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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

It Was A Christmas Miracle!
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6 posts in this topic

My youngest daughter suffers from the most severe celiac disease of all of us (me and my other 2 daughters). After more than a year of seeing many different doctors (investigating things like refractive celiac, interstitial cystitis, and other things) this child finally found exactly 5 foods that she could safely eat and ate them for more than a year: white rice, apples, plain chicken (no spices whatsoever), cauliflower, and eggs. She lost about 40 lbs. but was finally able to start bringing one food at a time back into her diet. She can now eat a lot more but has many sensitivities still... things like certain nightshades, some oxalate foods, dairy, etc).

 

She went to an old favorite haunt in Portland, OR, on Christmas day/evening because they were having a karaoke contest and she'd won one there a few years ago. She had to sing 3 songs and the audience were the final judges.

 

She told me she had two (very mild) drinks and a soda and a water. She sang her first song and while she was waiting her turn to sing her second one, she made it to the bathroom to throw up all the liquid in her stomach. She sang her second song and while waiting for the third had to run to the bathroom and barf again. She sang the third song... won $100 and left to go home praying the whole way that she wouldn't throw up in the car. She made it home, threw up in the parking lot, and spent the better part of the night w/ a waste basket next to her bed. The ONLY thing she can think might have caused her sickness was the possibility of cross contamination with bar drink dispensers or maybe the bartenders having beer on their hands while they dispensed her drinks! Yikes!!

 

When she told me this whole story... she was laughing about her Christmas miracle... that she won $100 and didn't throw up in public!!

 

Ya gotta laugh!!

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Yep, you do have to laugh.  Congratulations, she deserved more than winning the contest!

D

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I'm sure she has put a lot of practice and dedication to her singing... but it is nice to see talent overcome obstacles!  Congratulate her for all of us here on the forum. :D

 

She had that competition in the bag.  (barf bag)  just trying to be punny

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I used to tend bar. The mugs and glasses where I worked were cleaned in a three-part sink. The first one was filled with water and a cleaning solution, and it had motorized brushes that we were supposed to run both inside and on the outside of the glasses. (I'm not explaining this well. Sorry.) The second sink was clear water for rinsing. The third sink had a "sanitizing solution" in it.

 

The thing is, when it was busy, the mugs and glasses didn't really get the full treatment. One quick stab of the rotating brush on the inside, then a quick rinse. And after a short time, that first sink was full of water, soap, AND beer.

 

I'm not saying that's what caused the CC, but it might be. Maybe she can bring her own glass next time?

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You may have hit the nail on the head, bartful! I know exactly what you're talking about w/ the bar sinks.

 

The poor kid is such an expert thrower-upper... which sounds like a good thing but is SOOO not!

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I meant to add... she's an awesome singer. She used to frequent this karaoke place a lot and has sent me several mp3's of her singing and was able to put 2 of her singing on video onto youtube for her proud mama. She recently answered an ad in the paper and is the singer in a cover band. She's not quitting her day job (as a fitness and physical/occupational therapy gym trainer for special needs kids) but she's having the time of her life!

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    • Starting out
      I guess you must have to be a member then. I don't know because I am a member. It doesn't cost anything & I've never gotten any junk mail from them or anything unpleasant.  Gee, I didn't even think about that when I posted the link. OOPS! Let me know if you need me to copy & paste it because I will if you want.  
    • Starting out
      Hey, do you have to be a member of Medscape to see the article?  I could not get in pass the sign-in page.  
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    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
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      Hi Peaceflower, Just wanted to say thank you for the chat.
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