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Just Saying Hello!
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Hi Everyone,

 

I am new but new on the forum. I have been reading the forum for about  5 months now and have found tons of helpful  information here. I have seen this forum members provide lots of support to others. I have found the stories and the information shared here very informative and very encouraging. Cheers to all of you for such good work :)

 

Little about me:

 

   I was diagnosed with celiac late 2013. I had suspected I might have it after my mom was diagnosed with Celiac in 2009 but I guess I was in denial and in university  :D  so I decided to push my diagnosis back for a while. My symptoms for Celiac were constipation, fatigue and anemia . Not having severe symptoms also contributed to not take the Celiac seriously but I guess I should count my blessings and be thankful that the symptoms are not severe.

  

 My mood started getting worse (very angry and irritable)  last year and I guess so did the damage to my gut. Endoscopy showed grade 3 out of 4 damage (it sound bad given that my GI  looked concerned ^_^ ). I guess I can't cry about it now given this is a consequence of my own choice -_- . 

 

I have been gluten free for about 3 months (well 4 months of I count the big blunders I made in the first month of the diet)  and hoping that my health will go no where but up  :D .

 

I just completed the follow up blood work yesterday and am hoping that it shows some good results of my hard work for the last 3 month. I need some positive vibes from you guys!!!

 

Thank you!

 

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:D Hooray for you! :D

 

I'm glad you finally got tested. My Mom had it too and like you, I was in denial for a long time. But I'm so glad I finally went gluten-free. Glad you did too. I hope your tests show great improvement!

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Welcome JustGF!

 

The good news is that once the transition is complete it gets much easier.

 

It is great that your symptoms were not severe...you are still young and will heal now that you are living gluten-free.

 

Good luck with your upcoming check...let us know how it goes :)

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Welcome!   This is a great place to be, feel free to ask anything.

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Thank you everyone!

 

I am really optimistic about this positive (and at times hard) lifestyle change. I guess its all worth it in the end. 

I am just hoping to see some validation in the results for the blood work. I will share how it went. 

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Welcome! I say that like an old pro when I was just officially diagnosed 11/13! 

 

Yes, let us know how your blood work goes. I go back in April for my follow-up and am hoping for some good stuff! Keep up the good work!

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Welcome to the group! :)  As long as your antibodies are lower than before you are making progress.  You'll be an old-pro in no time! :D

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Welcome JustGF!

 

I was diagnosed on Oct 1, 2013 so haven't been at this for long.  I go back for the follow-up blood work towards the end of March.  You're very fortunate to have caught this thing before getting severe symptoms.  I didn't have any symptoms and yet the biopsy showed moderate to severe villi damage - so the myth about "no symptoms, no problem" (a.k.a. blatant denial) is a load of crap.  ^_^

 

Good luck on your gluten-free journey!

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Thank you everyone! I got my blood work results back today.

Now way back in 2009 I was tested in diff country while taveling and my ttg was 297and I have been on full gluten diet until last year november Here in canada I they never give a number. It just said > 200.

But happy to say its 160 Yay!! It might not be as low as others might have seen but I am happy for this progress. My other antibody is now NORMAL.

My hemoglobin had jumped from the 70s to 127. My ferritin has gone up to 73!

Just thought I should share the numbers. I am off to celebrate with some glutenfree honey and peanut butter sandwiches :)

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Thats great to hear.  You are on the right track, and the first few months are the hardest.  

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Glad to hear you are recovering.  Have a nice journey.

 

D

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Congratulation to YOU!!.  Enjoy your celebration  :)

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    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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