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Titer Test And Celiac Disease Ige Response
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I am Rh- and pregnant. Baby is doing fine; kicking, punching, rolling, growing. Have not had an ultrasound to check for swelling of the liver or heart yet. Will do soon.

 

My main interest here with this situation is this:

 

I had a titer test done to see my antibody response sensitivity results. My baby is more than likely O+. I am obviously O-. This is my second child, first was O+ and born perfectly, a natural healthy home birth with nothing wrong with him at all, of course he was the first and the immune system would more than likely not attack his blood cells. Second pregnancy is however the kicker. My husband and I do not plan on having another and are prepared to avoid a third pregnancy. So the focus here is on the titer test at hand.

 

The titer test checks the antibody response to a potential viral threat in the body (sometimes seen as the O+ blood of the baby). The test shows that it is the IgE that is being tested. The IgE is also one of two major white blood cell responses that are tested for in a celiac panel. In fact, my titer results came back that my white blood cell count is a little high and my red is low.The results of the antibody response were D8. I have had another titer done but must wait for results for 10 days. Which is a very low result, not enough to be concerned with the baby safety, if you disagree you need to do further research. I am concerned that the celiac immune response is affecting the titer test results. I am concerned that doctors will not do further research and push a pregnant woman and her baby too far and too fast into: induction, intervention, C-section, or worse. Causing an even GREATER risk of the baby's life than allowing the child at a titer level of D8 to reside in his safety and further develop under close monitoring by ultra sound and titer tests until he or she is fully developed and ready to enter the world through a vaginal birth. I say a vaginal birth because intervention often causes the mother's blood and baby's blood to mix and that is the danger at hand. If the blood mixes, mother's white blood cells could kill the baby's red blood cells, causing him to starve of oxygen and nutrients leading to a whole slew of serious health risks and possible death of the baby. Intervention at this time is NOT the answer of course, being the titer is so low.

 

I'm going into detail, but the main questionable problem I see is the same immune response of the IgE for both cases: celiac disease and titer test results.

 

Doctors have not done enough research to know how to answer this question: Is celiac disease affecting the IgE immune response or am I getting conclusive results from the titer test? Can I trust the titer test to be accurate? Accurate enough to risk my baby's life?

 

SO far my conclusion is: No.

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Have you tried contacting the University of Chicago Celiac Center via email with your questions? They may be able to point you to an expert who has death with this.

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I sent them an email, hope it gets to them soon. Got test results back and my D8 has skyrocketed to D64, although I have had several including one bad gluten reaction between those tests. I am very very sensitive to gluten and other things. Now I am informed that the area where my husband and I live can no longer accommodate such a high risk baby. We will be shipped out to Spokane WA. Sigh, I want more information before being rushed into something that could potentially be dangerous for me and the baby, besides my immune system reacting to his blood. For a child to die peacefully on his mother's breast would be a greater gift I could give him than to die stuck with drugs and tubes in a plastic case away from mom's touch. I don't want my child to be forced through this in his last days. Now we need some prayer from people who are dead serious that they care.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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