Welcome to the board.
A gluten challenge before testing usually requires a good 2 month of eating gluten regularly (about 2 slices of bread per day). I can see how you'd like to skip that! An endoscopic biopsy requires a shorter gluten challenge of about 2 or so weeks, but the wait to see a GI specialist in my home town, Calgary, is about a year so I'm not sure if that's a good fit for you either.
Another option would be to check your rash for dh (dermatitis herpetiformis) which is also a way to diagnose celiac. A dermatologist would take a biopsy beside the rash, and that can show autoimmune antibodies that celiacs have. You'd need to be able to get in to see a dermatologist on pretty short notice though. Check out the dh board for more info.
If you have a gluten sensitivity, you have either celiac disease or non-celiac gluten intolerance (NCGI) which has all the same symptoms as a celiac minus the villi damage (which the blood tests show is being attempted) or the dh rash. You definitely have one problem... Tell people you have NCGI with possibility of celiac disease, if they don't respect that - that just says something about the type of person they are or their ignorance. It has nothing to do with you.
That's a shame people have commented like that. They really showed their ignorance. Even if you ARE passing on the bread to stay low on carbs so you stay slim - thats a GOOD thing! Eating low carb is generally a pretty healthy way to eat. Who wants to be fat anyways? Even if you eat a typical diet and aren't in the mood for bread, so what? It's really a rather dumb thing to have said. LOL
I like to counter with sweetness and guilt: " Oh, I know that my diet is a hassle but I so appreciate you helping me stay healthy.... I'll bring my own food because our diet is a pain and it's difficult to cook for if you don't do it already..." Stuff like that.
Or you could always sarcastically deadpan: "Yes, I am lying and just faking major health issues just so I can skip bread at this meal." LOL
I do want to mention though, be really careful eating out at people's houses. Most marinades, sauces and some spices will contain gluten. Even if they make you a gluten-free meal, you can't use their butter on your potatoes because it may be contaminated; and some of their cooking supplies (spatula, colanders, non-stick frying pans) may also have gluten stuck in them and potentially make you sick. Be careful.
I trust my body telling me that gluten is just not something it wants to deal with anymore. I feel better without it, my body responds better without it. But at this point, I feel as if I need to get a clinical diagnosis in order for my family and my fiances' family to believe me.
But I also know from reading here that blood panels can come back negative. I also hesitate to eat a TON of gluten (even briefly) just to get a 'positive', especially with my new job.
So at this point, I'm wondering: I want to go to my doctor and tell him my concerns. He's an amazing doctor, very open-minded and trusts that people know their bodies. But if I get a negative blood panel, what do I tell people? Is it morally okay to tell people you have gluten intolerance even without a professional diagnosis? Or should I just suck it up, gluten it up and try for that positive professional diagnosis?
I'm so glad I've found this place. The amount of information here is incredible. Thank you
In Calgary, the only celiac disease tests available (at least last year) are the tTG IgA (tissue transglutaminase) and the EMA IgA (endomysial) which they only run if you have had a positive tTG IgA. The tTG IgA is a pretty good test but it does miss a minority of celiacs, especially those who are IgA deficient - run a total serum Immunoglobulin A (IgA) to check for that.
This report discusses the tests on pages 10-12. The sensitivity of the tTG IgA is 75-95% (page 12) which means that it will miss 5-25% of all celiacs.
If you can get the other tests (DGP IgA and IgG, tTG IgG) try to do so... if you test that is.
And no, I don't think it's wrong to say you have celiac disease, but you might want to consider saying NCGI or possible celiac disease just to be honest. Both are very real health issues, and that way you don't have to worry about fudging the truth. If people ask why you haven't tested, juts honestly tell them that the testing available is not very reliable.
If you decide to test (blood tests) and get a negative, then you know it's probably NCGI with a chance of it being celiac disease. If you have other autoimmune disorders, or your family does, that does increase the odds that it's celiac disease. A family history of diabetes (type 1), crohn's rheumatoid arthritis, Raynaud's, etc will make it more likely that you are dealing with celiac disease.
I hope that made sense.
Stay warm! Brrrrrrrrrrr