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Kicking Myself
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Hi Everyone! I'm new to this forum. 

 

I recently went gluten free (it's been about a week and a half) because of some stomach issues and migraines. I thought gluten might be connected, so I decided to cut out gluten to see if it made me feel better. Before cutting out gluten, I did an Advocare cleanse for 24ish days, and didn't eat many gluten filled foods during that time. 

 

Long story short- I feel SO much better already. The very dull pain i've always had in my intestinal area is completely gone, which has never happened. I know it hasn't been long, but I am also not going to the restroom as much (used to go 2-3 times a day). 

 

So now I'm reading the forums, and I am kicking myself for cutting out gluten before I was tested for Celiac. With the cleanse and going completely gluten free, I'm not sure how accurate the tests would be.  I absolutely hate my doctor, and was hoping to find a new one, which is why I didn't go in the first place before cutting out gluten myself. So my question is... If I call and schedule an apt for blood work, how long do I need to be eating gluten first? Also- what should I ask for? Just a celiac blood test?

 

Thanks so much for your help! This forum has already been tremendously informative and helpful. 

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Hi Everyone! I'm new to this forum. 

 

I recently went gluten free (it's been about a week and a half) because of some stomach issues and migraines. I thought gluten might be connected, so I decided to cut out gluten to see if it made me feel better. Before cutting out gluten, I did an Advocare cleanse for 24ish days, and didn't eat many gluten filled foods during that time. 

 

Long story short- I feel SO much better already. The very dull pain i've always had in my intestinal area is completely gone, which has never happened. I know it hasn't been long, but I am also not going to the restroom as much (used to go 2-3 times a day). 

 

So now I'm reading the forums, and I am kicking myself for cutting out gluten before I was tested for Celiac. With the cleanse and going completely gluten free, I'm not sure how accurate the tests would be.  I absolutely hate my doctor, and was hoping to find a new one, which is why I didn't go in the first place before cutting out gluten myself. So my question is... If I call and schedule an apt for blood work, how long do I need to be eating gluten first? Also- what should I ask for? Just a celiac blood test?

 

Thanks so much for your help! This forum has already been tremendously informative and helpful. 

 

 

http://www.cureceliacdisease.org/archives/faq/how-much-gluten-should-be-consumed-prior-to-being-screened-for-celiac-disease

 

How much gluten should be consumed prior to being screened for celiac disease?

It’s best to continue a normal, gluten-containing diet before being screened and diagnosed. If a gluten-free diet has been followed for more than a few weeks, then we recommend eating at least 1 serving of gluten (1/2 slice of bread or a cracker, for example) every day for 12 weeks prior to a blood test and 2 weeks prior to a biopsy. This is often referred to as a “gluten challenge” and should be done under the care of a medical professional.

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The gluten challenge...  12 weeks...  Pretty sure mine was 12 years :-)  Having an official diagnosis is totally worth it if indeed you have celiac disease.  Good luck with things.

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    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • Finally, proof that non-celiac gluten sensitivity is real. ... for the 30 percent of consumers who choose to buy gluten-free products and the 41 percent of ... View the full article
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