For anyone out there in the Twin Cities, Minnesota area, I just took my DD to see a physician at MN Gastroenterology - Dr Lisko. He was amazing! Spent an hour talking with us and kept repeatedly telling us, he had all the time in the world. He specializes in Celiac disease. Based on her symptoms and suspicion of celiac disease - she is already scheduled for an endoscopy day after tomorrow.
I thought I would provide another resource for those in this area.