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Tingling


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18 replies to this topic

#1 KCG91

 
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Posted 23 January 2014 - 05:21 AM

I often/usually have a faint tingly feeling in my lower legs and hands - almost like when you've been very cold and are warming up? Is this related to any of the 'neuro-' stuff I've been avoiding reading about (because anything starting with neuro- scares me!)? I hadn't bothered about it before as it isn't painful or a problem but wondered if it's worth mentioning to my doctor when I see them? While I'm on the topic of weird feelings - anyone else get a sensation like they've suddenly bobbed to the side, or the room has moved? Not dizzy and falling but just, odd. 


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Katie

 

Diagnosed with Coeliac and severe anaemia in September 2013

Gluten free 11/10/13

 

 

 


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#2 cyclinglady

 
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Posted 23 January 2014 - 09:55 AM

I started taking vit. B12 and magnesium in hopes of eliminating the nerve symptoms. It seems to be working!
  • 1
Non-functioning Gall bladder Removal Surgery 2005
Diagnosed via Blood Test and Endoscopy: March 2013
Hashimoto's Thyroiditis -- Stable 2014
Anemia -- Resolved
Fractures (vertebrae): June 2013
Osteopenia/osteoporosis -- June 2013
Allergies and Food Intolerances
Diabetes -- January 2014




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#3 KCG91

 
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Posted 23 January 2014 - 10:14 AM

Thanks! I did suck it up and Google up on it after posting but as the official treatments listed appear to be around pain control (I don't have any) knowing about the supplements is very helpful. Any advice about taking them? (I also take iron and a probiotic) 


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Katie

 

Diagnosed with Coeliac and severe anaemia in September 2013

Gluten free 11/10/13

 

 

 


#4 cyclinglady

 
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Posted 23 January 2014 - 10:29 AM

Take vit. C (supplement or in food) with that iron. I take a sublingual version of vit. B12 to by-pass my intestinal tract. My current docs are not too savvy about supplements or celiac disease for that matter, but I think supplements are helpful until healing is complete. I have taken supplements for years (my retired doc did a lot of "out-of-box" thinking/treatments) and they probably saved me from even worst damage from celiac disease. Too bad he did not catch the celiac disease but that darn thalassemia really covered up the iron deficiency
anemia, which was the only symptom that my gastro caught for celiac disease when I went for my over-50 colonoscopy.
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Non-functioning Gall bladder Removal Surgery 2005
Diagnosed via Blood Test and Endoscopy: March 2013
Hashimoto's Thyroiditis -- Stable 2014
Anemia -- Resolved
Fractures (vertebrae): June 2013
Osteopenia/osteoporosis -- June 2013
Allergies and Food Intolerances
Diabetes -- January 2014




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#5 anti-soprano

 
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Posted 24 January 2014 - 09:13 PM

I often get tingling in my hands- as if they were asleep and blood was flowing back into them- as well as slight dizziness.  I don't believe these symptoms are from celiac, but another issue.  However, that doesn't mean that your symptoms are not caused by the celiac. Low blood pressure can cause both these symptoms, I believe.  Are you on the low side?


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#6 greenbeanie

 
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Posted 25 January 2014 - 04:00 AM

I had tingling in my leg, and sometimes in my arms and hands, for years. Sometimes I had a shaky low-blood-sugar-like feeling in my whole body too (and food didn't help). Magnesium worked wonders for me. Someone here recommended it, and within days the shaky feeling and most of the tingling was gone. I went back and found old blood test results from a hospital admission (for neuro-related balance/coordination problems) several years ago, and lo and behold I was deficient in magnesium then! At the time they just told me to take a mutlivitamin and didn't believe me when I said I already was...I had no idea at the time that the magnesium deficiency could cause tingling. Anyhow, I've been taking it daily for about 8 months, and every time I try to stop the tingling comes back within a couple days. But as long as I keep taking it, no tingling!
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Daughter: Positive tTG-IgA, DGP-IgA, and DGP-IgG. Celiac confirmed by biopsy in June 2013, at age four. Clear gastrointestinal, behavioral, and neurological/sensory symptoms since very early infancy, even when exclusively breastfeeding.

Me: Diagnosis still unclear after extensive testing: Atypical wheat allergy, severe NCGI, or false negative celiac tests? Doctors disagree.Gluten challenge caused acute gastritis, esophagitis, and angioedema that lasted 4 months and was eventually determined to be a sulfite allergy. Gluten light for 15 years, then gluten free since June 2013.
Long history of eczema, chronic diarrhea, steatorrhea, ataxia, peripheral neuropathy, infertility, chronic insomnia, low cholesterol, vitamin deficiencies, and joint pain. Improved greatly within six months of going gluten-free.


#7 cyclinglady

 
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Posted 25 January 2014 - 11:01 AM

Me too, I read about the additional magnesium on this forum. I think it helps too for bone growth. I take it.
  • 0
Non-functioning Gall bladder Removal Surgery 2005
Diagnosed via Blood Test and Endoscopy: March 2013
Hashimoto's Thyroiditis -- Stable 2014
Anemia -- Resolved
Fractures (vertebrae): June 2013
Osteopenia/osteoporosis -- June 2013
Allergies and Food Intolerances
Diabetes -- January 2014




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#8 anti-soprano

 
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Posted 25 January 2014 - 11:57 AM

Wow- so glad to know about the magnesium! Katie, at least you know you're not alone!!


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#9 KCG91

 
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Posted 25 January 2014 - 02:25 PM

anti-soprano and greenbeanie - yes, same tingling feeling! Thank you cyclinglady, magnesium and B12 now stowed on the 'breakfast pills' cupboard in my kitchen! Hopefully that will help. 

 

anti-soprano yes I am usually in the low range of normal for blood pressure, which seems to run in my family. I did wonder if that was causing some of the dizziness.

 

greenbeanie I am a really poorly co-ordinated individual, always have been. My Dad calls me Clatters, after the trail of destruction I leave :D 

This is what I really value about this board - if I went to the dr they'd ignore me or refer me for nasty elecrocution type tests! Now I get to give the supplements a go first :) Is nerve damage particularly dangerous? I mean I'm not in pain so I'm not that bothered, just incurably curious. 


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Katie

 

Diagnosed with Coeliac and severe anaemia in September 2013

Gluten free 11/10/13

 

 

 


#10 moosemalibu

 
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Posted 25 January 2014 - 02:36 PM

 

greenbeanie I am a really poorly co-ordinated individual, always have been. My Dad calls me Clatters, after the trail of destruction I leave :D 
 

 

 

And yet you are so athletic with your aerial acrobatics! That is amazing! I think you are more coordinated than you think. I gave myself a concussion getting into my car before! I broke a toe on a vacuum cleaner... the list goes on LOL


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Jamie

"We can't help everyone, but everyone can help someone." Ronald Reagan

 

Diagnosed Celiac via blood test 8-22-13

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Endoscopy/Biopsy Oct-26-13 positive for Celiac

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Dairy Added back in successfully 3-1-14

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#11 KCG91

 
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Posted 25 January 2014 - 02:51 PM

And yet you are so athletic with your aerial acrobatics! That is amazing! I think you are more coordinated than you think. I gave myself a concussion getting into my car before! I broke a toe on a vacuum cleaner... the list goes on LOL

Hahah true, the funny thing is the aerial silks have (I think) improved my co-ordination. You have to think hard about it to avoid splattering yourself ;) I did nearly run into a wall the other day though... 


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Katie

 

Diagnosed with Coeliac and severe anaemia in September 2013

Gluten free 11/10/13

 

 

 


#12 greenbeanie

 
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Posted 26 January 2014 - 04:06 AM

 I did nearly run into a wall the other day though... 

 

It sounds funny when you say it like this - but you seriously may be in for a very pleasant surprise once you've been gluten free for a bit longer! I used to walk into walls ALL THE TIME. I don't even know how to describe it...I'd just be walking through a regular doorframe, and the entire left side of my body would smack into the wall instead! My whole arm, shoulder, and leg would end up hitting the wall instead of going through the door. It never happened when I was consciously concentrating on where I was going, but who concentrates just to walk through a door? I felt ridiculous, and people surely thought I was drunk. It routinely happened several times a day. I also smacked the cupboards directly into my head when I opened them, and banged my head on the metal car doorframe as I was getting in. I'd been very athletic and coordinated as a child and teenager, but the coordination went downhill fast in my mid-20s (I'm 38 now). After three or four  months gluten free, I suddenly realized that I hadn't walked into a door in a week! It really hadn't been one of my major concerns, but it sure is nice to have an unbruised head again.


  • 0

Daughter: Positive tTG-IgA, DGP-IgA, and DGP-IgG. Celiac confirmed by biopsy in June 2013, at age four. Clear gastrointestinal, behavioral, and neurological/sensory symptoms since very early infancy, even when exclusively breastfeeding.

Me: Diagnosis still unclear after extensive testing: Atypical wheat allergy, severe NCGI, or false negative celiac tests? Doctors disagree.Gluten challenge caused acute gastritis, esophagitis, and angioedema that lasted 4 months and was eventually determined to be a sulfite allergy. Gluten light for 15 years, then gluten free since June 2013.
Long history of eczema, chronic diarrhea, steatorrhea, ataxia, peripheral neuropathy, infertility, chronic insomnia, low cholesterol, vitamin deficiencies, and joint pain. Improved greatly within six months of going gluten-free.


#13 KCG91

 
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Posted 27 January 2014 - 04:25 AM

Yep, I know the feeling! Corners of walls, door frames, people I'm walking next to... This has been going on as long as I can remember. Makes me wonder if I developed coeliac earlier than I previously thought. 


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Katie

 

Diagnosed with Coeliac and severe anaemia in September 2013

Gluten free 11/10/13

 

 

 


#14 Pegleg84

 
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Posted 27 January 2014 - 11:36 AM

That sounds familiar. It might be a bit if what they call "gluten ataxia". Tingly extremities and a bit of unbalance. Kind of a slightly drunk feeling.

I might try the B-12 and magesium thing too. You're supposed to take magnesium with calcium and Vit-D too, right? (I'm also wondering if my iron might be a little low too).

 

If it makes you feel any better, a couple years ago I walked straight into a glass door. Like a bird. It was open when we went into the store. I swear! Ooh it took a while to live that one down. I hit my shoulder/arms against doorways a fair bit too if I'm off balance.

 

If it keeps being a problem, you might want to look at other foods that could be bothering you.


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- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.


#15 KCG91

 
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Posted 27 January 2014 - 01:15 PM

Haha! Did you leave a little pattern like the birds do?! I've just Googled gluten ataxia and it does sound familiar, but perhaps too new to get a diagnosis for. I'm generally pretty athletic but have always had a tendency to shoulder barge doors etc. My Mum used to joke that if she watched me play rugby without her glasses on she'd know me by my funny running style. 

I was only diagnosed with celiac disease because the more I trained, the slower I got. Now that I have the gluten-free diet and the anaemia under control (well, getting there) that is my 'secret weapon' for getting faster this year. If eventually both my legs go in the same direction that would be even better ;) I'll keep folks updated! I've just started with the B12 and magnesium - we'll see how it goes. I wish there was a way to find out when the celiac disease gene was tripped, as I said I only started gastro symptoms a few years ago but I've always been badly co-ordinated etc. 

I'd definitely recommend getting your iron checked, I didn't realise how exhausted I was until my doctor spelt out to me how low my levels were and put me on supplements. 


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Katie

 

Diagnosed with Coeliac and severe anaemia in September 2013

Gluten free 11/10/13

 

 

 





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