Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

So, When Do The Symptoms Stop?
0

14 posts in this topic

I'm past one month gluten free, have been extremely diligent thanks to the support of my husband and nutritionist, but can't shake the big D.

 

I've given up, in addition to gluten: chocolate, coffee, alcohol, all FODMAPs foods (dairy, onion, garlic, fruits, beans, all sugary drinks except a small glass of OJ) and I still have had diarrhea on a nearly daily basis.

 

I've also been taking digestive enzymes with meals, eating mostly home cooked, whole foods like eggs, rice, potatoes, greens, meat. My only cheat is one or two gluten free cookies and maybe some kettle chips.

 

Does it go away? I'm still dropping weight, albeit not as startlingly as at first, and at least i'm not having D 6x/day - only once or twice. 

 

I am absolutely certain I've taken every step to eliminate gluten contamination so it must be either one of the 5 things I have been eating... doctor suggested maybe microscopic colitis in addition to the celiac, but I really, really dont' want to go in for the colonoscopy just to find that out. The endoscopy made me sick enough.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Simple answer is that you need more time. One month is not that long, and it usually takes several to heal. It sounds like you're doing everything right though, so there is the possibility that you have another intolerance. Are you still eating dairy? You could try dropping that and see what happens.

 

Maybe others will have better advice?

 

Hang in there!

1

Share this post


Link to post
Share on other sites

Great job on your new diet! I agree tho give it time! I am almost 6 months! I am now starting to feel better :) Keep up the good diet!

0

Share this post


Link to post
Share on other sites

If you want to know when your started healing, I would say, "One month ago!"  You cannot always feel the progress, at least I couldn't.  But you are getting somewhere.  Your recovery will be depending on how long you were ill, what nutrients you give your body, and how good of detective you are for any other intolerances.  I hope you will be feeling progress and feeling overwhelmed with that soon.

 

D

0

Share this post


Link to post
Share on other sites

It took me almost two years to heal.  The length of time can vary greatly from person to person depending on how severely you were sick, how old you were, how long did you suffer undiagnosed.  A month is just the beginning, a great beginning tho! 

0

Share this post


Link to post
Share on other sites




It sounds like you're off to a great start!  My only suggestion is that if you're essentially only eating the same 5 foods every day you may want to try eating a greater variety of vegetables.  Different veggies have different nutrients that your body needs - especially now - and it makes the gluten-free diet much more tollerable.

0

Share this post


Link to post
Share on other sites

 doctor suggested maybe microscopic colitis in addition to the celiac, but I really, really dont' want to go in for the colonoscopy just to find that out. The endoscopy made me sick enough.

 

I was also told by my doctor that if my symptoms do not fully resolve on the gluten-free diet that he wanted to check me for microscopic colitis. I'm about the same schedule as you as far as recovery goes but you've got me beat on the D. I still go 3-5x/day. But I was eating gluten-free oats and I think that was not helping my situation.

0

Share this post


Link to post
Share on other sites

Hi,

 

Some psyillium husks might help, and pro-biotics.  I don't think you need a colonoscopy at this point.  Your gut is healing and that takes time.  The auto-immune attack takes some time to taper off also.  Is the kettle corn gluten-free and dairy free?  That might be something to try not eating for a few days.

0

Share this post


Link to post
Share on other sites

You might have bacterial overgrowth. You can get tested for that.

Eat more probiotics and try cutting out all grains for a while. They all contain a little bit of cc.

0

Share this post


Link to post
Share on other sites

I had a bacterial overgrowth years ago - I forget the test they ran now, but the target number was under 200 and I was at 12,000.  Anyhow, I really, really, really did not want antibiotics (they don't discriminate and just go in and kill everybody)  so I went to a nutritionist who suggested Colosan (I've mentioned it on here before).  It is a magnesium oxide powder that breaks apart in your intestine, releasing oxygen.  Oxygen naturally kills bad bacteria (which are anaerobic) and simultaneously feeds the good bacteria - which need oxygen.  It took about 6 months of taking it every day to get my number back down under 200.  I still take a little bit every day with my Metamucil in the morning, along with a probiotic and other vitamins.

0

Share this post


Link to post
Share on other sites

Thanks everyone - I guess I will try and be patient. I'm hoping I can start getting some more variety in the diet, but right now a lot of things cause problems - salad, dairy, chocolate (sigh!) any sort of cabbage or its relatives (brussel sprouts!). It's getting really dull and if I cut out all grains I wouldn't be eating anything except meat. I think I shall stick with potatoes and rice, thanks! I'll be bored for a while longer and pray the guts will heal quickly.

 

On a positive note, after $3000 of blood work, I'm confident that I'm getting enough vitamins. They all checked out normal. Too bad my bank account hasn't. :-D

0

Share this post


Link to post
Share on other sites

On a positive note, after $3000 of blood work, I'm confident that I'm getting enough vitamins. They all checked out normal. Too bad my bank account hasn't. :-D

 

My diagnosis was also hard on me financially. And I'm not done paying my bills yet. :blink:

0

Share this post


Link to post
Share on other sites

I think Diane is right! It depends on how long you were sick and how much damage you have had. no one is the same. just stick to the gluten-free diet. Eat healthy and you will feel better soon. Good Luck! 

0

Share this post


Link to post
Share on other sites

I'm just over two weeks in and my life has changed. I'm definitely not all the way healed but my energy level coming up keeps me eating right and helps with a positive attitude. My whole family even raved over dinner last night - and they actually sounded sincere! 

 

I'm taking sublingual B12, calcium, probiotics and extra daily vitamins. I'm also eating better than I have in years, which I think also helps. I proudly announced to all my family and friends that, for three days, I was tooting with confidence. LOUD AND PROUD!!! Sorry if that's too much information, but it's these little things that mean that most!

 

KEEP UP THE GOOD WORK!!

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,344
    • Total Posts
      920,487
  • Topics

  • Posts

    • Karen, the iodine test was a test for DH used in the 'olden' days. Iodine would be swabbed onto a spot and then it would be covered with a bandage. If someone had DH the iodined area would break out in lesions. I don't know how but we do know iodine can activate the antibodies. That is why some of us with DH have to avoid iodine in foods until the antibodies have cleared the dermis. OP, if you haven't been tested for celiac you should be and if you have active lesions a biopsy done next to a lesion by a DH knowledgable dermatologist may help in diagnosis.
    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined