03/15/2014 at 2 PM Pacific.

cant wait! will we receive an email reminder?

0

Share this post


Link to post
Share on other sites

Hello to all the sillyak people.  I have been gluten free since being diagnosed in 2000.  Looking forward to chatting with others.

0

Share this post


Link to post
Share on other sites

Hi Everyone,

 

Just a quick reminder--our first meeting is tomorrow at 2 PM Pacific:

http://www.celiac.com/gluten-free/forum-22/announcement-4-first-celiaccom-online-support-group-meeting-3152014-2-pm-pacific-5-pm-eastern/

 

If you have time please read the articles listed in the meeting announcement, but this is not required to attend the meeting. 

 

Jamie (moosemalibu) will be the meeting's leader, and I'll also attend. I hope to see you all there tomorrow!

0

Share this post


Link to post
Share on other sites

Hello Everyone, 

 

Our first meeting was on Saturday, and it went very well. Thank you to all of those who attended, and please let me know if you wanted to attend, but could not due to a technical issue, or because of the time the meeting was set. We are now working on the schedule for our 2nd meeting, and we should post it soon.

 

If you did attend and have any questions or comments, please share them here, as we hope to improve our future meetings.

 

For those who could not attend, I have attached a transcript of the meeting below.

 

20140315 - 001 Meeting Transcript.pdf

 
 
0

Share this post


Link to post
Share on other sites

Darn! Sorry I missed this. Weekends are crazy busy with my kids and all of their activities. 

I can't seem to access the transcript. When I click on the pdf link, I get a message that says I don't have permission to view it.  :(

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,131
    • Total Posts
      919,521
  • Topics

  • Posts

    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    Cristina17
    Joined