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Celiac Without Many Digestvie Issues?

joint pain fractures vision changes abdominal pain mono ear infections

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#16 IrishHeart

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Posted 10 January 2014 - 05:19 AM

  Pretty much every day she is having some kind of pain. Maybe not all day, and maybe not severe, but something is always bothering her.  I don't think she is making it up, but I do sometimes think she uses it as an out for doing things she doesn't want to.  Usually I can tell the difference though.

 

 

But, I am not sure how you can tell the difference, honestly.

Pain is pain, intermittent or constant. I know, I live with it. I put my game face on often so my wonderful husband does not have to worry about me.  It has gotten much better since my diagnosis, but left untreated for a lifetime, some things may be irreversible. I have OA and connective tissue damage.and I have PT and MT to rehab my body.

 

Your daughter may be treating the symptoms of her pain on this regime she is on, but if her body is being damaged by malabsorption, it is still in constant inflammation. Inflammation causes pain.

 

She sounds as if she is trying to do everything she can to rehab, but if her bones, joints and muscles have been adversely affected by 

malabsorption, they do not work properly. The pain is horrible. And yes, some days are better than others.

When muscles and connective tissues are damaged, the pain from just walking is pretty intense.

 

Sorry to sound so firm in my response, but if someone does not live with musculoskeletal pain, it's impossible to imagine how debilitating and discouraging it is, no matter how empathetic a person may be. 

 

You say you do not think she is making it up. If  you believe she really is in pain, then how can she be  "using it"?. Perhaps she does not want to exacerbate the pain by doing more things?

She probably feels like crap and if she says she doesn't feel like doing something, it's because of real pain and/or depression from dealing with the pain.

 

At least, that's what I take away from your descriptions of her ordeal thus far.Just my opinion based on that info.

 

If her celiac panel comes back negative, I hope you will consider that gluten may very well be a factor. Non-celiac gluten sensitivity can cause similar problems in children. If she doesn't have some evidence of osteopenia or osteoporosis, I'll be very surprised.

Children do not break bones like that without an underlying cause.

 

 

http://www.thepatien...ty-in-children/

 

This is just my opinion, of course. Feel free to disregard it. I'm not a doctor. I'm just someone who shares your daughter's symptoms.

I broke a toe once just sitting on the couch (not kidding--long story) and had 2 shoulder surgeries.

I have broken my ribs, a finger, torn the ligaments in my ankle and spent more time in PT, MT and on chiropractor tables than I care to remember. Saw every rheumatologist, orthopedic doctor and spine specialist I could for years...by the time I was diagnosed at 53, I could barely walk...and the answer turned out to be: damage from celiac and malabsorption.  

 

Off gluten, and I am feeling better than I have in 25 years. I even go to the gym now.

My point? I do not want your daughter to wait 40 years to feel better,

 

 

I sincerely hope you can find answers for your daughter so she can go back to school, back to dancing and playing sports and living her happy, healthy young life. Best wishes to you!


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


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#17 Adalaide

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Posted 10 January 2014 - 08:41 AM

I live every day in pain. Sometimes it is bad, sometimes not so much. It is much improved on a gluten free diet since my diagnosis but it isn't better enough to live a normal life yet.

 

It is possible that someone would accuse me of using my pain to not do things I don't want to do. There isn't just pain, pain makes you tired. It is exhausting beyond what anyone who doesn't suffer with it can imagine to be in constant pain. This leaves only so much energy for life and activities. On bad days, this leaves me turning down opportunities to do things I want to. On okay days, I carefully calculate doing what I want and denying activities I simply find distasteful. (That might even mean I don't do my dishes every day.) And on my good days, I still limit how much of myself I give to things I do that are necessary, but that I don't enjoy because I know that doing them will tire me and cause more pain.

 

Quite simply, I enjoy things like trips to the zoo. No matter how taxing, and that I know that they will cause pain and discomfort, I still go on occasion. I am repaid that pain in joy. On the other hand when it comes to things like my doctor's visits or chores, no, I don't want to do them. I'm going to be caused pain and discomfort by the activity but gain nothing enjoyable from it. And this isn't just me. This is the same story over and over from people who suffer with chronic pain.

 

Hopefully there will be answers from the GI. It really doesn't sound at all inconsistent with celiac, and a simple diet change is so much easier to manage than something that requires pills and all that nonsense.


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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#18 mom2allison

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Posted 10 January 2014 - 02:46 PM

I definitely didn't mean to offend anyone by saying that sometimes I thought she was using it as a way to get out of doing something she didn't want to do. I do not know what it is like to live with pain everyday, that is true.  And I don't wish that on anyone, especially my daughter. 

 

The biggest struggle outside of health related issues that I have with my daughter is her school work.  She flat out does not enjoy school.  And there are many days where she will be playing around or doing other things, and as soon as I tell her it is time to sit down and work on school it seems like I have turned a switch on for her to suddenly be in pain (usually with her side/stomach hurting) where she says there is no way she can possibly sit and do school and must go lay down in bed. It would be one thing if I was asking her to do something that required more than sitting on the couch, or if she had been complaining about any pain before that, but when it is so suddenly and with something she dislikes so much it makes it difficult.  I don't want to ever doubt that she is feeling the way she says she is, but it is difficult when it comes to school work and her pain.  I don't know if that makes sense or not.

 

My guess is that stress could be causing her pain to become worse? But school work must be done.  So where do I draw the lines and set  boundaries? As it is she has already been pulled from school this year and is doing on online/homeschool program. Which is a blessing, because she would never have passed this year in public school with all the days she would have had to miss for doctors appointments.

 

Again, I really didn't mean to offended anyone and I hope you accept my apology if I did. I just hope that I get to the bottom of what ever it is that is causing this pain so we can begin to move forward.


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#19 GottaSki

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Posted 10 January 2014 - 02:58 PM

I definitely didn't mean to offend anyone by saying that sometimes I thought she was using it as a way to get out of doing something she didn't want to do. I do not know what it is like to live with pain everyday, that is true.  And I don't wish that on anyone, especially my daughter. 

 

The biggest struggle outside of health related issues that I have with my daughter is her school work.  She flat out does not enjoy school.  And there are many days where she will be playing around or doing other things, and as soon as I tell her it is time to sit down and work on school it seems like I have turned a switch on for her to suddenly be in pain (usually with her side/stomach hurting) where she says there is no way she can possibly sit and do school and must go lay down in bed. It would be one thing if I was asking her to do something that required more than sitting on the couch, or if she had been complaining about any pain before that, but when it is so suddenly and with something she dislikes so much it makes it difficult.  I don't want to ever doubt that she is feeling the way she says she is, but it is difficult when it comes to school work and her pain.  I don't know if that makes sense or not.

 

My guess is that stress could be causing her pain to become worse? But school work must be done.  So where do I draw the lines and set  boundaries? As it is she has already been pulled from school this year and is doing on online/homeschool program. Which is a blessing, because she would never have passed this year in public school with all the days she would have had to miss for doctors appointments.

 

Again, I really didn't mean to offended anyone and I hope you accept my apology if I did. I just hope that I get to the bottom of what ever it is that is causing this pain so we can begin to move forward.

 

I don't think you offended anyone...it is more a matter of we can relate to what your daughter may be feeling.  That you are looking for answers is the most important thing.

 

The good news IF this is Celiac Disease is that dietary changes may turn your daughter into a happy, healthy, energetic kid.  Won't say it will cure the "I don't wanna(s)", but with improved health many difficult situations improve.

 

Hang in there :)


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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#20 Adalaide

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Posted 10 January 2014 - 05:16 PM

I definitely didn't mean to offend anyone by saying that sometimes I thought she was using it as a way to get out of doing something she didn't want to do. I do not know what it is like to live with pain everyday, that is true.  And I don't wish that on anyone, especially my daughter. 

 

The biggest struggle outside of health related issues that I have with my daughter is her school work.  She flat out does not enjoy school.  And there are many days where she will be playing around or doing other things, and as soon as I tell her it is time to sit down and work on school it seems like I have turned a switch on for her to suddenly be in pain (usually with her side/stomach hurting) where she says there is no way she can possibly sit and do school and must go lay down in bed. It would be one thing if I was asking her to do something that required more than sitting on the couch, or if she had been complaining about any pain before that, but when it is so suddenly and with something she dislikes so much it makes it difficult.  I don't want to ever doubt that she is feeling the way she says she is, but it is difficult when it comes to school work and her pain.  I don't know if that makes sense or not.

 

My guess is that stress could be causing her pain to become worse? But school work must be done.  So where do I draw the lines and set  boundaries? As it is she has already been pulled from school this year and is doing on online/homeschool program. Which is a blessing, because she would never have passed this year in public school with all the days she would have had to miss for doctors appointments.

 

Again, I really didn't mean to offended anyone and I hope you accept my apology if I did. I just hope that I get to the bottom of what ever it is that is causing this pain so we can begin to move forward.

 

The amazing thing about doing fun things, is that while they do nothing to stop the pain, or prevent the pain, and can even make the pain worse, while doing them they take your mind off of the pain. For me, I have pain even while sitting in one of my legs. I'm also a gamer. When I get engrossed in a good game I can forget how much pain I am in. But when I am done it will hit me like a ton of bricks. I'm not saying this is what is happening with your daughter, but it is a distinct possibility.

 

I'm sure that it seems like she's shirking to you. And you may be very frustrated. Instead of making the situation frustrating for both of you, she is plenty old enough to help tackle things like a schedule with you. It is normal for children her age to start resenting being outright told when and how to do things, and struggling with pain will only make that worse. Setting up a plan to tackle school in small chucks throughout the day and remaining flexible with it may be a good way to go. Maybe if she's a music nut having music while she studies will help, it can be a way to keep part of her mind from focusing on pain without being a terrible distraction. She may be able to do more one day and less another, but since she isn't showing up to a class every day and is doing an online/homeschool program that shouldn't be a problem and there should be a lot of flexibility that suits her needs.


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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#21 mom2allison

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Posted 11 January 2014 - 04:19 PM

We are looking at a better schedule/plan for the next semester.  It has just been hard to stick to our original one for this semester with the amount of doctors, orthodontist, ER visits, and physical therapy appointments she has had. As well as surgery. (30 visits all together) She has gotten behind and is in the final week of the semester now and playing major catch up.  Thankfully we have made a lot of progress these last few days, but now she is in horrible pain tonight with her side again, as well as pain in her ears and throat from the surgery and barely able to do work. I called her doctors office this morning to see if the results of the blood work were in yet so I could go pick them up, but they said not yet.  Hopefully Monday, but Tuesday at the latest. I am very anxious to get the results.


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#22 SimonSez0721

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Posted 13 January 2014 - 01:10 AM

Let me begin by telling you how sorry I am that your daughter is struggling with these mystery ailments. As someone who has a "rule out" disorder herself for the past 25 years, Fibromyalgia, I know how frustrating some of these situations can be.

You mentioned that your daughter recently had "mono". I wonder if she actually had Mononucleosis or if she might have had the Epstien-Barr virus. I am not a doctor, but it is my understanding as a patient that if she had Epstien-Barr you would be able to see a titter of the virus left behind in her CBC, if you add an Epstein-Barr titter request to your lab draw. Just ask her doctor. The higher the number, of course, the more active the virus still is. Again, as I understand it, the aftermath of Epstein-Barr can be either Fibromyalgia: diffuse body aches with hallmark trigger points and fatigue, or Chronic Fatigue Syndrome: overwhelming fatigue with diffuse body aches. Yes, they do overlap and there are other symptoms.

Also, one of the other responders posted about Benign Hypermobility Syndrome. I would like to tell you that I am a former dancer. I studied ballet as a child for 10 years. My rheumatologist told me that dancers and gymnasts quite commonly have BHMD, basically it just means they can overstretch some or all of their joints. This may be great for flexibility and graceful movement, but it wears then supportive structures out sooner than they were intended to be used. Think of pulling a rubber band as tight as you possibly can. Now, do it again. And again. How many times can you stretch one rubber band as tight as you possibly can before it has been over-stretched?

TMJ and migraine headaches are also considered comorbid conditions.

So. In conclusion, I am so sorry that your daughter is going through all of right now. But, I'm so proud of you for trying to get her a correct diagnosis for her at the age of 12 so she hopefully won't end up like me, 49 and still trying to get a correct diagnosis.

Good work, Mom!
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Diagnoses:
January 2014: Non-Celiac Gluten Intolerant, Possible IBS
2013: Osteoarthritis
2012: Chronic Fatigue Syndrome, Benign Joint Hypermobility, Reynaud's Phenomenon, Degenerative Disc disease, Myofascial pain syndrome, osteopenia, depression, anxiety
2011: Acute Pancreatitis caused by gallstone, therapeutic Cholecystectomy
2008: 2011, 2013: Kidney Stones
2002: Migraine Headaches
1998: Fibromyalgia

#23 GF-Rick

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Posted 13 January 2014 - 08:51 PM

Diagnosed in 95, never really had any stomach problems so like an idiot I continued to consume gluten items. 2012 - a whole new story. My antibodies went haywack and i stated losing weight, still no pain or discomfort. I went to see a GI Doctor as a last resort and he confirmed gluten intolerance, scoped my GI tract and stomach and told me if I hadn't gone in to see him, I would have died within 3 months. The lining of my stomach was 50% gone. 

So this time i listened to the Dr. and feel much stronger and better now on a gluten free diet.


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#24 mom2allison

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Posted 14 January 2014 - 11:53 AM

When she had the mono last year, they did a mono test and it came back positive.  They repeated the test a couple weeks later and checked for the mono titter and it had come down significantly.  So I am guessing it was mono and not Epstein Barr. Her body aches began even before the mono did, this has been an ongoing issue for a couple years, though it is more frequent now.

 

gluten-free-Rick , that is scary how much it had damaged the lining of your stomach without having any pain or discomfort.

 

I called the doctor yesterday to see if her results were in yet and they said they would be today.  Called today and found out that she needs to come in and have one of the tests redone (THIRD TIME NOW!) because the blood clotted.  So tomorrow I have to go take her in for another draw so they can do here CBC and sedrate I believe.  The rest of the results will be available at that time for me to pick up.  She is less than happy about the thought of having to get this done yet again.  I warned her that this may very well not be the last blood draw she has done, depending on the results.  Fingers crossed we get some insight and answers tomorrow.

 

If she does end up having Celiac it could explain a lot of the issues others in my family have.  I remember going to the doctor when I was not much older than she was because I would constantly be sick to my stomach and have diarrhea after I ate.  The doctor did blood work as well as a stool sample, but never really found anything.  Of course I have no idea what they checked for, and had never heard of Celiac until maybe 7 years ago.  Most of my family has self-diagnosed themselves with IBS, which reading on here seems to be not an actual answer to anything.  My stomach problems have cleared up a lot in the last 20 years.  But if I eat things that are greasy or have a lot of cheese in them, I am sick within an hour.  Same goes for all 3 of my sisters. I don't seem to be affected by regular diary (yogurt, non melted cheese, ice cream, etc.) or bread in general that I can tell. I don't drink milk.  My youngest sister has bad reactions to pretty much all dairy.


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#25 IrishHeart

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Posted 14 January 2014 - 12:34 PM

It's not unusual for any of us to start looking at our health histories and those of our family members and see a pattern. Lots of things make sense when we put it all together. I was told I had "IBS" and GERD for over 12 years. Treatment failed. It was celiac all along and now, I have neither of those horrible conditions.I take no medications at all.

 

You started the thread with the question of: can it be celiac  "without many digestive issues"", but I can't help but notice that you wrote

she has abdominal pain, severe gas, nausea, and frequent bowel movements (two to three times a day, but not diarrhea).

 

Those seem like a lot to me, but really, some people never had any at all...and they were stunned to find they had celiac. 

 

We are all hoping you get answers; not just for Allison, but for you as well. It can't be easy watching your child in pain and going from doctor to doctor looking for an explanation (we've all been there too).

 

Keep us posted. We care!


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#26 mom2allison

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Posted 15 January 2014 - 07:39 AM

Just left the doctors. Got her blood redrawn and picked up the results that had come in so far.

 

 

 

IGA: 148 mg/dL

Transglutaminase IgA: 5 units.

TSH: 2.309 uIU/mL

Free T4: 1.4 ng/dL

 

So, looks like those are all within normal range, which is good. But now to see if we can find the missing piece to the puzzle. Thanks for all the feedback while we waited for the results.


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#27 mommy2krj

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Posted 16 January 2014 - 12:11 AM

Hello! Welcome to the boards. I'm not so great at reading the results so I'll let some of the resident "pros" do that. :)

 

My 6 year old was just diagnosed in July of last year. He had a stomach ache every single day for 6+ months. I put the plus in there because I know we brushed it off as a child trying to get out of doing things for a while before I really realized that it was every day. Some days it was just a passing "my stomach hurts" closer to the diagnosis he was dropping to his knees in tears.

He also complained of joint pain. Which was chalked up to "growing pains" as well. Ah hindsight.

It took 6 months of convincing the doctors that he wasn't depressed, anxious or scared to be starting school. Not my youngest child...oh no. This kid is my social butterfly! If they had said that about either of my older two kids I would have been inclined to agree with them, both of them were terribly shy and terrified to start school. Little guy on the other hand....he practically skipped through the doors on the first day. :) Needless to say there were some battles and some serious WTF moments with the doctors.

Now....here we are 6 months later. Gluten free. Struggling at times because it isn't easy. BUT....he's grown! My little peanut has grown several inches and he put on 4lbs in less than a month! He rarely complains of a stomach ache and hasn't complained about joint pain in quite a while.

Good luck to you and your daughter. I know the road is long and it's terrible to see our children struggle and be in pain....I hope you get some answers soon.


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#28 Kjblock

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Posted 16 January 2014 - 07:35 AM

Hello Everyone -

 

I am hoping for some feedback and answers.  I have a 12 year old daughter who is having blood work done to look for possible, Crohn's, Celiac, and/or Colitis. Tests ordered include CBC w/DIFF, ESR, ALKALINE PHOSPHATE, ALBUMIN, AMYLASE, BUN, CALCIUM, CREATININE, LIPASE, PROTEIN (TOTAL), SGOT (AST), SGPT (ALT), T4 (FREE), TSH, IMMUNOGLOBULIN; A, TT6 (or might say TTG), and IgA.  I really don't know what most of those are looking for, but hoping that they are sufficient.

 

Back in November she started complaining of low right abdominal pain.  The pain would come and go, and range from mild to so severe that she would feel like she was going to pass out, couldn't walk, and would be woken up from sleep.  After a few weeks of this continuing with no vomiting, or fever, doctor sent us for an abdominal and pelvic ultrasound. Results were normal. About 2 weeks later pain returned to the point of not being able to get out of bed.  I took her to the ER where they did another ultrasound, which showed nothing. Blood and urine tests showed no sign of infection. At this point her pediatrician referred us to GI, but said it could also be anxiety related.

 

Some health history:

 

She had 8 ear infections in first year of life.  She had tubes put in at 16 months and went 10 years without an ear infection.  She suffered from asthma pretty badly up until the age of 3, at which point it became resolved and has not used inhalers or breathing treatments since (though I am starting to think she might need it for exercise). Besides a few cases of strep throat in kindergarten, nothing too remarkable went on with her for the next few years. In 2011 she got swimmers ear for the first time, and now gets it any time she swims more than twice.  She has always been a bit of a drama queen, and would complain a lot about aches and pains that usually resolved themselves. In February 2012 she broke her foot during dance class. In January of 2013 she came down with mono, but didn't present typically and took 8 days for a diagnosis. She ran a fever for 12 days. From there things seem to have continued to be problems for her.  A week later she got her first ear infection in 10 years. Then in beginning of February she was diagnosed with patellar tendonitis.  At the end of February she developed posterior tibial tendonitis so severely that she was in a cast for 5 weeks and physical therapy for 3 months after that.  In March she got another ear infection. In September she fractured her foot running and was casted for 11 weeks on and off.  She also had a 5 week sinus infection.  In October she developed another ear infection, this time so bad she perforated her ear drum.  2 weeks later the other ear was severely infected, despite antibiotics. She just had tubes put back in her ears yesterday, as well as her adenoids removed with hopes of clearing up her ear issues. In December we were back at orthopedic doctor for her knee pain being so severe she could barely walk.  She is in physical therapy now 3 times a week to try and get that under control (and even tonight could barely walk because of pain).  Despite being a dancer for 10 years, she has quite significant muscle atrophy in her thighs, especially the one with the bad knee.  She complains a lot about back and hip pain, as well as random other joints, but mostly knee, back and hips.  She has also been having more frequent headaches, and a couple weeks ago complained of her vision suddenly being blurry. Turns out her vision changed 4 points (from .25 to 1.25). 

 

My question is, could any of this be related to Celiac?  From reading on the forum, it looks like joint pain isn't unheard of, but wasn't sure if that would include tendonitis. Her digestive issues besides the recent abdominal pain are severely gassy (seriously the gassiest kid our family has ever seen) nausea, and frequent bowel movements (two to three times a day, but not diarrhea). I know I won't know anything for sure until we get the blood work back, and I am really hoping that it is all negative. But the more I read on here, the less I am sure.

 

Sorry this is so long, I am just at my wits end on what to do with my child. It seems like something is always going on with her. Any feed back, ideas, or suggestions are welcomed.

 

~Melissa~

My mom was diagnosed in 2007 or 2008 and she has never had digestive problems--her main troubles were joint pain, osteoporosis, and anemia (both of which didn't really respond to treatment until she went gluten-free). I was diagnosed in December and have had frequent tendonitis, like both elbows at once, in my feet, etc.  Not sure if they are related but inflammation certainly could be.  The other thing I wanted to mention is something called Legg Calve Perthes disease.  I don't know that it's likely, but my son had it as a younger child, and with you mentioning knee, hip and abdominal pain, I'd feel remiss if I didn't mention it.  This is a condition where for some unknown reason, blood supply to the hip gets cut off, the head of the femur dies, disintegrates, and then grows back.  His main complaint was knee pain and we did have one urgent care visit with severe abdominal pain too.  Both the knee and abdomen were referred pain from the hip problem.   I would suggest just asking about it (any good pediatrician should be familiar with the disease)--it is quite obvious on xray depending on the stage (the bone should look like the ice cream on an ice cream cone, and at various points it will look flattened or even be missing altogether).  If you are able to self-refer to a specialist, you could also take her to a pediatric orthopedist to get this checked out.  It's not a common disease, but something that may be worth considering.  I've heard it said that any child with knee pain should be checked for Perthes.  Good luck!


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#29 mom2allison

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Posted 17 January 2014 - 06:30 AM

Kjblock - I had never heard of Perthes. Upon reading it, it sounds like it could be a problem.  But the thing I can't tell is if the pain usually progress to be worse as time goes on, or if it could be intermittent. Also, the only other reason I might not thing it would be that would be that her knee pain is in her left knee, and abdominal pain on the right side.  Though more and more lately the knee is the biggest pain for her, not the abdominal pain, especially after therapy.  Those days she is in pain just walking around the house.  I called today to get her back into her orthopedic doctor, but he can see her for another 11 days.  I may make an appointment with her regular doctor and ask for the orders for pelvic x-rays, just to rule it out. Even if it isn't Perthes she still needs to see the orthopedic doctor since her pain is still so bad even after 5 weeks of therapy.


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