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Been Gluten Free For The Better Half Of 2-3 Years. Haven't Gained A Pound, Why? Help Me Out Here.
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So About 3 years ago when i was 19 I was diagnosed with celiac disease. I've been gluten free for the better half of those 3 years have haven't gained a single pound, no matter what or how much gluten-free food i eat. I really just am tired of being underweight, I'm 22 and barely at 100 pounds, if my gluten-free diet doesn't work and I havent put on a pound, what can i do to make my body GAIN WEIGHT!??? I've been thin my entire life so I've probably had celiac disease for a long long time.

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It's hard to say without more information.

 

1)  How tall are you?  Male or Female?

2)  Are you tracking your calories (e.g. food journal).

3)  Are you consuming enough food to meet your weight goals?

4)  Have you followed up with celiac disease testing to insure you are adhering to the diet?

5)  Do you have any food intolerances?

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Well (and she's swallowing her jealousy a bit!), how many calories are you taking in versus how many calories are you burning? Are you healthy otherwise? As cyclinglady notes, are there other issues in addition to celiac? Are you working actively to build muscle mass? And, are you the type who is naturally lean? Finally, have you talked to your doctor about this?

 

Eating gluten-free isn't a guarantee of gaining weight. There are a lot of factors. All bodies are different, but if you are worried, please talk to your doctor.

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Have your villi healed?  Perhaps you are not absorbing the foods you eat.  You could do endoscopy to find this out.  I have my nutrient levels checked to see If they are being absorbed.  Have you also tried digestive enzymes to help break down your foods?

 

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    • I agree, it's very unlikely she doesn't have celiac disease.  Can you find a local celiac group to get a doctor recommendation from?  They might have the best idea of a local doctor who is familiar with celiac disease.  There is also a doctors sub-section of this forum which might help find one.  http://www.celiac.com/gluten-free/forum/6-celiac-disease-doctors/
    • Hi I'm newly diagnosed with coeliacs only 5 days ago so I have had 4 days gluten free , I felt more energised pretty quick but today have gone back to that sluggish feeling lethargic, could this be a withdrawal effect also did anyone have swelling whilst on gluten ?
    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
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