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Celiac In Small Town Arkansas
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 Hi There My name is Nicole and I live in a very small town in Arkansas. I was diagnosed in May of 2011. It has been a struggle ever since. I am wanting to know if there is anyone in Arkansas? I think it might be nice to have a friend dealing with the same condition as I am. 

  I also want to know of any online support groups for myself and one for my husband it has been very hard on the family. I live in a house with 16 people and i am the only one with this and i am far from being respected so just making a simple meal it is a huge task. Most of the time i end up being contaminated. So i think some kinda of support group might help my family stop making jokes and show respect. 

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Hi RaccoonMama! I'm in very rural Arkansas too... not far from Mountain Home. Where are you? I'm the only celiac in our house, but there are only 2 of us... so cross contamination isn't much of an issue. The hard part, for me, is that it's slim pickings for gluten-free food available in stores. I can usually find Udi's bread and Tinkyada pasta, but they're pricey! I order pasta, bread mixes, and baking flour online which saves a tiny bit of $$.

 

Welcome! This place is THE place to be for information and support. Whatever question you have... peeps here have been there and done it and will have an answer or a suggestion.

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Hi Racoon and Welcome to the Forum.

 

Here is a link to the Celiac.com's on-line Sport Group with Live Chat Meetings.

 

Here is the Newbie 101 link.  http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

 

Ask anything you want.

 

Colleen

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I myself live in Mountain Home, I love living here! Just sad that I dont Know anyone with celiac. But Living in a small town my Mother who also is a celiac was worried about not being able to shop. I am not a meat eater so i am a pasta lover and i was VERY happy to have found Gluten-free noodles at Wal-Mart Made by Hartland. Just wish to have more friends with celiacs so that i can have someone to talk to and help me understand. I was diagnosed in may of 2011 and just in the past year was able to give up what has been hurting me and eat right but i am still learning. I need someone to help me and my family understand more in depth. Just in the past week have i learned that i have to change my hair and body care products so my body rashes can clear up. I was unknowingly using products with gluten in them.

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    • Hi Anns and welcome   Do you think that I am on the right course to see if I possibly have Celiac?   Yes, it was smart of you to consider the possibility and its good that you've had the tests. Both the aneamia and bloating are symptoms, although of course they may be unrelated. Best way to find out is to check as you are doing.   Can this develope later in life ( I'm 46)?   Yes, I think its most common discovered later rather than sooner.   I ate a meal last night that was gluten free and did not feel like nearly as bloated after eating, would I notice a change that quickly?  Thanksort for your input.   Yes, I noticed far less of a heavy feeling after eating very soon after diet changes. However you would be better off not trying gluten free just yet. I collected some links and other stuff here, it may be of use: Your best bet is to eat as normal and wait for the test results. If your doctors eliminate celiac there's nothing to stop you excluding gluten at that point to see if it helps. But before then you need to keep eating it to ensure an accurate diagnosis.  All the best  
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    • So, I have just yesterday had blood work done to test for Celiac so I am waiting on my results.  This was prompted when my Dr discovered that I was severely anemic and after other testing sent me to  Hematology.  I actually inquired if I could possibly have a gluten sensitive because of the anemia (which has improved with an iron supplement) and feeling bloated after eating and well most of the time actually and after some research I found that this could be a sign that of a gluten sensitivity.   The Hematology Dr also recommend an upper GI.  Do you think that I am on the right course to see if I possibly have Celiac?  Can this develope later in life ( I'm 46)?  I ate a meal last night that was gluten free and did not feel like nearly as bloated after eating, would I notice a change that quickly?  Thanksort for your input.   ANN
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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
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