Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Basic Question Needing Basic Answer

lorka150

By lorka150
in Related Issues & Disorders

Recommended Posts

lorka150 Collaborator
lorka150
Posted

I started a gluten-free diet in late August. Went dairy free around the same time, then quickly casein free.

I have had a few slip ups, and glutenings, but I think I've done really well.

Before diagnosis I lost about 10lbs in a matter of weeks. Since then, I've lost about 15 more. I haven't lost more, except when I get glutened, I drop a few, and then they seem to come back and flucuate around the same area.

So now it's been about 3 months.

How long until most of you started noticing a significant weight gain? Ever? Did you just steady out?

I'm so impatient. Does anyone else feel like this? Could it be from my accidental glutenings? Could it be that maybe I am really damaged? (I did not get a biopsy, and I will not).

Any ideas? Thanks.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cgbenson Newbie
cgbenson
Posted

any type of cheating on a celiac diet is going to have consequences. however, if you have not had a biopsy to confirm celiac it is impossible to know what could be causing your problems. I strongly recomend the biopsy. it is quick about 5 minutes and pain free.

I started a gluten-free diet in late August. Went dairy free around the same time, then quickly casein free.

I have had a few slip ups, and glutenings, but I think I've done really well.

Before diagnosis I lost about 10lbs in a matter of weeks. Since then, I've lost about 15 more. I haven't lost more, except when I get glutened, I drop a few, and then they seem to come back and flucuate around the same area.

So now it's been about 3 months.

How long until most of you started noticing a significant weight gain? Ever? Did you just steady out?

I'm so impatient. Does anyone else feel like this? Could it be from my accidental glutenings? Could it be that maybe I am really damaged? (I did not get a biopsy, and I will not).

Any ideas? Thanks.

<{POST_SNAPBACK}>

Link to comment
Share on other sites
Canadian Karen Community Regular
Canadian Karen
Posted

Hi Lorka:

In order for you to get your biopsy now, you would have to go back on gluten for three months, I don't think you are willing to do that by the sounds of it.....

Have you always been on the petite/fragile/thin side? Perhaps it is just your physical constitution and gluten-free or not, that is how you are going to be.... My older daughter, who is now 12, is almost taller than me (I am 5'9") and wears a size nine ladies shoe. From day one, she has always been off the scale, much larger than normal (not fat or anything, just incredibly solid and big boned....) My younger daughter on the other hand, who is now 7, has always been in the lowest percentile and pediatrician says she will always be petite - that is just her make-up and nothing is going to change that..... She is the tiniest, petite, little angel you could ever imagine....... I think a lot of the way we are is genetics (and not only inheriting crappy genes like celiac genes), but other things we inherit (physical traits, size, shape, etc....)

Either way, you must also consider that it has only been since August that you have been gluten free. For many people, it takes longer than that for their body to correct itself...... Be patient, it will come......

Hugs.

Karen

Link to comment
Share on other sites
cornbread Explorer
cornbread
Posted
any type of cheating on a celiac diet is going to have consequences. however, if you have not had a biopsy to confirm celiac it is impossible to know what could be causing your problems. I strongly recomend the biopsy. it is quick about 5 minutes and pain free.

<{POST_SNAPBACK}>

After 3 months gluten-free wouldn't a biopsy automatically be negative?

Lorka - a lot of celiac's are the reverse. I lost 8lbs when I first went gluten free and gain a few each time I get glutened.

Link to comment
Share on other sites
MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Are you really under-weight? It varies from person to person on how you gain weight back. Just talk to your doctor about it if you are concerened about your weight.

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted
if you have not had a biopsy to confirm celiac it is impossible to know what could be causing your problems. I strongly recomend the biopsy. it is quick about 5 minutes and pain free.

<{POST_SNAPBACK}>

I have to strongly disagree with this. There are risks inherent with any procedure, if a dietary change has helped you know your answer. As to other food intolerances they can be found by working with an allergist and doing an elimination diet. As to weight gain or loss, I beleve it varies for many. Most of my weight loss was fluid, I had severe edema but it wasn't noticeable to doctors because it was spread over my whole body, (I even lost 2 shoe sizes!!) my weight has stabalized now, 3 years gluten-free, and while I am on the light side at 105 lbs at 5'4" I feel healthy unless glutened.

Link to comment
Share on other sites
Carriefaith Enthusiast
Carriefaith
Posted
How long until most of you started noticing a significant weight gain? Ever? Did you just steady out?
I started noticing my weight coming back around 3-6 months into the diet, it was a slow process.
Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


swittenauer Enthusiast
swittenauer
Posted

I guess everyone is different. My husband lost about 25 or so pounds before he was diagnosed. It took him about 2 months before it was back for the most part. Being totally gluten free is the key.

Link to comment
Share on other sites
jenvan Collaborator
jenvan
Posted

i agree with what's been said here--you can't expect real weight gain until you have been vigilantly gluten-free for a while--no mistakes.

Link to comment
Share on other sites
elisabet Contributor
elisabet
Posted

My son lost some kilos after going gluten-free,and after about 5 months he gained wheight.

just be patient!!

Link to comment
Share on other sites
  • 2 weeks later...
Guest Kalynn
Guest Kalynn
Posted

Link to comment
Share on other sites
Guest Kalynn
Guest Kalynn
Posted

Link to comment
Share on other sites
Guest nini
Guest nini
Posted

I had the opposite problem. I was overweight before my dx, and after going on the gluten-free diet my weight fluctuated up and down at first as my system started to heal, now 2 1/2 years into it I have lost 85 pounds and have gone from a 3x to a 14/16 (med) in size... actually eating more food now than I ever did when I was sick. It just takes the body a while to figure out where it's supposed to be and then eventually it should normalize out.

I completely disagree that the biopsy is the only way to find out what's going on. The biopsy can only confirm damage IF it has occurred throughout the entire intestine, and the procedure involves risks, however small. AND if the Dr. doing to procedure doesn't take enough samples or takes them from places without damage, it can't confirm anything. It can only confirm a dx of celiac, but it can NEVER completely rule it out.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,212
    • Most Online (within 30 mins)
      7,748
    DaniellePaxton
    Newest Member
    DaniellePaxton
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Constant low back, abdominal and pelvic pain!

      By cristiana · Posted

      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By cristiana · Posted

      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      Trying to read my lab results

      By Scott Adams · Posted

      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By Kirbyqueen · Posted

      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      Trying to read my lab results

      By trents · Posted

      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...