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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Can't Tell You What Is In This, But It Is Safe For You!
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4 posts in this topic

This is about Super sensitivity and not just to gluten;

 

The hygienist used this line on me once.  She felt she could use her regular tooth polish on me as she uses it on everyone else.  No need to read ingredients, she doesn't know what is in it, but it was safe.  I reacted. Next time, I used pomace powder only and had no reaction.

 

I have skin reactivity too, so I went over ingredients in ultra-sound gel.  They did know what was in it, but not where everything was derived.  I still need to look up FDA Blue #1.  Also the ingredient listed was tea.  I have a problem with black tea, but no indication what kind of tea it was!?

 

I asked about the adhesives in strips to hold EKG wires in place.  They were clueless to what they had in there.  A celiac told me that I should be okay, because she didn't react.  But when I asked if she reacted to contact she said "no".  They assured me that I would be okay since they have had no complaints.  Hmm

 

In the end, I think I am having screening tests regardless- hoping that a little more bloating and reaction won't be a big deal.  I am hoping that skin contact won't be too much of a problem for a one time deal

 

For all who have a problem with corn:  I saw information on the internet about all of the names for corn and its products.  They included Dextrose and Glucose which are in IV solutions.  I heard there is IV fluid without it, but am unsure of its name.

 

I can't understand the" it is safe for you attitude."  I especially wonder about me, when I jump on board thinking that it can't be too bad.

 

D

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This is about Super sensitivity and not just to gluten;

 

The hygienist used this line on me once.  She felt she could use her regular tooth polish on me as she uses it on everyone else.  No need to read ingredients, she doesn't know what is in it, but it was safe.  I reacted. Next time, I used pomace powder only and had no reaction.

 

I have skin reactivity too, so I went over ingredients in ultra-sound gel.  They did know what was in it, but not where everything was derived.  I still need to look up FDA Blue #1.  Also the ingredient listed was tea.  I have a problem with black tea, but no indication what kind of tea it was!?

 

I asked about the adhesives in strips to hold EKG wires in place.  They were clueless to what they had in there.  A celiac told me that I should be okay, because she didn't react.  But when I asked if she reacted to contact she said "no".  They assured me that I would be okay since they have had no complaints.  Hmm

 

In the end, I think I am having screening tests regardless- hoping that a little more bloating and reaction won't be a big deal.  I am hoping that skin contact won't be too much of a problem for a one time deal

 

For all who have a problem with corn:  I saw information on the internet about all of the names for corn and its products.  They included Dextrose and Glucose which are in IV solutions.  I heard there is IV fluid without it, but am unsure of its name.

 

I can't understand the" it is safe for you attitude."  I especially wonder about me, when I jump on board thinking that it can't be too bad.

 

D

I can't help but wonder if these are minor allergies rather than intolerences or celiac due to the skin reactivity.

 

To be fair, not everyone knows what is in the items that are used, especially things like the adhesive strips. 

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Yes, it may be allergies, however, my IgE level is minimal which the MD says means that I am not an allergenic person.

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Life is difficult when you react to more things than the typical celiac.  You have to stick to what you know works for you.  You have to research ingredients before trying things.  You have to minimize risk as much as you can.  You have to not live in fear despite all that.  You have to try not to feel like you are crazy and overreacting.  When you get sick, you have to be patient until you feel better again.  You need to learn from the experience so that you don't repeat it.  It's not easy.  It is well worth the effort.

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