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There will be an episode of Mystery Diagnosis on The Learning Channel dealing with Celiac this week. (I think it's Thursday, but I'm not sure.)

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Mystery Diagnosis - Like Mother, Like Son will air on Discovery Health Channel on October 28 at 8:00 p.m. and October 30 at 5:00 p.m. It is about a child discovered to have Celiac Disease.

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Discovery health channel--is that different from the regular Discovery Channel?

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Discovery health channel--is that different from the regular Discovery Channel?

<{POST_SNAPBACK}>

Yep, unfortunately. Sometimes they will put things on the regular Discovery or TLC from the health channel to promote the health channel, but not on a regular basis. It costs way too much for me to extend my cable to include the health channel, darn it. But a friend at work saw that program already and told me about it (and this was after I had a fiasco at a seminar where the meal was provided, banquet style). He said that the mother had celiac disease, didn't realize that her boy had it too, as he was asymptomatic. But he did have learning/memory problems. It was because of that that he was dx with celiac disease. My friend said that she was feeding him healthy foods, but starving him at the same time because of the malabsorption issues. At least ONE person in my office has a better understanding of what I can experience if glutened.

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My boss saw it, told me all about it. It was cool, I think she understands it alot more now. She's been cool about it but has been hinting that I've been kinda hypochodriacing a little. I flipped out at someone cause they were eating a sandwich and just walked up and put thier hand in the bag of Cheetos I was munching on, I just gave him the cheetos. She thought I was overreacting, and now she's like "wow, its really hardcore and they think lots of people have it" So its getting out there, slowly.

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Thank you! I just set my TiVo to record that. :D

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Yep, unfortunately.  Sometimes they will put things on the regular Discovery or TLC from the health channel to promote the health channel, but not on a regular basis.  It costs way too much for me to extend my cable to include the health channel, darn it.  But a friend at work saw that program already and told me about it (and this was after I had a fiasco at a seminar where the meal was provided, banquet style).  He said that the mother had celiac disease, didn't realize that her boy had it too, as he was asymptomatic.  But he did have learning/memory problems.  It was because of that that he was dx with celiac disease.  My friend said that she was feeding him healthy foods, but starving him at the same time because of the malabsorption issues.  At least ONE person in my office has a better understanding of what I can experience if glutened.

<{POST_SNAPBACK}>

Aww...darn.

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I just watched that! I should've recorded it! Those catatonic seizure like episodes the kid had are like the ones I had as a child... they tested me for epilepsy and dx it as "non specific seizure disorder" Wild...

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Those catatonic seizure like episodes the kid had are like the ones I had as a child... they tested me for epilepsy and dx it as "non specific seizure disorder" Wild...

I couldn't watch it unfortunately. But I'm starting to get interested. What's that? Catatonic seizure like episodes...? testing for epilepsy...? I didn't know, that was possible. Waaay long ago in germany I once had a blood test and my doctor told me, that I have to be careful not to get an epileptic attack??? (not sure what you call this in english???) What's this? And how could he find out with a normal blood test??? Weird...

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it's hard to describe... in my case I had periods where I would "zone out" where I was aware of everything going on around me but I couldn't respond at all, and outward appearances looked like I was daydreaming or just not paying attention... but I also had episodes where I would involuntarily jerk all over for a few seconds and forget everything I was saying right before it happened.

Neurological disorders are now being recognized as being connected to celiac and gluten intolerance, the boy on the show didn't have any digestive symptoms, only neurological ones.

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and outward appearances looked like I was daydreaming or just not paying attention...

Sounds like me, but I never actually "zoned" out!

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Neurological disorders are now being recognized as being connected to celiac and gluten intolerance, the boy on the show didn't have any digestive symptoms, only neurological ones.

<{POST_SNAPBACK}>

This is great that they chose to showcase smoeone with neurological symptoms. I find it hard for people to comprehend (believe) how much gluten effects my brain. I think you say food intolerance and people just figure if you eat too much of that food you'll have to run to the bathroom. FOr me it's nothing like that. It's good that they are shattereing the celiac myth of it just being a GI problem.

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I had few gut issues, it was all weight, mental and fatigue issues. The brain fog would get so bad I was like a zombie sometimes.

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If you go to the Discovery Health Channel website, offshoot of Discovery Channel, they offer you a chance to find out when a show will re aired; and enter in the title of it and they'll email you when it's on next time.

D.

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It's going to run again April 9th.

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Guhlia -- Thank you. I'm going to tune in...

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    • Hi, Ok good advice and I am sincere when I say how much I appreciate a lot of the responses, advice and encouragement that have been posted here. I'm not sure what a nutrionist is but a dietician (here in the U.K.) is a heavily regulated medical profession and my dietician is based most of her week in a hospital where doctors and MD's as they are known refer patients to her for help. She works every day with celiacs, dh sufferers and people with crohns, ibs etc and seeing my skin, listened to what I was saying (particularly about how my redness and blisters resolved on a gluten free (though not wheat free) diet for several years, and sent a report to my doctor/MD requesting a battery of tests - tests that can indicate dh, celiac and associated complications. I also have a friend with a wheat allergy and two with celiac (all diagnosed) and they are encouraging me to go ahead with getting these particular tests. So that's great but reading the above quote that suggests that situations like sharing an oven used to cook gluten-containing pizza, should not cause a gluten reaction. I thought, my god what's the point of going through these tests if my recent reactions aren't actually to do with gluten. Although my dietician is concerned about possible dh and has been through years of medical school, I also really trust the advice of an advanced member on this site and if they think oven-sharing shouldn't cause any gluten reaction, what hope do I have with an MD? It has taken me years to pluck up the confidence to ask for any medical help because I feared that sort of response along with a focus on psychological issues and hormones etc early on in the thread (even though, I only started feeling depressed since yesterday). Actually, I'm a mental health nurse so it's good to see people are alert to these issues but I am also pretty familiar with depression and I know that many people with physical health problems are fobbed off by doctors with talk of depression, stress, and hormones. I'm sorry that I took the (above) quote to heart and I know that I allowed that to colour my perception of the whole thread, which has been helpful in many ways. Best wishes to you all, even those I didn't agree with! Rhian 
    • I thought maybe doing a trial period to see if he reacts positively to being gluten free and then adding it back to see if symptoms come back would maybe be helpful to the doctor? But I guess that's true, it might skew things regarding any future tests that might be warranted. 
    • If you haven't had her tested yet please do not go gluten free. Get the celiac testing first as if she does feel better gluten free when she has to go back on gluten for testing she may have much worse symptoms.  There will also be a higher risk of false negatives.
    • I did not mean to imply that you should put him on a gluten free diet.    If you suspect a problem with gluten, please get an opinion from a GI who is celiac savvy.  All celiac testing requires a patient to be consuming gluten.  The slightly equivocal TTG?  That warrants a gene test at the very least.   http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf  
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