Hi. My name is Catie and I have been sick a long, long time. I will try to condense my story and make it as clear as possible.
My tummy has always hurt. At 25, it got dangerous. The abdominal pain was really scary. The med that helped was Bentyl, but it was not a cure or even that effective. Sometimes, I would take a prescription pain killer leftover from my DH's kidney stones. Mutliple MD's, a positive celiac panel, following a strict gluten free diet DID NOT improve the pain AT ALL, and then I landed in the hospital.
The gastro told me that I did not have celiacs and I went back on gluten. The major trigger I could identify for the previous pain was Splenda. Came off Splenda, and the pain *mostly* went away, but I have diarrhea EVERY DAY. This went on for 2 years.
Fast forward to the end of January. I had a checkup at my regular MD's office and I asked him if my tummy pain would ever go away. He reminded me I had tested positive for celiacs and suggested I go back to gluten free.
In the past week and a half, the diarrhea has been remarkably better, but not gone. Bowel distention is improved, my girlfriend says it looks like I lost at least 2 inches around the middle. I am doing more than just gluten free because I really, really want to feel better.
So, I made eggs last night in a cast iron skillet. Awful. DH has cooked many a pancake in it. The pain was so bad that 2 Bentyl took the edge off but I still was super restless, could barely sleep and awoke to MORE tummy pain. Egad.
I understand that this is a process and takes time I am ok with that. I feel like I need an older sister. Does that make sense? Just a friend to kind of mentor me thru this process. I am grateful to have found this forum but am nervous about posting as I don't really know the etiquette of forums boards. Is it OK that I am a newbie and I start a thread, that kind of thing?