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Test Results.....worrying?


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#1 ButtercupSarah

 
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Posted 22 January 2014 - 08:26 AM

Hi ya'll

 

I got some new blood work back yesterday and I am not comforted by the results, obviously something is wrong...and I'm not getting any answers.

I am Hypothyroid but non hashimotos and have been gluten free for almost a year

 

I have a couple of off the charts results in inflammation and cortisol:

 

Cortisol 36.4 ug/dl      Range: 2.3-19.4

hs-CRP 6.7                 Range: <1.0

 

Also my TSH is UP from my last bloodwork from 2.5 to 3.09 I finally convinced her to up my armor by 15mcg after she let me sit on the same dose for 9 months.

 

My coritsol is up from my last bloodwork from 34. Adrenal fatigue? My C reactive protein (inflammation) is silly high and I know this can be indicative of celiac. My body has been in so much pain lately that I worry about fibromyalgia. I should get the results of my testing for whether I have the Celiac gene soon. A little family history: Great grandmother, and grandmother diagnosed hypothyroid, uncle has MS, grandma is allergic to gluten (refuses to admit it, but does say she feels better when she doesn't eat bread) surprise surprise she is schizophrenic, manic depressive, and bipolar. Great grandmother also has stomach cancer and diverticulitis. I'm afraid they are all killing themselves with this protein!!!

 

Thank you for your insight! My Dr. (just found out she is an ARNP) has been of little assistance.

 

 


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#2 pricklypear1971

 
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Posted 22 January 2014 - 08:42 AM

TSH is useless for thyroid diagnosis and treatment , apparently, in your case. You need free t3, free t4, reverse t3 labs. And run ALL thyroid antibodies, again.

How are your vitamin levels? If you are low in iron, b's, d3, selenium, chromium your thyroid may be underperforming because of deficiencies. Deficiencies go with celiac and thyroid....they say thyroid because hypo people produce less stomach acid so food doesn't break down well. I've never been able to understand if those people are also celiac....sigh.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#3 ButtercupSarah

 
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Posted 22 January 2014 - 08:57 AM

She refuses to run my antibodies again (because my insurace won't cover them), they haven't been tested in 9 months. I am going to a new Dr. on the 30th. I just want some answers...I'm sick of being told to take fish oil and sleep more.

 

My D3 is low and my tests basically indicate I'm at high risk for cardiac episodes, which makes zero sense...I am a 26 year old female fitness instructor who eats VERY well 90% of the time.


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Gluten Intolerant 2013

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#4 pricklypear1971

 
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Posted 22 January 2014 - 09:00 AM

You can order tests online (they send you the order, you go to lab for draw)...same labs doctors use. You pay cash but it's an option.

Yeah. New doctor.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#5 pricklypear1971

 
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Posted 22 January 2014 - 09:01 AM

You can take liquid d3, which may be more easily absorbed if you have low stomach acid or celiac.
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#6 ravenwoodglass

 
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Posted 22 January 2014 - 11:49 AM

Are you still eating gluten? Do start the diet trial as soon as all celiac related testing is finished. Do keep in mind that the gene test can be helpful but even if you are negative for the two most common genes you can still be celiac.


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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 NoGlutenCooties

 
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Posted 22 January 2014 - 12:45 PM

If I understand you correctly, you've been gluten-free for a year and your doctor refuses to retest your antibody levels?  Were they down when they tested you 9 months ago?  If so, there's no reason to test them again because the tests for antibodies is useless if you're not consuming gluten.

 

It is good to get all of the other testing done (thyroid, etc.) but I found I felt tremendously better by taking an adrenal support supplement along with a thyroid supplement.  These are the ones I use:

Adrenal support:  http://www.vitaminsh...apsules/nz-1001

Thyroid support:  http://www.vitaminsh...ie-caps/gh-1153


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Age: 42

Positive Bloodtest: Oct 1, 2013

Gluten-free since: Oct 2, 2013

Celiac confirmed by Biopsy: Oct 29, 2013


#8 ButtercupSarah

 
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Posted 22 January 2014 - 10:03 PM

The last time my antibodies were tested I had been gluten free for almost 3 months, so, it seems as though they are useless. I will look into the adrenal support supplement, I did a spit test for adrenal function and should know the results of that very soon.

 

My only antibody test was 9 months ago: Gluten free for a little over 3 months at the time

 

Thyroglobulin abs <10 IU/ml  Range < 115 IU/ml

 

I am concerned about the level of inflammation on my current test...could that indicate fibromyalgia? I always thought my pain was due to my job as an aerialist. I also read it could be an indication of celiac.

hs-CRP 6.7                 Range: <1.0

 

Thank ya'll for helping me sort this craziness out!!


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#9 pricklypear1971

 
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Posted 22 January 2014 - 10:24 PM

Did they test thyroglobulin or TPOAb?

Thyroglobulin is not used to dx Hashis.... http://labtestsonlin...bulin/tab/test/

The TPOab is used to dx Hashis Hypothyroidism. http://labtestsonlin...roid-antibodies

You need to understand if they ran the correct thyroid antibody test.

You can have inflammation from ANY autoimmune disease. Since you know you are hypothyroid, I'd pursue that AND your gluten intolerance....

You should probably read this about Fibro/thyroid: http://c.washingtont...ms-uk-research/

Your high cortisol may be the effect of poorly managed thyroid. You may need more, or different thyroid med. you really need free t3, free t4 and reverse t3 to see what your thyroid hormone levels are and if you are utilizing the meds properly. You may need an adrenal support supplement or lifestyle modification/change to help lower your cortisol.

And finally, if you haven't been gluten-free to Celiac standards:observing gluten-free to prevent cross contamination, etc., you could try cleaning up any remaining gluten to see if you feel better. I mention this because some people who are unsure of their status don't observe strict standards. I'm not saying you don't....
  • 0
Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
.
Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#10 eers03

 
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Posted 23 January 2014 - 09:32 PM

I'm not sure so someone please chime in...  Cortisol levels can also be a metric for Addison's Disease, yes? If thyroid is checking out okay then it seems like that is what the cortisol would point to.  I'm on shaky ground here.  Not sure on this but it seems like when I was at Mayo they tested my cortisol to check for Addisons.  Mine checked out okay.


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Diagnosis 11/2012

#11 frieze

 
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Posted 24 January 2014 - 02:53 AM

make sure they are using the right range for the right time of day....


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#12 ButtercupSarah

 
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Posted 28 January 2014 - 09:16 PM

make sure they are using the right range for the right time of day....

 

The peak range (morning) was Range: 2.3-19.4 and my result (taken around noon) was 36.4


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#13 nvsmom

 
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Posted 29 January 2014 - 06:41 AM

That reading for cortisol is super high, especially for being taken at noon - cortisol usually peaks in the morning.

 

As far as I know, high cortisol can be caused by stress (mental or physical) as well as glandular problems like Cushings (pituitary adenoma) or an adrenal adenoma. Cortisol is also a check for Addison's (when body attacks the adrenal gland), as previously mentioned, but in that case the cortisol would be too low, so it may not apply in your case. Adrenal insufficiency or fatigue probably isn't the case either because the cortisol levels would be (I believe) sub-clinically low - not almost double the normal limit as you have.

 

What did your doctor say was the cause of the high cortisol ?  Could cushings apply to you?

http://www.nlm.nih.g...icle/000348.htm


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#14 Gemini

 
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Posted 29 January 2014 - 09:24 AM

The peak range (morning) was Range: 2.3-19.4 and my result (taken around noon) was 36.4

Sarah.....was this a blood test for cortisol or a saliva test?  Saliva testing is more accurate as they use 4 points of reference, pertaining to time of day, for measurement.  Early morning when you awaken, noon, late afternoon and late evening.  If these reference ranges were for morning, then taking your blood around noon would not be correct.  Sorry for the misunderstanding, I am just trying to figure out exactly what you mean. I also will have to look at my last test for the reference ranges because I can't remember what they are supposed to be.

 

As far as your CRP is concerned, if you have autoimmune disease, it can raise any inflammatory markers.  My ANA was off the charts with my 4 AI diseases but, over time, I have brought it down by following a strict gluten-free diet.  It is still not in the normal range but way better than it was 9 years ago.  It can be improved upon so don't let this number worry you too much, from a cardiac point of view.  Doctors are alarmists.


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#15 ButtercupSarah

 
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Posted 02 February 2014 - 08:58 PM

Sarah.....was this a blood test for cortisol or a saliva test?  Saliva testing is more accurate as they use 4 points of reference, pertaining to time of day, for measurement.  Early morning when you awaken, noon, late afternoon and late evening.  If these reference ranges were for morning, then taking your blood around noon would not be correct.  Sorry for the misunderstanding, I am just trying to figure out exactly what you mean. I also will have to look at my last test for the reference ranges because I can't remember what they are supposed to be.

 

As far as your CRP is concerned, if you have autoimmune disease, it can raise any inflammatory markers.  My ANA was off the charts with my 4 AI diseases but, over time, I have brought it down by following a strict gluten-free diet.  It is still not in the normal range but way better than it was 9 years ago.  It can be improved upon so don't let this number worry you too much, from a cardiac point of view.  Doctors are alarmists.

 

I have been on a gluten free diet for a year now, and I my testing was all done POST gluten free diet. The original cortisol testing was done through blood.

 

I just received my spit test results back:

 

Gliadin was negative (obviously, I don't eat gluten)

 

My morning cortisol was depressed and the noon, afternnon and midnight were normal.

 

My total salivary SIgA was 6mg/dl - Normal 25-60mg/dl

 

My understanding is that total salivary SIgA has to do with your mucosal membranes, and is something that can be low in people with Celiac? Does anybody know more information on total salivary SIgA?

 

Update since my last post: My new Dr. has sent more for an MRI and evoked potentials test for Multiple Sclerosis. I have had numbness and tingling for years and have developed an obvious weakness in my left side.

Still waiting on the results of my Thyroid U/S

 

Thanks ya'll so much!


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