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Dry Scalp
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I recently found out I have high blood sugar so I stopped being gluten free for a while because I thought maybe it was just high blood sugar. Anyway it turns out I do have celiac and high blood sugar but eating gluten has given me an extremely dry/itch scalp and skin. I went off glutte.but is there anything else I can do? I have tried every shampoo out there and I use one for a sensitive scalp now. It just really itches! Ugh

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If it's not dh causing it and you have dry skin try coconut oil. You find it in the grocery store by the oils and crisco. If its solid, warm it just a little then massage it into you scalp and hair (great for dry hair) put on a shower cap (a towel would work but soaks up a lot of the oil). I leave it on half hour or more. Then shampoo it out, you might have to rinse and repeat. My hair is long (past the middle of my back) and I've been trying to do this once a week. It really helped my dry itching scalp and has really improved the look and feel of my hair.

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Shea butter moistens hair/scalp very well. With my flat hair, I usee a kind called "Beautiful Curls", it is a leave in conditioner. I am trying to make plain shea butter to work, but it leaves my hair looking oil.  I haven't mastered getting just a little bit.

 

Homemade shampoo bars are great for the scalp and hair.  If you don't have any of them, you might try Liggetts shampoo

http://www.swansonvitamins.com/j-r-liggetts-old-fashioned-bar-shampoo-mini-traveler-1-kit?SourceCode=INTL        These were travel bars, I will try to find regular.  I guess just click on JR Liggetts when you get there as I don't seem to be able to post the other link! 

 

Make sure your current shampoo does not contain gluten or wheat germ. Some people's skin gets irritated by it.. 

 

Classic Liggetts has Olive oil, coconut oil, castor oil, fresh pure New Hampshire spring water, sodium hydroxide (a binder) and essential oils for fragrance

 

D

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I work out a lot and so end up taking 2 showers a day quite often - which was drying out my hair and sometimes making my scalp itchy. I found that baby shampoo worked well - sometimes I only wash with "adult" shampoo every couple of days. Although, even with the baby shampoo I still use conditioner.

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I went off being gluten free when I had blood sugar issue. It wasn't for long but I wanted to make sure it wasn't just hi blood sugar. Now that I'm gluten free it is getting better. I think I have DH on my feet and arms. Is it a rash that looks like blisters? It itches soo bad! Omg thankfully it is going away.

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I do not have DH, but it sounds like you do. Your best and only defense is no gluten! Recovery from DH can take much longer than intestinal healing based on what forum members who have DH have stated. Patience is required. Search this forum for symptom relief.

Good luck!

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I showed my wife my scalp and she says it is psorasis so I made an appointment with the dermatologist.

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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