Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Documentary Show


JenM

Recommended Posts

JenM Apprentice

There will be an episode of Mystery Diagnosis on The Learning Channel dealing with Celiac this week. (I think it's Thursday, but I'm not sure.)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kevsmom Contributor

Mystery Diagnosis - Like Mother, Like Son will air on Discovery Health Channel on October 28 at 8:00 p.m. and October 30 at 5:00 p.m. It is about a child discovered to have Celiac Disease.

Link to comment
Share on other sites
celiac3270 Collaborator

Discovery health channel--is that different from the regular Discovery Channel?

Link to comment
Share on other sites
nettiebeads Apprentice
Discovery health channel--is that different from the regular Discovery Channel?

<{POST_SNAPBACK}>

Yep, unfortunately. Sometimes they will put things on the regular Discovery or TLC from the health channel to promote the health channel, but not on a regular basis. It costs way too much for me to extend my cable to include the health channel, darn it. But a friend at work saw that program already and told me about it (and this was after I had a fiasco at a seminar where the meal was provided, banquet style). He said that the mother had celiac disease, didn't realize that her boy had it too, as he was asymptomatic. But he did have learning/memory problems. It was because of that that he was dx with celiac disease. My friend said that she was feeding him healthy foods, but starving him at the same time because of the malabsorption issues. At least ONE person in my office has a better understanding of what I can experience if glutened.

Link to comment
Share on other sites
elonwy Enthusiast

My boss saw it, told me all about it. It was cool, I think she understands it alot more now. She's been cool about it but has been hinting that I've been kinda hypochodriacing a little. I flipped out at someone cause they were eating a sandwich and just walked up and put thier hand in the bag of Cheetos I was munching on, I just gave him the cheetos. She thought I was overreacting, and now she's like "wow, its really hardcore and they think lots of people have it" So its getting out there, slowly.

Link to comment
Share on other sites
jrom987 Apprentice

Thank you! I just set my TiVo to record that. :D

Link to comment
Share on other sites
celiac3270 Collaborator
Yep, unfortunately.  Sometimes they will put things on the regular Discovery or TLC from the health channel to promote the health channel, but not on a regular basis.  It costs way too much for me to extend my cable to include the health channel, darn it.  But a friend at work saw that program already and told me about it (and this was after I had a fiasco at a seminar where the meal was provided, banquet style).  He said that the mother had celiac disease, didn't realize that her boy had it too, as he was asymptomatic.  But he did have learning/memory problems.  It was because of that that he was dx with celiac disease.  My friend said that she was feeding him healthy foods, but starving him at the same time because of the malabsorption issues.  At least ONE person in my office has a better understanding of what I can experience if glutened.

<{POST_SNAPBACK}>

Aww...darn.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I just watched that! I should've recorded it! Those catatonic seizure like episodes the kid had are like the ones I had as a child... they tested me for epilepsy and dx it as "non specific seizure disorder" Wild...

Link to comment
Share on other sites
stef-the-kicking-cuty Enthusiast
Those catatonic seizure like episodes the kid had are like the ones I had as a child... they tested me for epilepsy and dx it as "non specific seizure disorder" Wild...

I couldn't watch it unfortunately. But I'm starting to get interested. What's that? Catatonic seizure like episodes...? testing for epilepsy...? I didn't know, that was possible. Waaay long ago in germany I once had a blood test and my doctor told me, that I have to be careful not to get an epileptic attack??? (not sure what you call this in english???) What's this? And how could he find out with a normal blood test??? Weird...

Link to comment
Share on other sites
Guest nini

it's hard to describe... in my case I had periods where I would "zone out" where I was aware of everything going on around me but I couldn't respond at all, and outward appearances looked like I was daydreaming or just not paying attention... but I also had episodes where I would involuntarily jerk all over for a few seconds and forget everything I was saying right before it happened.

Neurological disorders are now being recognized as being connected to celiac and gluten intolerance, the boy on the show didn't have any digestive symptoms, only neurological ones.

Link to comment
Share on other sites
stef-the-kicking-cuty Enthusiast
and outward appearances looked like I was daydreaming or just not paying attention...

Sounds like me, but I never actually "zoned" out!

Link to comment
Share on other sites
cornbread Explorer
Neurological disorders are now being recognized as being connected to celiac and gluten intolerance, the boy on the show didn't have any digestive symptoms, only neurological ones.

<{POST_SNAPBACK}>

This is great that they chose to showcase smoeone with neurological symptoms. I find it hard for people to comprehend (believe) how much gluten effects my brain. I think you say food intolerance and people just figure if you eat too much of that food you'll have to run to the bathroom. FOr me it's nothing like that. It's good that they are shattereing the celiac myth of it just being a GI problem.

Link to comment
Share on other sites
ianm Apprentice

I had few gut issues, it was all weight, mental and fatigue issues. The brain fog would get so bad I was like a zombie sometimes.

Link to comment
Share on other sites
  • 4 months later...
ms-sillyak-screwed Enthusiast

Did this show ever air again?

Link to comment
Share on other sites
debmidge Rising Star

If you go to the Discovery Health Channel website, offshoot of Discovery Channel, they offer you a chance to find out when a show will re aired; and enter in the title of it and they'll email you when it's on next time.

D.

Link to comment
Share on other sites
Guhlia Rising Star

It's going to run again April 9th.

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast

Guhlia -- Thank you. I'm going to tune in...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,090
    • Most Online (within 30 mins)
      7,748

    Nicole K
    Newest Member
    Nicole K
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • trents
      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
×
×
  • Create New...