Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Can't Tell You What Is In This, But It Is Safe For You!
0

4 posts in this topic

This is about Super sensitivity and not just to gluten;

 

The hygienist used this line on me once.  She felt she could use her regular tooth polish on me as she uses it on everyone else.  No need to read ingredients, she doesn't know what is in it, but it was safe.  I reacted. Next time, I used pomace powder only and had no reaction.

 

I have skin reactivity too, so I went over ingredients in ultra-sound gel.  They did know what was in it, but not where everything was derived.  I still need to look up FDA Blue #1.  Also the ingredient listed was tea.  I have a problem with black tea, but no indication what kind of tea it was!?

 

I asked about the adhesives in strips to hold EKG wires in place.  They were clueless to what they had in there.  A celiac told me that I should be okay, because she didn't react.  But when I asked if she reacted to contact she said "no".  They assured me that I would be okay since they have had no complaints.  Hmm

 

In the end, I think I am having screening tests regardless- hoping that a little more bloating and reaction won't be a big deal.  I am hoping that skin contact won't be too much of a problem for a one time deal

 

For all who have a problem with corn:  I saw information on the internet about all of the names for corn and its products.  They included Dextrose and Glucose which are in IV solutions.  I heard there is IV fluid without it, but am unsure of its name.

 

I can't understand the" it is safe for you attitude."  I especially wonder about me, when I jump on board thinking that it can't be too bad.

 

D

0

Share this post


Link to post
Share on other sites


Ads by Google:

This is about Super sensitivity and not just to gluten;

 

The hygienist used this line on me once.  She felt she could use her regular tooth polish on me as she uses it on everyone else.  No need to read ingredients, she doesn't know what is in it, but it was safe.  I reacted. Next time, I used pomace powder only and had no reaction.

 

I have skin reactivity too, so I went over ingredients in ultra-sound gel.  They did know what was in it, but not where everything was derived.  I still need to look up FDA Blue #1.  Also the ingredient listed was tea.  I have a problem with black tea, but no indication what kind of tea it was!?

 

I asked about the adhesives in strips to hold EKG wires in place.  They were clueless to what they had in there.  A celiac told me that I should be okay, because she didn't react.  But when I asked if she reacted to contact she said "no".  They assured me that I would be okay since they have had no complaints.  Hmm

 

In the end, I think I am having screening tests regardless- hoping that a little more bloating and reaction won't be a big deal.  I am hoping that skin contact won't be too much of a problem for a one time deal

 

For all who have a problem with corn:  I saw information on the internet about all of the names for corn and its products.  They included Dextrose and Glucose which are in IV solutions.  I heard there is IV fluid without it, but am unsure of its name.

 

I can't understand the" it is safe for you attitude."  I especially wonder about me, when I jump on board thinking that it can't be too bad.

 

D

I can't help but wonder if these are minor allergies rather than intolerences or celiac due to the skin reactivity.

 

To be fair, not everyone knows what is in the items that are used, especially things like the adhesive strips. 

0

Share this post


Link to post
Share on other sites

Yes, it may be allergies, however, my IgE level is minimal which the MD says means that I am not an allergenic person.

0

Share this post


Link to post
Share on other sites

Life is difficult when you react to more things than the typical celiac.  You have to stick to what you know works for you.  You have to research ingredients before trying things.  You have to minimize risk as much as you can.  You have to not live in fear despite all that.  You have to try not to feel like you are crazy and overreacting.  When you get sick, you have to be patient until you feel better again.  You need to learn from the experience so that you don't repeat it.  It's not easy.  It is well worth the effort.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,650
    • Total Posts
      921,606
  • Topics

  • Posts

    • This subject is often raised on this site, especially by women.  I am prompted to raise it again today, having spoken to my doctor who has said that she has noticed that celiacs often have thin hair, especially in later years.   Rather than just accept what she thinks is just the inevitable I would really like to hear from anyone who really has seen great improvement in their own hair and what they did. There are lots of tips on line but I am particularly interested in hearing from someone who has actually been there, done that, and now has better hair!  
    • This subject is often raised on this site, especially by women.  I am prompted to raise it again today, having spoken to my doctor who has said that she has noticed that celiacs often have thin hair, especially in later years.   Rather than just accept what she thinks is just the inevitable I would really like to hear from anyone who really has seen great improvement in their own hair and what they did. There are lots of tips on line but I am particularly interested in hearing from someone who has actually been there, done that, and now has better hair!  
    • Oh i hope so!! I'm really anxious about the procedure as I've never done it before. I've been through operations but never an endoscopy and the thought of it is really scaring me! Thank you for giving me some courage! 
    • You are right, the tests could be invalid.   All the celiac tests require you to be on a gluten-containing diet.  It is up to you to decide if you want to go gluten free.  You can do it.  Believe me, I know.  Hubby is not officially diagnosed.  He went gluten-free 15 years ago, based on the rather poor advice from my allergist and his GP.  It worked though.  But he would be the first to tell you that I have had way more support in terms of family and medical.    We think he has it.  Both of our families are riddled with autoimmine disorders.  I am the first to be diagnosed.   My Aunt went gluten free per the advice of her Chiropractor.  Her other doctors never suspected celiac disease.  The diet obviously worked for her.  Her daughter (my cousin) is a nurse.  She had an endoscopy but they did not check for celiac disease.  She chose to go gluten-free too since it worked for her mom.  Both will not do a gluten challenge.  However, my diagnosis has helped them get proper medical treatment.  My Aunt is very active in a celiac support group.    Now everyone in my family knows about celiac disease.  My own niece was just diagnosed with Crohn's, but her GI did test and will continue to test her for celiac disease.  You can develop additional autoimmune disorders at any time.   So far, a few other members have been tested.  No one else had had a celiac disease diagnosis yet.  Time will tell.  If I can save someone from the misery of struggling to get a diagnosis, then I can feel good.   Now, an official diagnosis will help you adhere to the diet .  You can get follow-up care.  Get checked for other things like SIBO, H. Pylori and cancer.  But ultimately, it is up to you.   Whatever you decided to do, please consider a family health history chart.  You might someday help a grandchild.   The stool tests?  In all my research, leading celiac experts do not recommend them.  http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/ gene testing?  Some 30% of the poulation carries the celiac genes.  It just tells you that you have the chance to develop celiac disease.  It can not diagnose you.    
    • The procedure is a breeze. You will go in, be sedated and go to sleep for a short nap and then it's over. Some people will have a bit of a sore throat but not everyone does. For me the hardest part of the endo was not being able to drink coffee when I got up. You seem to have been back on gluten for long enough to have the test but as CLady said there is a good chance your blood work may be negative. In your case you may want to continue eating gluten after the biopsy at least until you get your blood results. If they are negative consider going a bit longer and getting them redone.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined