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7 Months

w8in4dave

By w8in4dave
in Coping with Celiac Disease

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w8in4dave Community Regular
w8in4dave
Posted

Ok it has been 7 months since I was Dx'd , My report is that it is going pretty good in fact very good Gluten wise , but I also figured out I am Corn intolerant , around Oct, so 3 months Corn free. Well going Corn Free is alot more of a struggle than gluten-free let me tell ya! but it is doable!But if I get Corn in me it hits me worse than Gluten!  I am still struggling with something , not sure what my problem is yet. I am doing so much better. I have great support from friends and family. And they try so hard. But I really say just let me do it. They want to feed me lol .... I went to a restaurant with a friend I havn't seen since before Christmas. I was telling the waitress I have Celiac and I am also Corn intolerant , my friend right away said, she doesn't have to know your problems. I said, well actually she does, because she can help me figure out what I can and cannot have. And she did. I had to have a plain burger (no bun) and a veggie salad , no dressing. The girl checked every dressing they had and all of them contained corn. Thats why you want to tell your server. :) I am feeling better have some energy back but not enuf. Maby if they can figure out what eles is bothering me, I can feel wayyy better. But untill then I am going to give on a scale of 1-10,  10 being the best 1 the worst, I say most of the time I feel like a 6, once in a while I feel like a 7. So thats the way it's been going. And again I want to thank everyone here. I have gotten some great advice! Great advice!! Thanks everyone!

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GF Lover Rising Star
GF Lover
Posted

Congratulations Wendy, your doing great !

 

Remember it sometimes takes over a year to see improvement in our issues.  I remember last summer I had an AHA moment.  My brain felt like it finally started back up.  It was an amazing feeling to have that fog lifted after so so many years.  

 

Keep doing what your doing, your IMPROVING!  :D

 

Colleen

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bartfull Rising Star
bartfull
Posted

Yeah, corn makes things so hard! The worst part for me is finding medications and supplements that don't have corn. I DID find a vitamin I can take, FINALLY! (Lifetime Iron-free Soft Gels. They don't say gluten-free, but I called the company and it was your basic CYA statement, so I started taking them and have had no problems.) I have to get my Tylenol made at a compounding pharmacy though. Very expensive.

 

Wendy, have you checked out the Mast Cell Activation Syndrome thread? Even though corn isn't one of the bad guys with that, I think it explains why so many other foods bother me. Of course there isn't much we can do about it except take anti-histamines and I haven't found any anti-histamines that don't contain corn, but at least it has cut down on my worries about why I still don't feel good.

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NoGlutenCooties Contributor
NoGlutenCooties
Posted

... I think it explains why so many other foods bother me. Of course there isn't much we can do about it except take anti-histamines and I haven't found any anti-histamines that don't contain corn...

 

If you're open to trying natural remedies, this site explains how some foods act as natural anti-histamines:  Open Original Shared Link

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NoGlutenCooties Contributor
NoGlutenCooties
Posted

... I have great support from friends and family. And they try so hard. But I really say just let me do it. They want to feed me lol ....

 

Congratulations on doing so well with the diet and figuring out what works for you and what doesn't!  I can definitely relate to the well-meaning, supportive friends and family who want to help.  That's one thing I'm trying to deal with diplomatically without hurting anyone's feelings.  They don't quite understand that cooking food in a gluten kitchen doesn't mean it will be gluten-free just because the food itself doesn't start out having gluten in it.  I try to explain how easy it is to get cross-contamination but they still think I'm going way overboard and just being overly paranoid.  My sister didn't believe that I could be so sensitive to gluten post-diagnosis given that I didn't have any obvious symptoms before my diagnosis.  Until I got accidentally glutened a couple of weeks ago and the reaction was identical to getting food-poisoning.  She's still skeptical, but I think she's starting to come around.  :)

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bartfull Rising Star
bartfull
Posted

If you're open to trying natural remedies, this site explains how some foods act as natural anti-histamines:  Open Original Shared Link

Wow! Thanks SO MUCH! This really confirms that I have MCAS. I had been eating sweet potatoes every single day, usually for both lunch and dinner. I was also eating Udi's chocolate muffins, one a day, for the past three weeks.

 

Well, I am SO SICK OF SWEET POTATOES, so I switched to white rice last week, but still ate a muffin each afternoon. And NOW I am having a psoriasis flare. Looks like the sweet potato was offsetting the chocolate. I'm still so sick of sweet potatoes I can't stand to look at them, but broccoli is on sale this week and if it looks decent (it often doesn't here), I'll be eating that this week. Of course I'm out of muffins right now and don't plan on buying any for a while, but it's nice to know I can eat them once in a while if I balance things with the right veggies.

 

Thanks again. I LOVE this place!!!

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1desperateladysaved Proficient
1desperateladysaved
Posted

I am looking forward to some of your 9 days which could lie ahead!  I hope.  I saw some of my vast transitional symptoms at 8 months gluten free, so who knows?

 

All of the best.

 

 

D

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notme Experienced
notme
Posted

w8n4, are you still keeping a food journal?  i always go back to my tried and true food journal when something has got me trying to figure out what i'm eating that is bugging me. 

 

congratulations on your 7 months!!  :)

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w8in4dave Community Regular
w8in4dave
  • Author
Posted

Yeah, corn makes things so hard! The worst part for me is finding medications and supplements that don't have corn. I DID find a vitamin I can take, FINALLY! (Lifetime Iron-free Soft Gels. They don't say gluten-free, but I called the company and it was your basic CYA statement, so I started taking them and have had no problems.) I have to get my Tylenol made at a compounding pharmacy though. Very expensive.

 

Wendy, have you checked out the Mast Cell Activation Syndrome thread? Even though corn isn't one of the bad guys with that, I think it explains why so many other foods bother me. Of course there isn't much we can do about it except take anti-histamines and I haven't found any anti-histamines that don't contain corn, but at least it has cut down on my worries about why I still don't feel good.

No I have not but will :) Antihistamines I quit taking them. Probably why my ears feel so full!! Ughhh

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w8in4dave Community Regular
w8in4dave
  • Author
Posted

If you're open to trying natural remedies, this site explains how some foods act as natural anti-histamines:  Open Original Shared Link

Thanks! I have added it to my Favorites :) I will read up on it. Cannot hurt thats for sure.

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