Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Testing Post Diagnosis


MistyRG

Recommended Posts

MistyRG Apprentice

I read on the University of Chicago website about what you should be tested for each year after diagnosis. My doctor isn't very knowledgeable on Celiac, and I am coming up on 2 years since diagnosis. At my last appointment (which was the first since diagnosis), I asked her to run the testing again to see if my numbers look good. She ran a "Celiac Panel" (all the lab slip said), and when they called me with the results, they said it was negative and to keep doing what I'm doing. I don't have the report in hand yet, but I wanted to see if anyone knows if this is good news . . . or really no indicator?

 

I have been gluten-free for almost 2 years, but my family (husband and 5 kids) still consumes some gluten in the house. I am always worried about CC or the goldfish kisses from my kids!!! We eat out a few times a month, and, well, you can never be sure there!!! I just wanted to make sure I was definitely on the right track and healing.

 

Thanks!!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moosemalibu Collaborator

Request a copy of your results. But chances are your Celiac Panel being "negative" is good. The doctor that diagnosed me used a "Celiac Panel" and since I've gone gluten free my numbers have gone down but are not considered in the normal range yet. Chances are you may be in the subclinical range and that is why they said negative. But get a copy of your results, too. You should compare your initial test results with the new results. It will be a great confidence booster for sticking with the diet!

Link to comment
Share on other sites
GottaSki Mentor

Yes, this is good news.  All of your antibodies should be negative if you have been gluten free for two years.

 

It is advised to have the celiac panel run at six months and then annually there after.  Since this panel was negative there is nothing more to do other than remain gluten-free and include the panel in your annual blood work.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,086
    • Most Online (within 30 mins)
      7,748

    Brooke123
    Newest Member
    Brooke123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Tanner L
      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
    • Scott Adams
      Be sure to keep eating gluten daily until all testing is completed.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      You can always to the gluten challenge later, after your pregnancy, should you need a formal diagnosis. I think it's best to play it safe in this case.
    • Jesmar
      Very true. I also suffered from candidiasis which had affected my intestines and toes. I think this might have triggered my gluten intolerance/celiac.
    • trents
      Welcome to the forum community, @Jesmar! The HLA DQ2 and DQ8 genes were the original halotypes identified with the potential to develop celiac disease. Since then, other genes have been discovered that apparently afford a predisposition to celiac disease. As is always the case, these new discoveries are not yet common knowledge and not yet widely dispersed in the medical community. It is not genetically as black and white as we once thought.
×
×
  • Create New...