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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hives?
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13 posts in this topic

Have any of you experienced hives that don't seem to be related to gluten?  

 

I've had environmental allergies all of my life- so I'm well versed in hives.  For the past few months, they have been popping up in the same place (the sides of my face and/or neck- yesterday underneath my bottom lip) and I can't seem to find one singular reason.  

 

It is definitely not gluten as I have not been bloated at the times when this happens.  I have also recently removed large amounts of corn and dairy when I realized they contributed to my bloating and digestive misery, but can handle small amounts.  The hives have popped up when all I was drinking for hours was wine and then not appeared when I had wine (both times it was white).  The same goes for other foods- they show up and then they don't. They have reared their ugly heads when I haven't eaten for hours.  I'm guessing it is more connected to stress, but was interested in what the experience of others have been.  Sometimes I don't feel particularly stressed when they appear, so I'm at a loss.  Has anyone experiences stress hives??? 

 

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Urticaria can appear with high histamine foods.

I get these crazy spots on my face and scalp when I indulge in too many of them at once.

Check this out and see if it applies?

 

High histamine level foods:

  • Alcohol--esp. wine and beer
  • Pickled or canned foods – sauerkrauts
  • Matured cheeses
  • Smoked meat products – salami, ham, sausages….
  • Shellfish
  • Beans and pulses – chickpeas, soy beans, peanuts
  • Nuts – walnuts, cashew nuts
  • Chocolates and other cocoa based products
  • Most citric fruits
  • Vinegar
  • Ready meals
  • Salty snacks, sweets with preservatives and artificial colourings

Histamine liberators:

  • Most citric fruits – kiwi, lemon, lime, pineapple, plums…
  • Cocoa and chocolate
  • Nuts
  • Papaya
  • Beans and pulses
  • Tomatoes
  • Additives – benzoate, sulphites, nitrites, glutamate, food dyes
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Urticaria can appear with high histamine foods.

I get these crazy spots on my face and scalp when I indulge in too many of them at once.

Check this out and see if it applies?

 

High histamine level foods:

  • Alcohol--esp. wine and beer
  • Pickled or canned foods – sauerkrauts
  • Matured cheeses
  • Smoked meat products – salami, ham, sausages….
  • Shellfish
  • Beans and pulses – chickpeas, soy beans, peanuts
  • Nuts – walnuts, cashew nuts
  • Chocolates and other cocoa based products
  • Most citric fruits
  • Vinegar
  • Ready meals
  • Salty snacks, sweets with preservatives and artificial colourings

Histamine liberators:

  • Most citric fruits – kiwi, lemon, lime, pineapple, plums…
  • Cocoa and chocolate
  • Nuts
  • Papaya
  • Beans and pulses
  • Tomatoes
  • Additives – benzoate, sulphites, nitrites, glutamate, food dyes

 

Irish, forget Ode to Celiac I am about to have an Ode to Yule!  Oops!  I meant you...  (It's Christmas, ya know)  So, I was reading your above post and it may be the answer to the spots that arrived and grow irritated in the shower.  I had started taking Osteo-Biflex and I think some of its main ingredients are derived from shellfish.  I am most likely reacting to that concentrated dose.  The spots started around the same time I began taking it.  It makes so much sense but never put 2 and 2 together until I read the above.  It's still present but doesn't seem to be getting worse and actually seemed a little better one morning after I went to bed on a bowl of frozen rasperries and blueberries.  Hmm.  We'll see.

 

I was taking the Osteo in helps of helping to mend some soft tissues.  Oh well.

 

Merry Christmas!

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Irish, forget Ode to Celiac I am about to have an Ode to Yule!  Oops!  I meant you...  (It's Christmas, ya know)  So, I was reading your above post and it may be the answer to the spots that arrived and grow irritated in the shower.  I had started taking Osteo-Biflex and I think some of its main ingredients are derived from shellfish.  I am most likely reacting to that concentrated dose.  The spots started around the same time I began taking it.  It makes so much sense but never put 2 and 2 together until I read the above.  It's still present but doesn't seem to be getting worse and actually seemed a little better one morning after I went to bed on a bowl of frozen rasperries and blueberries.  Hmm.  We'll see.

 

I was taking the Osteo in helps of helping to mend some soft tissues.  Oh well.

 

Merry Christmas!

I am replying to myself to say that my punctuation and sentence structure in this post is disgusting.

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I am replying to myself to say that my punctuation and sentence structure in this post is disgusting.

Hahaha!!  I didn't notice, honestly!

 

Irish Heart for the win....AGAIN!!  Thank you so very much.  I thought may be it was a combination of chocolate and the wine, but then they appeared without wine and I couldn't figure it out.  This should be it.  Today it must have been the two helpings of nutella and potato chips (almost worth the hives, really).  Are there certain times when you are more reactive than others.  If stress is another component, it would answer every "but what about...".  There have been a couple times when they appeared and I hadn't eaten in hours.

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I get hives from topical gluten. Lotions, makeup, shampoo, etc... I used a natural wheat based cream on my sunburnt arms once and they swelled right up and looked like I had been attacked by a swarm of bees! Check your bottles ingredients

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Irish, forget Ode to Celiac I am about to have an Ode to Yule!  Oops!  I meant you...  (It's Christmas, ya know)  So, I was reading your above post and it may be the answer to the spots that arrived and grow irritated in the shower.  I had started taking Osteo-Biflex and I think some of its main ingredients are derived from shellfish.  I am most likely reacting to that concentrated dose.  The spots started around the same time I began taking it.  It makes so much sense but never put 2 and 2 together until I read the above.  It's still present but doesn't seem to be getting worse and actually seemed a little better one morning after I went to bed on a bowl of frozen rasperries and blueberries.  Hmm.  We'll see.

 

I was taking the Osteo in helps of helping to mend some soft tissues.  Oh well.

 

Merry Christmas!

Merry Christmas to you! :)

I discovered I had a problem when I kept having weirdo symptoms like unexplained fatigue, GI wonky stuff, blisters on my lip and scalp, even what felt like chest congestion, yet I have no known allergies.

The worst symptoms are racy heart and insomnia, but I knew it wasn't gluten getting in.

I read a ton about histamine intolerance and how it could very well occur in celiacs because of course, the DAO enzyme that regulates histamine is produced in the gut. Impaired gut = impaired production of the enzyme. Made sense to me, so I asked my Gi doc who said "that's brilliant. That makes total sense!" The only thing to do is remove the offending foods for 2 weeks and then add them back in one at a time, slowly, to see what level your body can handle.

 

I am not the only one with this issue on here: GottaSki Lisa and Jebby have it and they even have anaphylaxis at times and carry epipens.

However, like me, they control it better with the use of probiotics and Quercetin (and I know that some people take a DAO supplement but I did not notice any benefit from that at all)

 

HIT is not really recognized in this country (yet) but the UK and many EURO docs are well aware of it. 

 

I am replying to myself to say that my punctuation and sentence structure in this post is disgusting.

 

I did not notice a thing! :)

Hahaha!!  I didn't notice, honestly!

 

Irish Heart for the win....AGAIN!!  Thank you so very much.  I thought may be it was a combination of chocolate and the wine, but then they appeared without wine and I couldn't figure it out.  This should be it.  Today it must have been the two helpings of nutella and potato chips (almost worth the hives, really).  Are there certain times when you are more reactive than others.  If stress is another component, it would answer every "but what about...".  There have been a couple times when they appeared and I hadn't eaten in hours.

 

It can be delayed. Like a day or so. It's not always immediate. 

Histamine accumulates in the body, so you may have wine one day and be fine, Then, chocolate and tomatoes and scallops the next day. Then, maybe some salami....

By day 3, you've got spots.

 

Oddly, I can have vodka with soda and lemon--every day if I want and  no problem at all. Bacon and

maybe a bit of hard cheese...still okay..on the weekend, .

a few glasses of champagne and chocolate...and some pasta sauce.? ..bam...nice big honking lip sore. dang! got a doozy right now. geesh!

 

Accumulation is the problem...so go low histamine or no histamine if possible and see if they clear up.

 

I get hives from topical gluten. Lotions, makeup, shampoo, etc... I used a natural wheat based cream on my sunburnt arms once and they swelled right up and looked like I had been attacked by a swarm of bees! Check your bottles ingredients

 

Then, it sounds like you've got a wheat allergy on top of a gluten intolerance. Unless maybe the sunburn caused the bumps. That can happen, too.

Topical gluten would not spark a response in a celiac because we have to ingest it to cause the immune response.

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And, also meant to mention to EERSO3,

 

I had to stop taking a joint/bone/connective supp because of the shellfish too. It gave me burning skin sensations after taking it for months.

 

I finally had the light bulb moment ...(duh! shellfish in the supp, Dummy!) < that was my internal chatter. lol

 

I finally went with BioCell Collagen type II for joint and tissue repair, or you could take unflavored gelatin.

Both the hubs and I think the collagen has really helped with our ouchy joints (and a side benefit for me is stronger hair and less wrinkles!) lol

 

My hair was deeply affected by celiac--lost a lot of it before diagnosis --and it made me very sad, but it is coming back, thank goodness.

 

Just some thoughts! :) 

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I am not the only one with this issue on here: GottaSki Lisa and Jebby have it and they even have anaphylaxis at times and carry epipens.

However, like me, they control it better with the use of probiotics and Quercetin (and I know that some people take a DAO supplement but I did not notice any benefit from that at all)

Looks like I'll be scheduling in some quality time with my allergist- who is very nice, but I swear thinks I'm nuts.  I thought yesterday that my larynx felt tight and I was getting hoarse- although no visible swelling in the neck or throat.  My breathing was not normal, but that also happens when I get panic-y. I kept telling myself it was all in my mind.  Thank you!  Thank you!  Thank you!!!

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Looks like I'll be scheduling in some quality time with my allergist- who is very nice, but I swear thinks I'm nuts.  I thought yesterday that my larynx felt tight and I was getting hoarse- although no visible swelling in the neck or throat.  My breathing was not normal, but that also happens when I get panic-y. I kept telling myself it was all in my mind.  Thank you!  Thank you!  Thank you!!!

 

 

Do not be disappointed if she says there's  "no such thing"....or "we don't test for that". (insert eye -rolling emoticon thinger here)

 

PM Jebby (she's a doctor with celiac) and she's a real sweetheart and  can tell you which tests to ask for.

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I used to get hives that started out about 3 am in my warmest spots under arms thys by like 10 am my boudy would be covered. By noon they would be gone. I took pics tho to show the Dr. He put me on two zyrtec a day. I couldn't figure out what it was. Altho I did think it was smoked meat. But everyone told me it couldn't be. But Anywhoo if I stopped taking them then it ould start in a couple days , so I would just keep taking them , now I know I have Celiac and changed my diet , I stopped taking the zyrtec and I have not had hives since. (Knock on wood) LOL I have suffered with allergies all my life. So I figured it's just getting worse as I age. Good luck!! Hope you figure it out. 

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    • Weird Reaction
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      I have not. I'll talk to my doctor about it
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