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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Thyroid Problems - Nodule
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13 posts in this topic

Hello Fellow Celiacs

 

An MRI scan has just revealed that I have a thyroid nodule.   I am yet to have the ultrasound etc to confirm what type it is.  I was so surprised at yet another new diagnosis of something else that I didn't ask for details, but I imagine it measures about 1cm from what I saw on the scan.  For some reason or another he couldn't actually feel it when he examined my neck.  I certainly can't!

 

I was just wondering if anyone else out there has had one of these.  My consultant seems quite low key about it, he says a lot of ladies of my age have them.  I'm in my mid-forties and if I have another thyroid problem blood tests have not revealed it, although I do feel colder since giving up gluten.  I realise there is some risk of it not being benign, but I was just interested to know if anyone has had one - or has one.  

 

Thanks!

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Hi Cristiana,

 

I have had a large one and some smaller satellites on my Thyroid for about two years now.  I also have hypothyroidism.  It has not really effected my thyroid levels that  I know of because I was also being treated for cancer and that does effect thyroid levels which it did.  They will probably do an ultra-sound every 6 months for awhile and look for size changes unless, of course, it is malignant.

 

Good luck and let us know how it come out.

 

Colleen

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Hi Cristiana,

 

I have a couple nodules and a cyst on my thyroid.  If you spend some time reading about thyroid nodules you will find that they are quite common in fact.  Most people have them or will have them as they age.  Over 90% of the time they are benign.  Just a hardening of the tissue or something.  They can do an FNA (fine needle aspiration) to take a biopsy sample for testing. You probably won't even feel that.  Nodules are not something to worry about usually.

 

People's thyroids slowdown as they age and produce less thyroid hormone.  So everyone becomes hypothyroid as they age.

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Thanks so much for getting back to me so quickly.   I must admit it wasn't news I expected.   I gather to have one is of more concern than several, but I guess it is possible that I might have more than one, as I don't think the MRI scan shows them in the best detail.   

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Hi Christiana,

 

Yes, an ultrasound is what my thyroid doctor said is better.  Cheaper and less intrusive than an MRI or cat scan, and works just fine.  Plus that warm gel on your throat feels kinda nice.  Can be a bit messy though, so don't wear really nice clothes to the ultrasound.  They have you lie down on a table and glurp some gel on your neck and run the US around, back and forth a while.  Doesn't hurt at all, but might take a bit to get good images.  Probably 15 minutes or so.

 

I've had nodules for years.  One at first but then another after a few years.  Thyroid nodules like company it seems.

 

About com Mary Shomon on thyroid issues

 

http://thyroid.about.com/cs/nodulesgoiters/a/nodules.htm

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Thank you for that extremely helpful link...   and for that advice about the ultrasound, it doesn't sound at all bad really.  It is interesting that you started off with one, then another came along.  Do you know, do they ever just 'disappear'?

 

I don't know of anyone in our family who has a thyroid problem so I really appreciate your and Colleen's comments.  It is interesting to read that thyroid problems and celiac go hand in hand.  No one in my family is a celiac, and all my celiac friends have never looked back since embarking on their gluten-free diet, whereas I just keep struggling from one new health issue to the next!  

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I have had Hashi's for 16 years. Was diagnosed when the nodules were found during a routine exam. They have never changed. Hope that gives you more piece of mind.

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I have had Hashi's for 16 years. Was diagnosed when the nodules were found during a routine exam. They have never changed. Hope that gives you more piece of mind.

That is very reassuring.  Thank you.   My thyroid has seemed off for some months now,  my hair is thinner and I really feel the cold like never before.  How do they treat Hashi's if you have nodules?

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Thank you for that extremely helpful link...   and for that advice about the ultrasound, it doesn't sound at all bad really.  It is interesting that you started off with one, then another came along.  Do you know, do they ever just 'disappear'?

 

I don't know of anyone in our family who has a thyroid problem so I really appreciate your and Colleen's comments.  It is interesting to read that thyroid problems and celiac go hand in hand.  No one in my family is a celiac, and all my celiac friends have never looked back since embarking on their gluten-free diet, whereas I just keep struggling from one new health issue to the next!  

 

I don't think they disappear Cristiana.  They tend to have babies instead!  They really aren't something to worry about usually.  Many people have them and never even know it.  On the odd chance that there is a bad one, they would probably remove the thyroid, and start you on thyroid replacement hormones.  But that is only a 10% chance or less.  Thyroid nodules are a normal part of life, and most people have them at some point.

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Thank you GFinDC, I am beginning to wonder if I would be doing better on replacement hormones anyway - mine don't seem that effective anymore!   Interesting what you say about many people having them and never knowing it -  I was thinking today at church there's probably about ten people here with the same condition but they don't know it!    Thanks again all for your support.

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That is very reassuring.  Thank you.   My thyroid has seemed off for some months now,  my hair is thinner and I really feel the cold like never before.  How do they treat Hashi's if you have nodules?

I started with a small dose of thyroid replacement in an attempt to bring down my thyroid antibodies (which were the highest my docs had ever seen) even though my TSH was in the normal range. Over the years my dosage increased. Two years ago I experienced a thyroid storm going from hyper to hypo on almost a daily or weekly basis. My Mom has Graves and I can tell you it is better to be hypo than hyper. My mom has permanent eye damage, ugh! On top of this storm, came menopause issues and then celiac disease. Everything has stabilized now since going gluten-free.

If you have thinning hair and are feeling cold, you should have a complete thyroid panel done. You might need thyroid replacement.

Take care.

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I just received my sono results for my thyroids. Came back with six nodules . Two look like cyst and one is over 2 inches on diameter. I will be going to get eight biopsies to check for cancer. Then once i get the results back I will get a full removal. I have constant sinus infections and truly feel it is because of my thyroid. I am scared, and tired of being diagnosed with another problem. Celiac is truly causing so many problems for me when it comes to other autoimmune diseases. I hope that once I get my thyroid removed, the anxiety problems and sinus problem subside.it's comforting to know that I am not the only one going through this, or been through this. Luck and blessings to all

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I just received my sono results for my thyroids. Came back with six nodules . Two look like cyst and one is over 2 inches on diameter. I will be going to get eight biopsies to check for cancer. Then once i get the results back I will get a full removal. I have constant sinus infections and truly feel it is because of my thyroid. I am scared, and tired of being diagnosed with another problem. Celiac is truly causing so many problems for me when it comes to other autoimmune diseases. I hope that once I get my thyroid removed, the anxiety problems and sinus problem subside.it's comforting to know that I am not the only one going through this, or been through this. Luck and blessings to all

Hi Stella.  I am sorry, like quite a few of us on the forum, sometimes it does feel as if the celiac test is just the tip of the iceberg!  

 

My thyroid ultrasound came back showing I had several tiny nodules, but one over 1cm, so they told me I could keep it if they found that it was normal but guess what... they didn't get enough cells to be 100% sure!   So I have another biopsy in a few months.  

 

I am currently seeing five different specialists for different things so I do sympathize.  Everything was fine until I got ill then diagnosed with celiac, and it has been downhill ever since! This is a great website as it shows that there are other celiacs going through similar things, heartening to know when most of the celiacs I have met in my home town etc seem to have gone from strength to strength since they went gluten free.  Not me :(

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