13 replies to this topic

[nicolespeanut]

I am just curious if anyone notices a reaction with UV light? I do not have DH (linear IgA bullous dermatosis) but the diseases are so similar just wondering if Dh sufferers react to sun. Thanks! Nicole

[nicolespeanut]

Had a positive titer first ANA test, negative ANA next test. All other test ruled out Lupus. Dr. didn't think UV light should bother me and I was just curious to know if it bothers people with DH.

[frenchiemama]

Yes, it does me. (Unless I also have something like polymorphic light eruptions in addition to DH).

I have come to the conclusion this week that sunlight worsens my DH. I've noticed before that it always seemed to get worse in the spring and summer (leading my doctor to believe that it was an allergy). But this week it really became clear. I normally work the night shift, and my DH has been doing great. Then this week I had to switch to working days and I work outside about 75% of the time. That first night after working outside all day my DH completely flared up. And this must also be why it's never as bad first thing in the morning.

[Matilda]

..

[tonyevans]

I believe it does.
I was DH biopsy positive before I was also diagnosed as Celiac Biopsy positive. So for a couple of years before I didn't know I had DH and was not on any medication. I was in the "self help" stage of a very itchy skin condition.
I routinely travelled by ship from New Zealand to Japan and Sth Korea. A voyage lasting 14-16 days.
The voyages were made starting late in the NZ fall, so temps were moderate and my DH was not a problem.
As we came closer to the equator my DH got progressively worse and as we progressed further North, away from the equator the symptoms reduced.

We reached Japan in their early Spring so temps in both Japan and NZ were around 20 deg C but at the equator they could be close to 40 deg C at 1 pm

Undertaking the voyage when I was on medication, I still had minor reactions in the hotter climates

[frenchiemama]

Does a higher SPF sunscreen help at all? I'll slather myself with SPF 35 three times a day if I need to. Right now I use 20 (but admittedly, not every time I go outside. That changes today though).

[lovegrov]

There's no doubt at all that DH is aggravated by hotter weather.

richard

[frenchiemama]

Well I went out and got myself some SPF 50 today, and I don't intend on going out in daylight hours without it. Let's see if that makes a difference.

[cdford]

Mine reacts to the sun, but also to the sweating. Another possibility is that you may be reacting to something that you might not otherwise react to dripping onto the skin as you sweat.

[cdford]

Be sure your sun screen is gluten-free if you have dh. Not all are.

[num1habsfan]

OMG! Now I know why I have been breaking out more! Yesterday I broke out in lots of DH from the arms/shoulders to my back, and normally if I eat lactose after a while they go away, but they havent so I assume it IS the sunlight/heat!!

Thanks for realizing my mystery

~lisa~

[mommida]

I have seen people sunburned by flourescent lights.
Laura